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Author Topic: Twirl-Girl  (Read 12763 times)
Rerun
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Going through life tied to a chair!
« on: April 14, 2009, 05:59:36 AM »
My phone rings at 5:30 this morning... I'm thinking "who the HELL is that", so I don't answer.  It rings again so I think "I'd better get that". 

It was our Twirl-Girl and she has been in the hospital since Friday night.  She has congestive heart failure due to a gradual fluid overload because the Idiots at dialysis didn't challenge her dry weight!  She kept complaining of her ankles being more puffy when she left then before she came in.  When she left each time her blood pressure was high.  She had shortness of breath.  GEE!  Ya Think??  I wish I lived closer so I could have a chat with those people
                                                :Kit n Stik;

Twirl said to tell Mike###, Ang, and (oh Shit.... someone else) hello and not to worry about her.

They have dialyzed her again on Saturday and got 3 kilos and again yesterday and got 3 kilos.  And that is after being in the hospital where they probably don't let her drink an ounce!

She said I could come on IHD and tell you guys, so she will look here! 
                                   


Hope you feel better Twirl !!!                :waving;     
« Last Edit: April 14, 2009, 06:23:37 AM by Rerun » Logged
paul.karen
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« Reply #1 on: April 14, 2009, 06:04:51 AM »
idiots  :Kit n Stik;

 :waving; Twirl get well soon.  Sorry to hear that THEY did this to you.
Hope you are feeling good as can be SOON.
And thank you Rerun for taking that call :thumbup;  And filling us in.
 :cuddle; to you both.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
David13
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A meow massages the heart.
« Reply #2 on: April 14, 2009, 06:12:38 AM »
I was wondering where Twirl has been.  Thanks, Rerun, for letting us know.

Twirl, get better soon!  We miss you!   :cuddle;
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
kristina
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« Reply #3 on: April 14, 2009, 06:38:30 AM »
Thanks Rerun for informing us. Please give Twirl my kind regards and I wish her a speedy recovery. All the best from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
skyedogrocks
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Rob showing off his pot of gold!
« Reply #4 on: April 14, 2009, 06:44:49 AM »
Oh Twirl - Get better soon, I'll be thinking of you!!!

I'm so annoyed at these Dialaysis Centers, how unbelievable! 
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Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.

11/17/09 After 4 years on dialysis, Rob received a kidney from our George.  Kidney is working great!  YEAH!!!!
Sluff
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« Reply #5 on: April 14, 2009, 06:47:07 AM »
Twirly girly my own personal stalker, I hope you get better soon. We will have to send Kit with her big stick next time.

Here are many hugs for you to get back on track.. :grouphug; :grouphug; :grouphug; :grouphug;
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Rerun
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Going through life tied to a chair!
« Reply #6 on: April 14, 2009, 06:52:59 AM »
Oh, yeah, I forgot to say that her Doctor is really "pissed" that she got this bad.  I'm sure he will kick some butts.

                                          :yahoo;
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paris
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« Reply #7 on: April 14, 2009, 06:57:54 AM »
Rerun, soooo glad you answered the phone!  Twirl, I hate this has happened.  You are missed and we want you to feel better.   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
dwcrawford
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Getting the heck out of town.
« Reply #8 on: April 14, 2009, 07:05:48 AM »
Twirl, or any of Twirl's friend, let me know if there is anything I can do to.  I'm right here in Bellaire (just a few minutes away).  I'm in the phone book.  You can guess my name by my member name.  Or my email is in the profile. 

Twirl, get well.  We need you.

Dan
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
jbeany
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Cattitude
« Reply #9 on: April 14, 2009, 07:06:14 AM »
 :Kit n Stik;  Beat em up, the morons!

Twirly, no being sweet to them - kick some butt!

 :cuddle;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
cherpep
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« Reply #10 on: April 14, 2009, 07:15:48 AM »
I'm glad she's getting the help she needs, sorry that it had to be in the hospital.  We love you Twirl!!!  Hope you are better and out of that place real soon! 
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #11 on: April 14, 2009, 08:39:53 AM »
I am glad she called, I had noticed her missing -- GET WELL SOON Miss twirl!!  :grouphug;

Click on her to watch her twirl!
   V
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   V
« Last Edit: April 14, 2009, 08:41:21 AM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile
« Reply #12 on: April 14, 2009, 08:58:34 AM »
I hated reading this post but I'm glad to know where Twirl is and that she'll be OK.  What a bunch of idiotic techs and I too hope that Twirl's doc has some harsh words for the clinic.

Thanks Rerun for answering the early phone call and then filling us all in.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paul.karen
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« Reply #13 on: April 14, 2009, 09:01:47 AM »
 :2thumbsup;
She jiggles when she twirls.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
MandaMe1986
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« Reply #14 on: April 14, 2009, 09:04:43 AM »
Thanks Rerun

Twirl get better soon!
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Slywalker
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« Reply #15 on: April 14, 2009, 09:12:34 AM »
Twirl - get better really really soon. 

(Okarol - cute Twirl-girl - perhaps Twirl will shoot some video when she is back home and share it with us.)

 :bunny:
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Zach
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"Still crazy after all these years."
« Reply #16 on: April 14, 2009, 09:13:35 AM »
 :cuddle;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
willieandwinnie
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« Reply #17 on: April 14, 2009, 09:22:36 AM »
Oh rerun, thanks for answering that call. I had wondered where she was. Oh twirl, I hope they kick some ass big time at that clinic. What the hell is the matter with them.  :Kit n Stik; Please get better soon, we miss you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
kimcanada
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« Reply #18 on: April 14, 2009, 09:27:30 AM »
OMG!

I never knew she was having trouble... she did ask me about fluid a few times, but then she said that they wern't taking much fluid off...

I hate this sh**  Twirl, I am thinking of you and sending good thoughts your way... get better soon and we will "chat" when you get back...

Would this be a hospital that we can e-mail the patients??
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G-Ma
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« Reply #19 on: April 14, 2009, 11:16:41 AM »
Thanks Rerun for answering the phone....    :bow;

Twirl...hope everything works out for you.    :grouphug;         :flower;       :cheer:
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Romona
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« Reply #20 on: April 14, 2009, 01:14:47 PM »
Hurry Back Twirl! :)
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MIbarra
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Stopping to smell the bluebonnets
« Reply #21 on: April 14, 2009, 04:51:05 PM »
 :cuddle; Twirl! I hope you will be okay soon.

High BP, trouble breathing, puffy ankles??
You know I don't expect too much out of the techs, but where on Earth were the stupid nurses who should have been watching all of this???
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Cadaver transplant April 29, 2007
charee
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« Reply #22 on: April 14, 2009, 04:59:12 PM »
Thinking of you Twirl   and get back and kick some butt :grouphug;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
pelagia
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« Reply #23 on: April 14, 2009, 08:00:48 PM »
Oh dear Twirl.  I hope you are okay.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
kitkatz
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« Reply #24 on: April 14, 2009, 09:17:20 PM »
Gosh Twirl.  That must have been awful  Take care of yourself! Let us know how you are.  Get out of the hospital soon!  :bunny:  :cheer:
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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