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Author Topic: The Daily Positives  (Read 214381 times)
willowtreewren
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My two beautifull granddaughters

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« Reply #1200 on: November 24, 2009, 07:03:49 PM »
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It appears almost certain that the company where my husband contracts is going to survive. My husband should be hired on as a full time employee within a week or two, we will get access to group health insurance, I can have a transplant without divorcing my husband and divesting myself of all of my assests. This is huge for us.

And it won't be just any job for Gwyn, this will be the most challenging job he has ever undertaken. The owner has offered a ridiculously low salary - the lowest salary my husband has ever earned in America and he has lived here almost 15 years - but if all goes well, he will make up for that in bonuses. I am so relieved. We have been strung along by this owner for over six months, but for the first time, I actually believe what this guy has been telling us

this is wonderful, WONDERFUL news! (Except for the low salary!) The boss isn't just stringing him along, is he?   :boxing;

I have been so worried about you and this job situation, and the insurance. Oh, my. I'm thrilled!  :2thumbsup;

 :cheer: :cheer: :cheer: :bandance; :bandance; :bandance;

Yea!   

This made my day!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
jennyc
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First day of school 08'
« Reply #1201 on: November 24, 2009, 07:17:58 PM »
I haven't posted here yet but having such a good day i thought i should. Had two really good days.

I've been on extra epo and man am i feeling great today! I've been awake since 7.30 (layed in bed till 8), got my son off to school, got hubby off to work. Cleaned my kitchen top to bottom dusted my lounge and dining area, done two loads washing, just boiling water to mop my floors, going to vacuum and then i just have to do our invoices and pick up my son and i'm done for the day, off to visit my parents tonight!!!
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2003 January - acute renal failure
        March/April - Started PD
2009 October - PD failing, First fistula put in.

Cadaveric Transplant 27/1/2010
cariad
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What's past is prologue
« Reply #1202 on: November 24, 2009, 07:22:41 PM »
Thank you, thank you, thank you, Aleta! I think this time the owner will do something because he really has no choice. He can go with a loan that is being offered to him, sell the company to a private equity firm (there is an open offer), or declare bankruptcy. Either of the first two choices will result in a job with benefits for Gwyn, and the backpay that we are still owed.

Thanks for your concern, and for being so happy for us. You are such a doll! (flowers, hugs, smiles)
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #1203 on: November 24, 2009, 07:26:16 PM »
Quote from: jennyc on November 24, 2009, 07:17:58 PM
I haven't posted here yet but having such a good day i thought i should. Had two really good days.

I've been on extra epo and man am i feeling great today! I've been awake since 7.30 (layed in bed till 8), got my son off to school, got hubby off to work. Cleaned my kitchen top to bottom dusted my lounge and dining area, done two loads washing, just boiling water to mop my floors, going to vacuum and then i just have to do our invoices and pick up my son and i'm done for the day, off to visit my parents tonight!!!

Hmmm - I shall have to have a word with my EPO injections and tell them they need to step up and make me feel like you do!! Wow.  Such energy.
Logged
Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #1204 on: November 24, 2009, 07:52:47 PM »
Jean facebooked me and said her latest results were improved!  yay.  Made my day.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1205 on: November 25, 2009, 01:26:35 AM »

My son Johnny has the next 5 days off school. Older brother James came home for a couple days. Tomorrow their sister Becca flies back from college in NY. I am so happy to have them all together. Only Jenna is missing. Hopefully she has a nice Thanksgiving with friends in Paris. I am grateful for my children.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willowtreewren
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My two beautifull granddaughters

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« Reply #1206 on: November 25, 2009, 05:53:21 AM »
Cariad,

Better and better!  :2thumbsup;

Backpay you say? Whoo hoo!  :cheer: :cheer:

I know that gives you something to be really thankful for!  :bandance; :bandance;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
galvo
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« Reply #1207 on: November 25, 2009, 02:22:00 PM »
To-day I shall sit in the big D chair and watch 4 hours of the first Test between Australia and the West Indies. Cricket, people, cricket!!
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Galvo
willowtreewren
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« Reply #1208 on: November 25, 2009, 03:11:12 PM »
Enjoy the cricket, Galvo. I'm going to enjoy a nice loooong weekend.  :clap;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
st789
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« Reply #1209 on: November 25, 2009, 03:17:41 PM »
Peace of mind, priceless.
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dwcrawford
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Getting the heck out of town.
« Reply #1210 on: November 25, 2009, 04:00:55 PM »
hmmm.  guess I'll have to get back to you on that.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #1211 on: November 26, 2009, 01:50:22 PM »
I got up early this morning and got dressed up cos I was going to a renal get together thing for home dialysis patients.  Rand my mohter to tell her I wouldn't be there for my usual morning coffee, and realised that the thing started at 9.30 not nine, so I didn't need to rush after all.  As Molly was looking over my shoulder at the invite she said 'mum, it's not till the 1st Dec!'.  Talk about dialysis brain!  I had the wrong day entirely.  So I've not got the morning free - yay.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
willowtreewren
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My two beautifull granddaughters

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« Reply #1212 on: November 26, 2009, 03:49:15 PM »
Yay for you! Enjoy the day!

