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Author Topic: New here  (Read 3350 times)
alrac
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« on: March 09, 2009, 01:42:01 PM »
Hi, I'm Carla, I am training for home dialysis on the nxstage system.  I chose the user name of alrac because my training nurse said that I do everything backwards, so the says my name backwards.   I've been on dialysis since november of 07.  I started having renal problems when I was 4 but I was blessed and dodged the machine for 36 years.  I feel extremely blessed to have stumbled upon this site.  I felt like no one could understand what I was feeling.  When I was in center, no one wanted to talk about why we were there.  Not sure what else to tell you at this point, but I'm glad to 'meet'  you all.
Carla
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"Hit the yellow button, then stop, then the green kidney"
"wake up, you aren't even on the machine, it's your alarm."
First treatment 11-1-07
monrein
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Might as well smile
« Reply #1 on: March 09, 2009, 01:46:05 PM »
Hey Carla/alraC, what a great name you chose.   :rofl;  I'm glad you found this site.  It has been a real source of joy, support and friendship for me and I hope you'll discover that for yourself too.  :welcomesign;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
G-Ma
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« Reply #2 on: March 09, 2009, 02:07:18 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Zach
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"Still crazy after all these years."
« Reply #3 on: March 09, 2009, 02:46:36 PM »
Welcome to our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Romona
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« Reply #4 on: March 09, 2009, 05:00:02 PM »
 :welcomesign;
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Wallyz
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« Reply #5 on: March 09, 2009, 06:26:52 PM »
Welcome.  Good on ya for doing nxstage.
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Rerun
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Going through life tied to a chair!
« Reply #6 on: March 09, 2009, 06:40:09 PM »
I like your name.  My real name is just like yours except for the "C"..... mine is a "D".  Don't you hate to think!!!  Anyway, I'm glad you found the site and I know we will be friends!

                                                    :waving;     :welcomesign;
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Wenchie58
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Always carrying the big silly grin!
« Reply #7 on: March 09, 2009, 06:49:47 PM »
 :welcomesign;  Carla, glad to have you here!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
boxman55
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« Reply #8 on: March 09, 2009, 07:49:31 PM »
Welcome Carla, one thing is for sure we can get you going forwards again. So glad you are here and look forward to your posts.


Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Joe Paul
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« Reply #9 on: March 09, 2009, 09:53:37 PM »
Welcome Carla, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
TeenHatesDialysis
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WWW
« Reply #10 on: March 09, 2009, 09:58:22 PM »
 :welcomesign; Carla,

Great information and support here!  :grouphug;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
DenverLaura
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« Reply #11 on: March 09, 2009, 10:02:30 PM »
From a fellow newbie, welcome!
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Dan.Larrabee
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Dialysis Dan
« Reply #12 on: March 10, 2009, 01:40:32 AM »
!alraC rebmem bulc egatSxN a sa sisylaid etah I ot emocleW
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AKA Dialysis Dan
Feeling the best I can because of Home Hemo
Doing it the best way I can by making it Nocturnal
Sharing it to help everyone feel they best they can
www.youtube.com/dialysisdan
RichardMEL
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« Reply #13 on: March 10, 2009, 07:39:07 AM »
Welcome Carla!!! Nice to have you with us  :cuddle;

Interesting point you make that people in center don't want to talk about why we are there. I've noticed that too - in general. I suppose everyone deals in their own way. Some probably don't want to talk about it - that would mean admitting it is a reality (some are really into denial that I've seen). The other thing is I think staff, in general, do not encourage discussion of those things unless it's on a professional basis (ie: taking history or similar). I think an aspect to that is that if people compare notes they may get the wrong idea about their own treatment. What I mean is say I tell the guy next to me that I'm on dose X of medicine Y and that sorted out something I was feeling and he figures oh, but he's not on as much and has a problem.. rather than talk to his doc he might decide to "self medicate" which is BAD BAD BAD given everyone's medical situation is different and that could lead to bad karma. In a related vein I think they don't talk about transplantation much to those on the list because those who aren't might get upset - and I can understand that too. It's difficult in a way (so my nurse whispers to me that she prays I get a kidney soon.. I think they are sick of having me in the unit!!!  :rofl;).

Anyhoo welcome!! I am sure our community can help you with your own experiences because we understand what it is like in our own ways we can well relate.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Tinah1968
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ME
« Reply #14 on: March 10, 2009, 09:30:12 AM »
 :welcomesign;
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
paul.karen
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« Reply #15 on: March 10, 2009, 09:53:40 AM »
 :waving; Carla

Glad you found the best site for dialysis patients and caregivers there is.
Hope to see you on many of the threads both serious and fun.
See ya around
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Anthonysmom
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« Reply #16 on: March 10, 2009, 09:46:13 PM »
Hi Carla,
  I am new here too. I found it accidentally doing research for my school paper.( I am a nursing student). I am really here because my son is 9 and on dialysis for the second time around. I have noticed that most but not all don't stick around for many reasons. They really dont give us parents anywhere to sit with our child, and you feel uncomfortable there. I have sensed most parents don't want to stick around because it means they have to face the reality and they don't want to see there child suffer. Luckily at our unit, the kids never get bored because they have a teacher work with them for an hour and have a child life specialist come in and play games and have activities for them.  Personally I think it would be great if we could have a support group atleast once a month and I have tried to get one started but they(nurses) tell me Id be the only to show up. It would be pointless to have a support group by myself and I may get committed if I go in and talk to myself or go for one end of the room to another pretending to be other people! Ok, Its time for me to leave; I am starting to think silly thoughts and I am scaring myself now!LOL!
                                                                                            Anthonys mom, Tammy
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #17 on: March 11, 2009, 01:49:47 AM »
Welcome to our community, Carla!  You have found the greatest place on the entire World Wide Web for anyone with kidney failure to be!  There is so much information here, tons of support and barrels of fun!!  This is much more than a website; it is a caring and sharing family  :grouphug; and i know that you are going to find that out very quickly.  All you have to do is to keep reading and keep posting, so we can know what is going on with you.
Looking forward to hearing from you.



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
willieandwinnie
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« Reply #18 on: March 27, 2009, 11:51:10 AM »
 :welcomesign; Carla. So glad that you found us and we know you will find tons of information and support here. Please post often.  :cuddle;

By the way, where in tidewater VA are you from. I'm in southern Maryland and could probably take a boat and meet up with you quicker then I could by car.  :rofl;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
MandaMe1986
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« Reply #19 on: March 27, 2009, 01:05:57 PM »
 :waving; Hi there happy to have you
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
kristina
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« Reply #20 on: March 28, 2009, 06:30:58 AM »
Welcome Carla, glad to meet you as well. Kind regards from Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
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