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Author Topic: Went to clinic this week ... update :)  (Read 5844 times)
MandaMe1986
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« Reply #25 on: May 03, 2009, 08:27:04 AM »

Happy yur doing good.  Keep us updated  :flower;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
kellyt
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« Reply #26 on: May 03, 2009, 12:57:56 PM »

That's good news about your Creatinine, Donnia.  Keep up the good work and attitude  You'll be back to where you were in no time!  Poor little kidney, working so hard to keeping you off dialysis permanently.  BTW, sorry you're having to do dialysis during this crazy time.

We love you.   :-*
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #27 on: May 03, 2009, 02:27:59 PM »

I know Donnia updated earlier - but here's more info - looks like things are going in the right direction!!  :yahoo;

Hi everyone,
 
Things are actually looking better.  I did go to dialysis twice.  I was very disappointed to have to go, but very happy that I have that option.  Yesterday before dialysis my creatinine was 5.75 (that is higher than the day I had my transplant!).  This morning at about 4am they took labs and it was 3.5.  This is very encouraging.  The real test is tomorrow morning.  If my creatinine continues to go down (as I am praying) then that means my kidney has kicked in and is doing the work it is supposed to do.  I am praying that this major reduction in creatinine isn't just because I had dialysis.

Dr. DeMory, my kidney doctor, is pretty sure I got too much Prograf.  I was switched on Thursday.  Instead of taking 4mg Rapamune (slows recovery), I was placed on 4mg in the morning and 4mg in the evening.  My transplant team is who did this.  Well, Dr. DeMory thinks I got toxic levels of the Prograf.  He has placed me back on the Prednisone (I hate this drug!) and lowered the Prograf to 1mg in the morning and 1mg in the evening.

Donnia
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #28 on: May 03, 2009, 08:48:26 PM »

I'll keep you in my thoughts and prayers Donnia!   :cuddle; :cuddle; :cuddle;
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
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