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Author Topic: 2nd Call - It's a GO!!!!  (Read 17770 times)
lola
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I can fly!!!
« Reply #25 on: March 20, 2009, 07:34:44 PM »
 :bandance; :bandance; :bandance; Good luck xoxoxo
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www.caringbridge.org/visit/ottomachado
TeenHatesDialysis
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« Reply #26 on: March 20, 2009, 08:31:54 PM »
 :yahoo; Great News!!! :yahoo;

Congratulations!!!  :beer1;  I am looking forward to reading your transplant story. Happy birthday new kidney!  :bandance;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
Romona
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« Reply #27 on: March 20, 2009, 08:35:34 PM »
I hope all goes well! :yahoo;
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paris
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« Reply #28 on: March 22, 2009, 06:18:04 PM »
Waiting for news.   We are all praying for you Rookiegirl!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kellyt
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« Reply #29 on: March 22, 2009, 06:26:12 PM »
I'm waiting with Paris...    :waiting;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Wattle
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« Reply #30 on: March 23, 2009, 12:26:57 AM »
me too.... waiting...    :waiting;

Rookiegirl   :waving;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Lucinda
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Life is great!
« Reply #31 on: March 23, 2009, 12:53:04 AM »
Fantastic news.  I wish you all the best. 
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willieandwinnie
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« Reply #32 on: March 23, 2009, 06:45:27 AM »
Rookiegirl, we are all waiting to hear some news from you. Keeping you in thoughts and prayers.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
paul.karen
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« Reply #33 on: March 23, 2009, 09:17:06 AM »
Late again i am.

Praying all is well with you Rookiegirl.
 :bestwishes;  :cuddle;
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #34 on: March 25, 2009, 09:05:24 AM »

Hoping to hear soon rookiegirl - I pray you're doing fine!
 :grouphug;  :grouphug;  :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rerun
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Going through life tied to a chair!
« Reply #35 on: March 25, 2009, 10:13:01 AM »
Hope you are peeing up a storm!  Best wishes!

                      :flower;
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paris
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« Reply #36 on: March 25, 2009, 10:31:58 AM »
We are sending you love and healing wishes and surrounding you with lots of hugs  :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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« Reply #37 on: March 25, 2009, 08:47:21 PM »
Just saw this post tonight. I hope everything went well rookiegirl and you are doing the pee  :bandance;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
rookiegirl
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« Reply #38 on: March 27, 2009, 07:43:34 PM »
I just love you all so much.  Thank you for all the wonderful thoughts and prayers.  I really need them so.

I'm not feeling too well these days as this is understandable since my kidney transplant last Friday.  I went through surgery with no complications. Woke up in ICU very much in pain, tired and out of mind.  I stayed in ICU overnight before they rolled me to a private room. The good news is that I'm producing lots and lots of urine.  But unfortunately, I came out of surgery with higher creatinine of 8.0 from 7.0 The doctors said it sometimes takes the kidney a little time to kick into gear and start to work.  They pumped me with all kinds of IV fluids with anti-rejection meds galore.  Taking so many meds makes me sick to my stomach so they have to give me nausea meds in order for me to take more meds. I really hope I can get use to it because I know I need them if I want to sustain my life. They placed the kidney to the right bottom side of my abdomen. I can't believe how big the incision was.  The area is so tender and just exposed. Nothing covering it but staples. I did have a drain tube on the side which they removed before they released me from the hospital on Wednesday. I was so happy to go home to get some sleep and really rest.  Hospital just don't let you sleep at all.  They always want to poke you every hour on the hour.  I know this is necessary.

Today,(Friday 3/27/09) I had to return to day hospital at 8am-6pm.  They did another IV anti-rejection treatment.  I did receive good news today that my creatinine went down from 8.0 to 5.8.  This is a good sign the kidney is working. Thank you Jesus!  I was so excited to hear the news I couldn't help but cry.  The pain was starting to get to me and wonder if this was all worth it.  I have another follow appointment next Monday to check my numbers again.  If my creatinine continues to decline, they may go ahead and schedule to remove my Tenchoff catheter (PD).

There are many appointments, meds, follow-ups, pain to come.  But, I hope and pray all goes well and that God continues to look over me and my family.

