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Author Topic: Twirl-Girl  (Read 12863 times)
Joe Paul
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« Reply #25 on: April 14, 2009, 10:15:34 PM »
Good luck Twirl, hope you get better soon  :grouphug;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #26 on: April 14, 2009, 10:28:10 PM »
Oh Twirl!!! I'm so sorry to hear about this! Please kick those nurses and techs right where it counts for me!!!   :cuddle; :cuddle; :cuddle;
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Chris
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« Reply #27 on: April 14, 2009, 10:34:08 PM »
Twirl I hope you are starting to feel better or will soon.
Might be time to switch centers if possible, since they can't get their act together right. They can't afford gauze and blame you for bleeding, WTH is next with these idiotsMaybe do what paddbear did by calling another dialysis center so they will ask your center for records and then something might happen. If it get's any worse, report their  :sir ken;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Wattle
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« Reply #28 on: April 15, 2009, 01:19:33 AM »
 :Kit n Stik;  OMG IDIOTS. I hope her Doctor really goes to town on her clinic!
 

:cuddle;  Thanks Rerun for answering the phone at such an ugly hour.


 :grouphug;  Get Well soon Twirlly Girl    :-*
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
RichardMEL
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« Reply #29 on: April 15, 2009, 01:24:17 AM »
That is frakking unbelieveable!! How could the staff NOT alert to her ankles being puffy, and shortness of breath AND the higher BP? OMG My lot would freak at any one of those things let alone all 3... WHAT IDIOTS!!!

I really hope twirl will be better soon !!! She's one of the very special WOMEN OF IHD!!!  :bow; :grouphug; :grouphug;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
cat
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« Reply #30 on: April 15, 2009, 06:03:02 AM »
I hope you are feeling better soon.    :grouphug;
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paris
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« Reply #31 on: April 15, 2009, 07:32:17 AM »
We miss you so much. It isn't the same without you.  Hope you are starting to feel a little better.  We love you   :grouphug;   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
thegrammalady
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« Reply #32 on: April 15, 2009, 07:51:43 AM »
incompetent techs is the very reason i keep track of everything so carefully, i don't trust anyone else to do it. so glad everything is going to be ok. thanks rerun. be better soon twirl, we miss you.
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Rerun
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Going through life tied to a chair!
« Reply #33 on: April 15, 2009, 08:26:50 AM »
I called her and left a message so hopefully she will call and give us an update.

                                                     :waving;
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David13
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A meow massages the heart.
« Reply #34 on: April 15, 2009, 08:35:54 AM »
Thanks again, Rerun!   :thx;

I hope you are feeling better, Twirl!  I miss you!   :cuddle;
« Last Edit: April 15, 2009, 08:52:25 AM by David13 » Logged
“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
willieandwinnie
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« Reply #35 on: April 15, 2009, 08:38:24 AM »
 :thx; rerun. If you get to talk to her, please tell her that I am thinking and praying for her and we miss her a lot.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
glitter
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« Reply #36 on: April 15, 2009, 09:45:31 AM »
come back soon- we miss your posts!  :grouphug; I hate diaysis now more then ever! I know there're some good people working at these centers, but I am starting to beleive they are the exception. Please,Please take care of your self!
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
rose1999
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« Reply #37 on: April 15, 2009, 12:39:13 PM »
Been missing you Twirl and was too scared to open this post at first.  Sorry to hear how ill they have made you, hope you are better soon.  :cuddle;

Rerun thanks so much for letting us know about our Twirl.   :cuddle;
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Tinah1968
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ME
« Reply #38 on: April 15, 2009, 01:06:37 PM »
Twirl,

Get better and I am a hop skip and a jump from you so if you need something let me know.. Thanks RERUN
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
MIbarra
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Stopping to smell the bluebonnets
« Reply #39 on: April 15, 2009, 04:12:41 PM »
I hope she calls you back, Rerun! I am worried about our Twirl.

Come home soon, Twirl! :cuddle;
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Cadaver transplant April 29, 2007
Sunny
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Sunny
« Reply #40 on: April 15, 2009, 04:27:07 PM »
Miss you Twirl.
Get better soon so we can hear from you again.Somebody better set those techs straight after their blatant incompetence.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
kitkatz
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« Reply #41 on: April 15, 2009, 04:51:50 PM »
I will be sending Twirl something in the mail to cheer her up and keep her busy. Heheheheh!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
paris
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« Reply #42 on: April 15, 2009, 07:17:47 PM »
Come on Twirl,  we miss you soooo much.  Please feel better   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Rerun
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Going through life tied to a chair!
« Reply #43 on: April 16, 2009, 08:42:23 AM »
Twirl PM'd me that she was out of the hospital.

                       :clap;
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David13
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A meow massages the heart.
« Reply #44 on: April 16, 2009, 08:47:11 AM »
Hooray!  Let's hope our Twirl is on the mend and feeling better!   :yahoo;

We miss you, Twirl!   :cuddle;
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
Tinah1968
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ME
« Reply #45 on: April 16, 2009, 09:26:52 AM »
That is GREAT NEWS....  :clap; :clap;
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
willieandwinnie
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« Reply #46 on: April 16, 2009, 09:42:24 AM »
 :yahoo; twirl. I sure hope you are feeling better.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
MandaMe1986
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« Reply #47 on: April 16, 2009, 09:43:01 AM »
That makes my day eve better!  We love you Twirl! Can't wait till your back.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
cat
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« Reply #48 on: April 16, 2009, 10:00:04 AM »
 :2thumbsup;  great news.  I hope this means you are feeling better, Twirl.
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cat
monrein
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Might as well smile
« Reply #49 on: April 16, 2009, 10:02:22 AM »
Glad you're back home Twirl, hope to see you back on here soon.  :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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