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Author Topic: Important & usefull advice people have said to you ????  (Read 11127 times)
kitkatz
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« Reply #25 on: October 31, 2006, 01:46:09 PM »
"Make it work" from Project Runway
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
angieskidney
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« Reply #26 on: November 01, 2006, 02:18:59 AM »
Quote from: jbeany on October 31, 2006, 01:05:46 PM
Don't cook bacon naked.  ;)

Another helpful kitchen hint from my hubby, who learned the hard way - Don't blow open the Kool-Aid envelope.
     :lol;
:clap;

Those are just too funny yet oh so true!! 
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
Zach
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"Still crazy after all these years."
« Reply #27 on: November 01, 2006, 05:08:28 AM »
Quote from: jbeany on October 31, 2006, 01:05:46 PM
Don't cook bacon naked.  ;)


 :rofl;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #28 on: January 17, 2008, 03:22:20 PM »

Don't sweat the small stuff.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
lola
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I can fly!!!
« Reply #29 on: January 17, 2008, 03:23:04 PM »
Karol told me about IHD :cuddle;
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Jannie
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« Reply #30 on: January 17, 2008, 03:40:32 PM »
My favorite quote. Don't worry about tomorrow. God is already there.
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Mimi
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For any who do not like me I use - prayer.
« Reply #31 on: January 17, 2008, 11:09:04 PM »
This too shall pass...
Be kind, everyone is fighting a battle...
Listen to the right voices, so you can make the right choices...
You must look at what's left, not at what's lost...
Stability in the storm comes not from seeking a new message, but from understanding an old one.
The most reliable anchor points are not recent discoveries, but are time-tested truths that have held their ground against the winds of change.Truths like:
My life is not futile.
My failures are not fatal.
You can never get to the right place on the wrong road.

Mimi                                                                                                                                                                 
                                                                         

.
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
Psim
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« Reply #32 on: January 18, 2008, 09:45:43 AM »
Quote from: Jannie on January 17, 2008, 03:40:32 PM
My favorite quote. Don't worry about tomorrow. God is already there.

And so are the Australians!
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KT0930
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« Reply #33 on: January 18, 2008, 12:17:53 PM »
"Life is not about waiting for the storm to pass, it's about learning to dance in the rain." Thanks to everyone on IHD for providing music to dance by!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Krisna
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« Reply #34 on: January 24, 2008, 07:28:20 PM »
Quote from: Rerun on September 08, 2006, 07:48:21 PM
Don't ever take exlax and a sleeping pill on the same night!   :clap;


 :rofl; :rofl; :rofl;
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Nov. 1979 - Diagnosed with glomerulonephritis of unknown origin by Dr. Robert
                  Hickman
Dec. 1979 - Diagnosed with Viral Pneumonia
Late Dec. 1979 - Emergency surgery to place a Scribner Shunt in left arm for dialysis
Jan. 1980 - Start hemodialysis until recovered from viral pneumonia
Feb. 27, 1980 - Receive 5 antigen living related transplant from father
Mar. 3, 1987 - PTH removed and part of one placed in left arm.  Fistula also placed in right arm.
Sept. 1988 - Start hemodialysis
Feb. 4, 1989 - Receive 6 antigen perfect match cadaveric transplant
Jan. 1994 - Return to hemodialysis
Oct. 18, 1996 - Receive 6 antigen perfect match cadaveric transplant
Nov. 22, 1996 - Emergency surgery to repair aneurysm to artery in kidney
Dec. 20, 1996 - Emergency surgery to repair aneurysm.  Kidney removed due to infection which has spread down right leg to abt mid thigh.
Apr. 1997 - Arterial bypass surgery to restore arterial blood flow to right leg
July 29, 1998 - Receive 6 antigen perfect match cadaveric transplant
Sept. 6, 2002 - Return to hemodialysis
Dec. 7, 2002 Sm. intestine ruptures while home alone. Still conscious upon arrival at hospital.
Dec. 8. 2002 - Surgery to repair ruptured bowel.  The prognosis is not good.  Surgeon tells family to prepare for the worse.  Spend a week in a coma and 3 months in hospital.  Takes abt a year and a half to completely recover.
Krisna
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« Reply #35 on: January 24, 2008, 07:31:50 PM »
Quote from: angieskidney on November 01, 2006, 02:18:59 AM
Quote from: jbeany on October 31, 2006, 01:05:46 PM
Don't cook bacon naked.  ;)

Another helpful kitchen hint from my hubby, who learned the hard way - Don't blow open the Kool-Aid envelope.
     :lol;
:clap;

Those are just too funny yet oh so true!! 