Again, thank you for all your wonderful wishes, prayers and thoughts.  Until my next update.

~Rookiegirl
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
Run8
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« Reply #39 on: March 27, 2009, 07:56:11 PM »
That is good news rookiegirl. I hope the pain gets better for you, and that kidney keeeps working.And I think all the pain is worth it,lsoon you will be enjoy a new life. God Bless you and we pray for a speedy recovery.
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glitter
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« Reply #40 on: March 27, 2009, 08:09:07 PM »
WoW! I am so happy for you!  I just saw this thread - I hope you start feeling a lot better, real soon!
 :flower; :cheer: :cheer: :flower; :bandance;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #41 on: March 27, 2009, 08:39:57 PM »
 :waving; Rookiegirl I am so happy to hear you are home! I kept wondering if you were ok. Thank God you're doing better - sounds like things will stableize over the next few weeks.
The meds make a lot of people queasy - they gave Jenna something and she still is taking it (Prilosec) but hasn't had any problems.
How often will you get the IVIG?
Best wishes and HUGS - take care and catch up on your sleep!
 :cuddle;  :cuddle;
« Last Edit: March 27, 2009, 08:43:19 PM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kellyt
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« Reply #42 on: March 27, 2009, 09:14:03 PM »
Yea Rookiegirl!  I'm so glad to hear you're home and that your creatinine is slowly, but surely, coming down.  Once the pain starts to go away (and it will), you will regret that statement about wondering if it was all worth it!  It is so worth it in my opinion.  I had no problems with the meds.  I do, however, take Pepcid, but don't know if that is what is keeping me from having problems. ???

Anyway, my kidney is on the left side and yes the incision is large.  But my surgeon did a fabulous job and it looks great.  Although, I can only see it in the mirror as my stomach is still big!  I'll reiterate how much I hate Prednisone!!!

So happy for you!!!   Keep us posted on your recovery!    Lots of love to you!!!   :clap;
« Last Edit: March 29, 2009, 07:01:58 AM by kellyt » Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Wattle
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« Reply #43 on: March 27, 2009, 09:52:04 PM »
 :cuddle;  It will be soooo worth it Rookiegirl. I hope you continue to feel better and stronger each day.   :grouphug;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
willieandwinnie
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« Reply #44 on: March 28, 2009, 04:58:08 AM »
rookiegirl  :cuddle; Take time to rest and heal. You will have lots of appointments and lab work. Don't forget your mask and wash your hands often. The pain will go away. Please take care and drink, drink, drink.  :grouphug;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
pelagia
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« Reply #45 on: March 28, 2009, 05:13:23 AM »
WOW!  Congratulations!  :bestwishes;  :cheer:   :bandance;   :yahoo;

I can't believe that I am just seeing this thread.  RG, I am so, so, so happy for you.

Take it easy and let everything heal and then you are going to feel terrific.

This is the greatest news.

 :flower;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
G-Ma
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« Reply #46 on: March 28, 2009, 02:20:13 PM »
I'm glad you are home and on your way to feeling great, good to hear the gold is flowing.  Take care, enjoy your rest and your family.     :cheer:  :cheer:   :bandance;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
monrein
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Might as well smile
« Reply #47 on: March 28, 2009, 03:13:50 PM »
I'm so glad you're finally home RG and the pain will get less and less as your incision heals.  Don't hesitate though to take the pain meds if you need to.  Also great to hear that your kidney is starting to pull down the creatinine level as that means it's starting to do it's job.

I've been wondering how you were getting along and I was thrilled to read your post.  Hang tough Rookiegirl.
  :yahoo; :flower;  :yahoo;
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
donnia
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me and my donor Joyce
« Reply #48 on: March 28, 2009, 03:59:03 PM »
I am so thrilled for you rookiegirl.  I know the first 2 weeks are hard.   Don't worry... its normal.  You are just getting adjusted to the meds.  It WILL get better!!!!  Keep positive girl!!! :flower;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Jill D.
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« Reply #49 on: March 28, 2009, 06:57:43 PM »
Just found this thread and am so happy for you! I send you best wishes for your recovery and congrats on your new kidney!!!  :cuddle;
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
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