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consumerx
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« on: March 03, 2009, 06:13:06 AM »
Hey all. I am new to this forum and would love to get to know people, my name is Chris (26) and i am on dilalysis. i have the one thats in the stomach and do al the stuff at home. I try not to know to much about this stuff as i feel like i am the only one around me who has to go through this, thats is until i found this interesting site. i also do the dialysis 4x a day, it just got upped to 5x as of yesterday actually. i was born with a rare disease called alports syndrome which im sure most people on this forum already know about, which also attributed to my hearing loss over the years.
since i have been on dialysis for a year i went on the transplant list  and etc. the whole process is annoying and long but i made the nj/nyc transplant list.
now that i am on dialysis 5x a day i have no time to do anything anymore.
so dialysis sucks.
but i do love the punk scene, i love photography and computers (of course) i love art and just getting out. and also since i am on dialysis i will be heading back to school and etc. s
so i hope to meet some interesting people with interesting stories. thats about it  :beer1;
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paul.karen
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« Reply #1 on: March 03, 2009, 06:25:53 AM »
Hey Consumer.

What part of Jersey you in?  We have a few jersey members here me one of them.
dialysis 5X a day must be hard.  Can you not do the cycler?  have they talked to you about it.
Glad you found the #1 Support site for dialysis patients.
Hope to see you on many of the threads.
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
consumerx
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« Reply #2 on: March 03, 2009, 06:31:56 AM »
north nj, near nyc really.
yes the cycle has been brought up many times, i just need to find room :)
yeah it sucks, i try to think positive being its winter so i rarely go out anyway nowadays.
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willieandwinnie
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« Reply #3 on: March 03, 2009, 06:47:27 AM »
:welcomesign; Consumer. We are a great group for information and support. Be sure to check some of the older threads as they contain loads of stuff. We hope to hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Rerun
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Going through life tied to a chair!
« Reply #4 on: March 03, 2009, 07:22:54 AM »
Consumer you sound like a great guy to get to know.  Welcome to IHD and I hope you find this site home.  There are lots of interesting people here and most of the time there is someone on line to talk with.  Here..... it is okay to say you "hate dialysis" without someone saying "now, be positive".  Sometimes you just need to vent and here is the place to go because you family doesn't want to hear it.

                                                                               :welcomesign;

For a laugh... take a look at these T-Shirts!  http://www.cafepress.com/ihatedialysis
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consumerx
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« Reply #5 on: March 03, 2009, 07:39:47 AM »
hey all thanks for the replies, i hope to get to know some folk here. message me anytime!
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peleroja
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I have 16 hats, all the same style!
« Reply #6 on: March 03, 2009, 07:44:11 AM »
Welcome aboard.  This is a great place for information and shoulders to cry on.  I also started PD with 4 exchanges a day, then 5, then 6, before they literally forced me to go on the cycler.  Yeah, it's a pain in the butt, and you just learn to work around your schedule.  Hang in there!
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Zach
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"Still crazy after all these years."
« Reply #7 on: March 03, 2009, 07:53:14 AM »
Good to have you join the community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Joe Paul
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« Reply #8 on: March 03, 2009, 09:00:15 AM »
Welcome Consumer, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
drinkboy
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« Reply #9 on: March 03, 2009, 09:26:10 AM »
Glad you found the site;  it's great to have you here and hope to see many posts from you in the future
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Romona
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« Reply #10 on: March 03, 2009, 01:17:42 PM »
 :welcomesign;
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boxman55
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« Reply #11 on: March 04, 2009, 05:18:59 AM »
Welcome to IHD. we are glad you found us. The more you post the more we will get to know you so stick around we are a fun group.

Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Tinah1968
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ME
« Reply #12 on: March 05, 2009, 10:11:44 AM »
 :welcomesign;
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
G-Ma
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« Reply #13 on: March 05, 2009, 10:14:19 AM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
monrein
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Might as well smile
« Reply #14 on: March 05, 2009, 10:32:54 AM »
 :welcomesign;  I hope you'll post often as that's the best way to get to know us and vice versa.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kellyt
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« Reply #15 on: March 05, 2009, 10:35:35 AM »
 :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
TeenHatesDialysis
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WWW
« Reply #16 on: March 05, 2009, 05:35:41 PM »
 :welcomesign; Chris,

Great info and great support here! :cuddle;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
paris
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« Reply #17 on: March 07, 2009, 01:30:17 PM »
 :welcomesign;  Chris.  You sound like a great guy and I think you will enjoy this site.  There is lots of information, but also some laughs and silliness.   My daughter is your age, and I am very sorry you have to deal with kidney failure.   You might enjoy our chat room, too.  Usually there are several of us on in the late evening (est).  You really get to know people in the chat room!   Glad you are here and I look forward to reading more of your posts.   :clap;





paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Dan.Larrabee
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Dialysis Dan
« Reply #18 on: March 10, 2009, 01:56:47 AM »
Hi Chris :waving;
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AKA Dialysis Dan
Feeling the best I can because of Home Hemo
Doing it the best way I can by making it Nocturnal
Sharing it to help everyone feel they best they can
www.youtube.com/dialysisdan
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