I found those out the hard way as well!  When I was a teenager!  I wasn't naked but I had a low cut, thin night gown on with no robe!  This was all in the same day too!   :rofl; :rofl;
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Nov. 1979 - Diagnosed with glomerulonephritis of unknown origin by Dr. Robert
                  Hickman
Dec. 1979 - Diagnosed with Viral Pneumonia
Late Dec. 1979 - Emergency surgery to place a Scribner Shunt in left arm for dialysis
Jan. 1980 - Start hemodialysis until recovered from viral pneumonia
Feb. 27, 1980 - Receive 5 antigen living related transplant from father
Mar. 3, 1987 - PTH removed and part of one placed in left arm.  Fistula also placed in right arm.
Sept. 1988 - Start hemodialysis
Feb. 4, 1989 - Receive 6 antigen perfect match cadaveric transplant
Jan. 1994 - Return to hemodialysis
Oct. 18, 1996 - Receive 6 antigen perfect match cadaveric transplant
Nov. 22, 1996 - Emergency surgery to repair aneurysm to artery in kidney
Dec. 20, 1996 - Emergency surgery to repair aneurysm.  Kidney removed due to infection which has spread down right leg to abt mid thigh.
Apr. 1997 - Arterial bypass surgery to restore arterial blood flow to right leg
July 29, 1998 - Receive 6 antigen perfect match cadaveric transplant
Sept. 6, 2002 - Return to hemodialysis
Dec. 7, 2002 Sm. intestine ruptures while home alone. Still conscious upon arrival at hospital.
Dec. 8. 2002 - Surgery to repair ruptured bowel.  The prognosis is not good.  Surgeon tells family to prepare for the worse.  Spend a week in a coma and 3 months in hospital.  Takes abt a year and a half to completely recover.
kitkatz
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« Reply #36 on: January 25, 2008, 09:27:29 PM »
Quote from: jbeany on October 31, 2006, 01:05:46 PM


Another helpful kitchen hint from my hubby, who learned the hard way - Don't blow open the Kool-Aid envelope.



I just reread this post.  The look on hubby's face when he blew into the envelope of Kool Aid.  Priceless!   :rofl; :rofl;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Krisna
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« Reply #37 on: January 25, 2008, 10:59:44 PM »
From a friends dad when I was abt 19.  "Don't leave a pot full of screamin' hot oil and french fries on the stove cooking and go outside to smoke a cigarette & talk on the phone."  This was after I asked what had happened to the cabinets in the kitchen.  They were all burnt!  He got the fire out before it took over the entire kitchen but the front of the cabinets were all charred.  Lucky for him they had fire extinguisher nearby!

"Remember to blow the pilot light on the furnace out and shut off the gas before re-tiling the kitchen floor!"  When I was 6, our neighbors hired people from their church who didn't know what they were doing and weren't licensed or bonded!  When the glue fumes ignited it sounded like an explosion.  The fire caught our house on fire too but the fire dept. got ours out with minimal damage.  The neighbors house burned to the ground. 
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Nov. 1979 - Diagnosed with glomerulonephritis of unknown origin by Dr. Robert
                  Hickman
Dec. 1979 - Diagnosed with Viral Pneumonia
Late Dec. 1979 - Emergency surgery to place a Scribner Shunt in left arm for dialysis
Jan. 1980 - Start hemodialysis until recovered from viral pneumonia
Feb. 27, 1980 - Receive 5 antigen living related transplant from father
Mar. 3, 1987 - PTH removed and part of one placed in left arm.  Fistula also placed in right arm.
Sept. 1988 - Start hemodialysis
Feb. 4, 1989 - Receive 6 antigen perfect match cadaveric transplant
Jan. 1994 - Return to hemodialysis
Oct. 18, 1996 - Receive 6 antigen perfect match cadaveric transplant
Nov. 22, 1996 - Emergency surgery to repair aneurysm to artery in kidney
Dec. 20, 1996 - Emergency surgery to repair aneurysm.  Kidney removed due to infection which has spread down right leg to abt mid thigh.
Apr. 1997 - Arterial bypass surgery to restore arterial blood flow to right leg
July 29, 1998 - Receive 6 antigen perfect match cadaveric transplant
Sept. 6, 2002 - Return to hemodialysis
Dec. 7, 2002 Sm. intestine ruptures while home alone. Still conscious upon arrival at hospital.
Dec. 8. 2002 - Surgery to repair ruptured bowel.  The prognosis is not good.  Surgeon tells family to prepare for the worse.  Spend a week in a coma and 3 months in hospital.  Takes abt a year and a half to completely recover.
CW
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Yeah .............That's me!
« Reply #38 on: February 01, 2008, 10:22:07 PM »
One saying that helped me a lot was one I got directly from a older patient when I first started dialysis