I'm happy to have a nice pot of turkey soup going. Yum.
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
jennyc
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First day of school 08'
« Reply #1213 on: November 26, 2009, 03:51:41 PM »
Galvo you and my mum are a pigeon pair! She LOVES her cricket. I can only watch one dayers, Tests get a bit long, my grandfater used to sit there the whole four days and hardley moved till it was over screaming at Merv!

Anyway my daily positive..... rested yesterday, downloaded heaps of new music for the ipod and back at it again tody. I've cleared a months worth of neglected household chores in 3 days!!! still got some washing to do but almost there! Go the EPO increase! Plus my fistula arm has grown about 1-1.5cm in width at the wrist so it's getting bigger slowly!!!!!!

Quote from: galvo on November 25, 2009, 02:22:00 PM
To-day I shall sit in the big D chair and watch 4 hours of the first Test between Australia and the West Indies. Cricket, people, cricket!!
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2003 January - acute renal failure
        March/April - Started PD
2009 October - PD failing, First fistula put in.

Cadaveric Transplant 27/1/2010
tubes
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Miss you so much Susie. Will always <3 you!
« Reply #1214 on: November 26, 2009, 04:51:06 PM »
I'm POSITIVE that I'm stuffed!

What a good thing that is!  :2thumbsup;
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"To be happy is the choice I wish to make in spite of the circumstances that are strewn in my path."

1996 - started incenter hemo
a few months later, started PD
2005 - started incenter hemo
AGAIN
  - on transplant list as of August 7, 2009.
2011/June - 15 years on "D"
Transplant - Tuesday October 18th 2011
willowtreewren
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My two beautifull granddaughters

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« Reply #1215 on: November 26, 2009, 07:35:56 PM »
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I'm POSITIVE that I'm stuffed!

What a good thing that is!  :2thumbsup;

Ha ha ha. Yeah! I think alot of us are turkeys for allowing ourselves to get so stuffed!  :rofl;

I am must so happy to have a couple days to go camping. I won't have any internet, but it will still be lovely. All the NxStage equipment is packed and ready.

 :waving;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Jean
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« Reply #1216 on: November 26, 2009, 08:28:26 PM »
What a wonderful day this was. Really, I did not eat any more than I daily do, but I did have some of the best pumpkin pie ever. They melted butter, added brown sugar and some walnuts and topped the pie with it. OMG. We were able to sit outside, and it was delightful.
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One day at a time, thats all I can do.
Des
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« Reply #1217 on: November 27, 2009, 02:51:34 AM »
IT IS FRIDAY !!!! :yahoo;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #1218 on: November 27, 2009, 01:52:16 PM »
We had to get a new drier and the big box is in the living room.  Our youngest cat it leaping in and out of it.  Soooo cute.  There's also polystyrene pieces in it, and he's fascinated by them too.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
del
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del and willowtreewren meet
« Reply #1219 on: November 27, 2009, 05:32:23 PM »
I have my first little bit of Christmas in the house!!  I bought a red poinsetta today!!!  Next week I will gradually start putting a few things out at a time. 
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Don't take your organs to heaven.  Heaven knows we need them here.
tubes
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Miss you so much Susie. Will always <3 you!
« Reply #1220 on: November 27, 2009, 06:47:01 PM »
I played all afternoon with my 2 yr. old nephew. Then we both fell asleep watching cartoons in my moms room.

That little guy brings so much joy to my life. Makes everything I go throu all worth it. Just to see that snotty nose get buried into my pant leg.  :rofl;


~Robert
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"To be happy is the choice I wish to make in spite of the circumstances that are strewn in my path."

1996 - started incenter hemo
a few months later, started PD
2005 - started incenter hemo
AGAIN
  - on transplant list as of August 7, 2009.
2011/June - 15 years on "D"
Transplant - Tuesday October 18th 2011
billybags
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« Reply #1221 on: November 28, 2009, 07:50:33 AM »
Yesterday, Alan went in to hospital have his line removed from his neck now that he has gone back on to CAPD, so I took the grandchildren in to Nottingham to see Santa. Our granddaughter is 8 going on 16 and my grandson is 10. and OK 10 seems a little old to still want to see Santa and still be a believer (unless he is having us on) but isn't that sweet. We had a lovely day, saw Santa went to McDonald's (crap food but they love it,I think its for the toy) had a browse in a couple of toy shops. It made my day and made me think about Christmas instead of kidney crap.
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fc2821
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Just another hamster on the dialysis W.O.F.
« Reply #1222 on: November 28, 2009, 09:25:43 AM »
My one year grandson actually said something I understood yesterday, and it wasn't "mom" or "dad'. He was sitting my lap and looked up at me and said,my name so plainly. Suprised me.
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
looneytunes
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Wishin' I was Fishin'
« Reply #1223 on: November 29, 2009, 06:36:29 AM »
I had all 4 of my grankiddos for 3 days!  It was so much fun!  What a blessing grandchildren are.  I think it's our reward for going through the raising of our kids! 
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"The key to being patient is having something to do in the meantime" AU
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« Reply #1224 on: November 29, 2009, 06:43:07 AM »
Today is Franks 62 birthday & he woke up feeling fine with a smile on his face
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caregiver to husband Frank

bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
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