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Author Topic: Marvin got a call! Waiting...  (Read 20139 times)
petey
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« on: April 01, 2009, 01:09:13 PM »
Marvin got a call at 3:15 p.m. this afternoon.  There's a possible kidney for him.  He's first in line.  The kidney is from out-of-state and is being harvested now.  On paper, it looks like a very good match for Marvin.  We're waiting for a call-back -- when the kidney gets to NC, they will cross match it with Marvin's blood.  If there's no reaction, it's his.

We're so excited we can't hardly stand it.  Marvin has had 8 calls in the last 14 years, but none of them worked out.  He does have a high PRA (98%), but the coordinator said this looked like " an extremely good possibility" for him.  The donor was a stroke victim (and, therefore, in the "extended donor pool" that Marvin agreed to be put in), but the coordinator said the kidney is healthy and appears to be a good one (though not "perfect" because of the donor's stroke).  Marvin said it might not be "perfect," but if it's "good," it's better than none.

Waiting...waiting...waiting...Please pray for my Marvin.
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paul.karen
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« Reply #1 on: April 01, 2009, 01:11:45 PM »
 :thumbup;

Sending POSITIVE thoughts and prayers.
after 8 teases it is time.
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Curiosity killed the cat
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Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
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MandaMe1986
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« Reply #2 on: April 01, 2009, 01:16:30 PM »
You guys are in my prayers. :grouphug;
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« Reply #3 on: April 01, 2009, 01:16:51 PM »
Praying also - as I believe God can do great things!
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Becky
44 years old, Christian, homeschooling mom to my boys, ages 7 & 9.
- PD Patient beginning 12/31/08
- Listed on September, 2009
- Transplant on March 28, 2010
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« Reply #4 on: April 01, 2009, 01:25:36 PM »

Finger and toes crossed! I hope all works out petey!!
 :grouphug;  :grouphug;  :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #5 on: April 01, 2009, 01:28:43 PM »
WOW another high PRA gets matched.  That is hopeful.  Best of luck!  I hope all goes well.

                                 :cuddle;
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kimcanada
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« Reply #6 on: April 01, 2009, 01:30:07 PM »
Awesome Petey!!

Fingers and toes firmly crossed!
 :grouphug;
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charee
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« Reply #7 on: April 01, 2009, 01:30:24 PM »
Fingers crossed thinking of you both :grouphug;
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Home Hemo  18 months
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G-Ma
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« Reply #8 on: April 01, 2009, 01:34:40 PM »
Oh God please make this work for Marvin.  Hey lady we have missed you.  Make sure to take care of yourself too.     

 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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« Reply #9 on: April 01, 2009, 01:34:53 PM »
I am not familiar with PRA...?
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Becky
44 years old, Christian, homeschooling mom to my boys, ages 7 & 9.
- PD Patient beginning 12/31/08
- Listed on September, 2009
- Transplant on March 28, 2010
willieandwinnie
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« Reply #10 on: April 01, 2009, 02:40:24 PM »
 :2thumbsup;  :2thumbsup; petey........... I am praying so hard for Marvin. Oh my God. I am so excited. Is there anyway you can let us know. I will be glued to my computer all night. That's if I don't get butted off for some reason or the other. Oh Marsha, I really hope that this is the one. All my thoughts and prayers are with you and Marvin.  :bandance;  :yahoo;
« Last Edit: April 01, 2009, 02:50:09 PM by willieandwinnie » Logged
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Darthvadar
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« Reply #11 on: April 01, 2009, 02:46:06 PM »
Thinking of and praying for you!...

May this be the kidney for you!...

God bless you...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
rookiegirl
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« Reply #12 on: April 01, 2009, 03:29:37 PM »
Petey,

I'm so happy for you and Marvin.  Stay positive this is the ONE.  I know how you guys are feeling right now.  My PRA was 81% and still I got my transplant on 3/20/09.  Recovering at the moment.

This is such a blessing news.  My prayers to you both.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
Romona
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« Reply #13 on: April 01, 2009, 04:05:12 PM »
 :grouphug;
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lola
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« Reply #14 on: April 01, 2009, 04:10:48 PM »
OMG Petey I could just cry for U two, so praying this is Marvins turn :grouphug; :grouphug; :grouphug;
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« Reply #15 on: April 01, 2009, 04:43:26 PM »
Petey and Marvin,  We are all praying this is the one.   How wonderful for all of you.  Your family has had too many sad moments lately and now need this miracle to happen.   Please, dear God, let this kidney be Marvins   :2thumbsup;
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David13
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« Reply #16 on: April 01, 2009, 04:53:16 PM »
Fingers and toes crossed here!   :grouphug;
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kelliOR
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« Reply #17 on: April 01, 2009, 05:14:40 PM »
wow......
i am praying for your marvin..
love kelli
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Denied PKD for years (Boy, was I good at it!)
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del
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« Reply #18 on: April 01, 2009, 05:41:24 PM »
 :grouphug; Hope things work out!!!
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pelagia
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« Reply #19 on: April 01, 2009, 06:03:13 PM »
Quote from: willieandwinnie on April 01, 2009, 02:40:24 PM
:2thumbsup;  :2thumbsup; petey........... I am praying so hard for Marvin. Oh my God. I am so excited. Is there anyway you can let us know. I will be glued to my computer all night. That's if I don't get butted off for some reason or the other. Oh Marsha, I really hope that this is the one. All my thoughts and prayers are with you and Marvin.  :bandance;  :yahoo;

Holey Moley!  everything W&W said! We have been missing you and now this news.  :yahoo;  I hope it works out for Marvin and his wonderful wife.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Beth35
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« Reply #20 on: April 01, 2009, 06:09:51 PM »
Here's hoping it all works out for you guys!
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Found out I had kidney disease when I was 15.
Started dialysis when I was 20.
Got a kidney transplant when I was 25.
Kidney failed at 37 and I began my second journey on dialysis.
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« Reply #21 on: April 01, 2009, 06:12:56 PM »
 :cheer:
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« Reply #22 on: April 01, 2009, 06:21:36 PM »
 :cheer: Hope this goes through!  :cheer:
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glitter
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« Reply #23 on: April 01, 2009, 06:26:01 PM »
So glad to hear this- I hope its for you!!!  :flower; :flower; :cheer:
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I will miss him- FOREVER

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RCC
nephrectomy april13,2006
dialysis april 14,2006
paris
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« Reply #24 on: April 01, 2009, 08:07:22 PM »
I went to bed, but am anxious to know if Marvin got the kidney.  It is going to be a long night until we find out.  Just keep praying  :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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