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I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: General Discussion
Dialysis Headaches ???
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Topic: Dialysis Headaches ??? (Read 3706 times)
CMWest
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Dialysis Headaches ???
«
on:
March 31, 2009, 11:33:42 AM »
I am a relatively new to dialysis (2 months), I'm a diabetic in my mid forties, in good health with good A1c's (6.6) good blood pressures on and off the machine and still going to the restroom. My issue is terrible and constant headaches, feels like massive pressure behind my eyes, pounding and everlasting. I take about four aspirin a year, since dialysis I could take ten a day with little relief. My Doctor has not had many ideas, can anybody relate ??? Is there any med's for this extreme pain ????
I don't know how much more of this I can stand, so far the gains don't outweigh the pain.
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jbeany
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Re: Dialysis Headaches ???
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Reply #1 on:
March 31, 2009, 11:36:24 AM »
Have they tried adjusting your dry weight? If you are still urinating, they may be taking off too much fluid. That leads to headaches for a lot of dialysis patients.
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.
Savemeimdtba
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Re: Dialysis Headaches ???
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Reply #2 on:
March 31, 2009, 01:03:53 PM »
I had a lot of problems with headaches during dialysis as well... (haven't had one since starting PD, just realized that). I took metoprolol for my headaches and it seemed to help (but it also lowers blood pressure, so I had to stop). There are plenty of drugs out there... maybe go see a neurologist and try some of the migraine meds (what you have sounds like maybe cluster migraines?). I'm not a Dr. of course but I definitely recommend talking to someone and trying to get it under control.. I know how bad that suffering is plus with the added bonus of dialysis going on as well. Any relief would be welcome, I'm sure!
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-Kristi-
12/2008 - Began Hemodialysis
03/2009 - Began P.D.
"You gotta swim, swim for your life, swim for the music that saves you when you're not so sure you'll survive"
TeenHatesDialysis
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Re: Dialysis Headaches ???
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Reply #3 on:
March 31, 2009, 02:44:21 PM »
When my daughter started dialysis she got a very bad sinus infection and the only symptom was pressure behind her eyes. The Neph just said headaches come with dialysis. Her PCP gave her some strong antibiotics and then her headaches were reduced to dialysis headaches which seem to be controlled by extra strength tylenol. It is very frustrating at times when you are hurting so bad and the docs can only say, "I don't know, it is very confusing" There are some truly great docs out there, very passionate about their work, finding cures or at least easing discomfort. Don't stop looking until you find a couple of great docs. Don't settle.
Where are you located? Maybe someone on board knows some great docs in your area.
Sending you positive vibes to make those nasty headaches go away!!!!
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Susan, mom of Jaclyn, Deziree and Valerie
www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
Rerun
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Re: Dialysis Headaches ???
«
Reply #4 on:
March 31, 2009, 04:50:51 PM »
Go to a general practitioner and see what he/she has to say. A Nephrologist relates everything to kidney/dialysis problems.
Lay down and rest when you need to.
Watch taking too many Aspirin. Take Tylenol.
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G-Ma
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Re: Dialysis Headaches ???
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Reply #5 on:
March 31, 2009, 07:33:16 PM »
I had told my Neph that I had dialysis headaches and he said...my dear, they are Migraines....he said people don't know what a Migraine is until they have the Dialysis one, right...I've had both. Mine generally happens if too much fluid comes off and my system ""gives up"" quite a bit extra fluid sometimes .1 up to .6 kilo and that one does start the ache. Yes, watch the asperin..better off with Tylenol.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
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3/2008 move to NC to be close to children.
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Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Wallyz
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Re: Dialysis Headaches ???
«
Reply #6 on:
March 31, 2009, 10:33:41 PM »
It can be fluxuation in BP or dehydration. Raise your dry weight, and watch your salt and fluid intake.
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Lucinda
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Re: Dialysis Headaches ???
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Reply #7 on:
April 01, 2009, 03:43:00 AM »
I started dialysis about four weeks ago and I have only had headache-free dialysis for the last two session. Because I am still losing fluid on my own they stopped taking fluid off and the headaches started immediately. My guess is that they are taking off too much fluid....leads to dehydration. My headaches felt like I had a really bad hangover without the alcohol. Hangovers are basically dehydration. Dialysis headaches are the worst. Ask questions and change your dialysis prescription until you get to the bottom of it. xx
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