He said to me "If you can beat it here *pointing to his head* then the rest is easy"

It was not especially eloquent but I have found it to be very true
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*Common Sense is an uncommon thing


20 years navigating ESRD
Had a transplant but it rejected

To all of my kidney brothers and sisters who have left too soon -
Where you used to be, there is a hole in the world, which I find myself constantly walking around in the daytime, and falling in at night.  I miss you like hell.  ~Edna St Vincent Millay
Joe Paul
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« Reply #39 on: February 02, 2008, 01:44:36 AM »
Quote from: CW on February 01, 2008, 10:22:07 PM
One saying that helped me a lot was one I got directly from a older patient when I first started dialysis

He said to me "If you can beat it here *pointing to his head* then the rest is easy"

It was not especially eloquent but I have found it to be very true
AMEN!!  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Jannie
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« Reply #40 on: February 02, 2008, 02:34:53 PM »
I'm gonna live forever. Well,it's working so far!
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KT0930
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« Reply #41 on: February 02, 2008, 02:37:33 PM »
Quote from: CW on February 01, 2008, 10:22:07 PM
One saying that helped me a lot was one I got directly from a older patient when I first started dialysis

He said to me "If you can beat it here *pointing to his head* then the rest is easy"

It was not especially eloquent but I have found it to be very true

 :bow;
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #42 on: February 03, 2008, 12:09:10 PM »
Quote from: Jannie on February 02, 2008, 02:34:53 PM
I'm gonna live forever. Well,it's working so far!

 :rofl; as soon as I saw your post I started singing Fame, I'm gonna live forever I'm gonna learn how to fly High !  :rofl;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
paris
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« Reply #43 on: February 03, 2008, 12:25:54 PM »
Tamara---me too!!  We could go on the road touring bringing back Fame! :rofl;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Falkenbach
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« Reply #44 on: February 04, 2008, 01:42:33 AM »
Suicidal Tendencies (my fav band) have a song called "No F*** Problem" which contains the line "You aint alive, if you aint living" - sounds fair to me! But more than that, their song "The Feeling's Back" is one that I find really positive. I posted the lyrics in that thread for song lyrics, whatever it was called.... it must be in this Off Topic section somewhere.
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Katonsdad
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« Reply #45 on: February 04, 2008, 05:06:10 PM »
Quote from: paris on February 03, 2008, 12:25:54 PM
Tamara---me too!!  We could go on the road touring bringing back Fame! :rofl;

You need to get a few more patients and only perform when on Dialysis , You could be known as
Americans Idle !
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Diabetes 1976
Eye issues 1987
Kidney Failure 1997
CAPD 1997 , Stopped 1997 due to infections evey 28 days
Started In Center Hemo 1997
Received Kidney/Pancreas transplant 1999 at UCLA
Wife and I had son in 2001 , by donor for my part (Stopping the illness train)
Kidney failed 2011 , Back on Hemo . Looking to retransplant as the Kidney is still working



Soft kitty, warm kitty,
 little ball of fur,
happy kitty,sleepy kitty,
 purr purr purr ::
Sheldon and Penny on The Big Bng Theory
Falkenbach
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« Reply #46 on: February 05, 2008, 02:20:10 AM »
lol, fantastic pun.
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twirl
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« Reply #47 on: April 16, 2008, 01:51:49 PM »
sh*t happens

it will pass

You are a cool teacher.

All my daughter talks about is your class.

 :puke;  a tech " Go ahead and vomit, puke that poison up."
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twirl
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« Reply #48 on: April 16, 2008, 01:53:40 PM »
 :bump;    old topic bumped up     forgot to use it     don't know where to place it
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monrein
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Might as well smile
« Reply #49 on: April 16, 2008, 05:17:11 PM »
Be here now. 
Listen more than you talk.
Be grateful for small mercies.
There but for the grace of God go I.
Get comfortable with your own company and you'll never be alone.
The heart sometimes knows what the rational mind will never understand.
Earth is the only planet with chocolate.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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