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Author Topic: I am not going  (Read 10414 times)
twirl
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« on: April 09, 2009, 02:00:36 PM »
I have to go get my fistula checked out -
my clinic will not buy those little cotton balls anymore -
they say it is to save money -
so I have started bleeding after treatments -- tons of blood -
techs blamed me -
then they clamped one site and I held the other site and the clamped one bled -
I know it is going to hurt
and I am sick and tired of all this crap
just leave me alone - please
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paris
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« Reply #1 on: April 09, 2009, 02:12:25 PM »
I love you Twirl!  Wish I could make things better.   :cuddle;
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« Reply #2 on: April 09, 2009, 02:26:15 PM »

God! How much do cotton balls cost?!?!?!?
Buy a case, I will pay for them!
Jeeeeeeeeeez  :banghead;
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willieandwinnie
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« Reply #3 on: April 09, 2009, 02:44:22 PM »
twirl, you find the ones you need and by God, I'll but them. What the hell kind of decision is that not to carry cottonballs. Lord, these money making places just piss me off to know end. What about the patients that are paying for all this shit. Oh don't get me started. I love you twirl.  :cuddle;
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thegrammalady
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« Reply #4 on: April 09, 2009, 03:07:30 PM »
twirl, you know you are loved. what are they using instead of cotton balls?

my standard line is "you do it my way or you don't do it at all". i've also been known to tell reluctant people "you are not allowed to put my life in jeopardy".
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G-Ma
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« Reply #5 on: April 09, 2009, 03:14:12 PM »
 :grouphug;  to twirl.............these are not the fluffy cotton balls and are expensive...they are like someone took about a 2 inch sqare of wool, sewed it into a circle and then shrank it...I don't know the name but saw them I believe in Cherokee...they used some on me when I asked about them...said have some patients that want them so I guess the Dr/Clinic orders them...I didn't like them as I'm afraid they will put too much pressure on the fistula and i want my friend around for a long time.  I just take time after they take both needles out and hold the sites and when I feel the pumping subsiding we tape up and I go.  Twirl...have someone show you how to hold the site and just be careful not to let the vein move under your fingers and they can do one at a time, just will take a bit longer.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
MandaMe1986
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« Reply #6 on: April 09, 2009, 03:17:06 PM »
Wow, are you serious they won't buy cotton balls?  I am sure upper management sure saved millions on that deal.  That makes me really mad!  And yes we could all buy them, but you shouldn't have to!  I am so sorry.  I hope you find a way to get his worked out.  :grouphug;
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« Reply #7 on: April 09, 2009, 03:21:45 PM »
I'm so sorry, Twirl. 

When you say "cotton balls" are you meaning the special stuff they put on under the bandage to help stop the bleeding?  Either way, if you need it to stop the bleeding, they are responsible for providing it.

I know that sometimes problems with grafts can develop and lead to increased bleeding after treatment.  It really might be worth your time to get your graft checked to make sure something isn't wrong with it.   :Kit n Stik;
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kitkatz
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« Reply #8 on: April 09, 2009, 03:22:34 PM »
Hell's Bells girl! I will buy you a case of cotton balls!  Tell the morons to look out we are after them!
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« Reply #9 on: April 09, 2009, 04:54:27 PM »
 :Kit n Stik; 


Twirl that is ridiculous! Cotton balls can't save them that much money. Morons.    :banghead;
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« Reply #10 on: April 09, 2009, 05:10:29 PM »
 :cuddle; Twirl. They are so stupid! Tell them your friends here said buy the stinking cotton balls or we'll all prank call the center for hours on end!
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twirl
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« Reply #11 on: April 09, 2009, 05:59:38 PM »
thanks you are all special to my heart

they fold gauze over once and I have been told by a tech that I am not the only patient with this problem

and the hospital called me today and told me about my appointment -- the first time I knew I had an appointment --- Dialysis did not call me -- the nurse said it will hurt and to be prepared ---

I AM TIRED OF HURTING

the last time they put me in this same misery because they had trouble sticking me was a joke -
the acess doctor told me there was nothing wrong and that they needed to hire people who
can cannulate
and my nep doctor was really upset with Davita - that was a few years ago

but this recent problem coinsided with the white balls disappearing
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charee
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« Reply #12 on: April 09, 2009, 06:00:40 PM »
 :grouphug;
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« Reply #13 on: April 09, 2009, 06:04:13 PM »
Can you just bring back the ones you stole?

                   :rofl;

Just kidding!  Dialysis just sucks and that is all that can be said.   :waving;
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twirl
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« Reply #14 on: April 09, 2009, 06:07:04 PM »
if my arm starts bleeding I am afraid I will drive like Rerun    :rofl;     just joking  :waving;
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Chris
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« Reply #15 on: April 09, 2009, 06:24:59 PM »
Quote from: okarol on April 09, 2009, 02:26:15 PM

God! How much do cotton balls cost?!?!?!?
Buy a case, I will pay for them!
Jeeeeeeeeeez  :banghead;

Maybe they are getting the government price? $250 for 1 toliet seat! :urcrazy;
What is worse is that they blame Twirl for bleeding.

Of course she is going to bleed, you stuck her you idiot!
Hello numbnuts or shall I call yo McFly! Get the fricken cotton balls or gauze to treat paitents correctly instead of blaming them for your pbad penny pinching in the wrong area! :rant;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
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No two day's are the same, are they?
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« Reply #16 on: April 09, 2009, 06:33:00 PM »
Put me in for a couple of cases Twirl.   :grouphug;
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Ang
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« Reply #17 on: April 09, 2009, 06:48:42 PM »
try  googling  "caldistat",see  what  they  call  it  in  theu.s.


we  use  it  here  in  oz,  very  helpful  when  you  can't  turn  the  blood  off.
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Romona
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« Reply #18 on: April 09, 2009, 06:50:10 PM »
 :grouphug;
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Rerun
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« Reply #19 on: April 09, 2009, 07:42:11 PM »
Quote from: twirl on April 09, 2009, 06:07:04 PM
if my arm starts bleeding I am afraid I will drive like Rerun    :rofl;     just joking  :waving;


                   :rofl;    >:D
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G-Ma
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« Reply #20 on: April 09, 2009, 07:58:46 PM »
my techs take 3 to 4 gauze pads and fold into 1/4, put it on a site with tape and I hold, the same way with the other..I hold both at one time...I think it's the same principle, just not pushing right on the opening....you tell them how you want your site to be handled....    :Kit n Stik;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
kitkatz
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« Reply #21 on: April 09, 2009, 08:42:42 PM »
Do you want a box of sure seals sent your way?
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #22 on: April 10, 2009, 09:54:32 AM »
 :grouphug;   Twirl  :grouphug;
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lola
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I can fly!!!
« Reply #23 on: April 10, 2009, 10:32:18 AM »
 :Kit n Stik; :Kit n Stik; do they not know clamps are BAD!!!! I'll pay for the cotton balls... :grouphug;
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« Reply #24 on: April 10, 2009, 12:06:14 PM »
Quote from: lola on April 10, 2009, 10:32:18 AM
:Kit n Stik; :Kit n Stik; do they not know clamps are BAD!!!! I'll pay for the cotton balls... :grouphug;

Clamps bad?
The ones my center had were weak and barely used because they usually fell apart after cleaning them a few times. So they just used tape and gauze after you held your spot for a few minutes. At first, I couldn't hold my sites, it was uneasy for me. Over time I was able to hold my spots and didn't need the clamps unnless I was having a hypoglycemic reaction.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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