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my dad didn't make it to his fistula
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Topic: my dad didn't make it to his fistula (Read 3030 times)
MandaMe1986
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my dad didn't make it to his fistula
«
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February 18, 2009, 11:20:33 AM »
Well my dad was set to get his fistula put in tomarrow. My dad went in yesterday for some blood work for his doc appt this morning. And well his kidneys are gone for good. So they are admiting him and while they are puting in his fistula tomarrow they are going to add a catheater in his chest for the mean time.
So they start dialysis tomarrow. I feel so bad, we all thought he had a little more time. We didn't think we had that much, and we all knew it was comming. But this just all came to fast. And no matter how much you think your prepared your not.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.
Matthew 5:3-9
okarol
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Photo is Jenna - after Disneyland - 1988
Re: my dad didn't make it to his fistula
«
Reply #1 on:
February 18, 2009, 11:26:03 AM »
The same thing happened to Jenna - they thought she had 2months to go and 3 days later she had a emergency tunneled catheter installed. I am sorry for you because I know it's scary, but he should be feeling better after he gets treatment. Sending you and your family BIG HUGS!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
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Tinah1968
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Re: my dad didn't make it to his fistula
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Reply #2 on:
February 18, 2009, 11:36:55 AM »
WOW! Sorry the hear that your dad was having trouble. But, I am sure that he will feel so much better once he gets starts on the treatment.
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
Joe Paul
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Re: my dad didn't make it to his fistula
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Reply #3 on:
February 18, 2009, 11:59:48 AM »
Sorry to hear his kidneys went so fast. I hope he does well, good luck to all of you
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
thegrammalady
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Re: my dad didn't make it to his fistula
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Reply #4 on:
February 18, 2009, 12:21:33 PM »
and more if you need them
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kellyt
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Re: my dad didn't make it to his fistula
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Reply #5 on:
February 18, 2009, 12:49:53 PM »
I'm sorry he's having to go through this at all. Good Luck. I hope the procedure, and dialysis, go well.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!
paul.karen
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Re: my dad didn't make it to his fistula
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Reply #6 on:
February 18, 2009, 01:24:29 PM »
Sorry to hear this Manda.
How is your Father taking it all?
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Curiosity killed the cat
Satisfaction brought it back
Operation for PD placement 7-14-09
Training for cycler 7-28-09
Started home dialysis using Baxter homechoice
8-7-09
RightSide
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Re: my dad didn't make it to his fistula
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Reply #7 on:
February 18, 2009, 03:15:22 PM »
I'm sorry to hear that the CKD overtook your dad's treatment. But yes, it can deteriorate that fast.
I was diagnosed with Stage 4 CKD in August. By the time they finished running all their medical tests, one month later, it had already deteriorated to Stage 5 (ESRD), and I too had to have the catheter put in.
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monrein
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Might as well smile
Re: my dad didn't make it to his fistula
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Reply #8 on:
February 18, 2009, 03:18:03 PM »
Sorry it went so fast but I hope that he can now get to the point where he feels better.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
pelagia
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Re: my dad didn't make it to his fistula
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Reply #9 on:
February 18, 2009, 04:10:46 PM »
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
jbeany
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Re: my dad didn't make it to his fistula
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Reply #10 on:
February 18, 2009, 09:50:27 PM »
Hang in there - the first month is kind of bumpy ride, but it does get better!
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Rerun
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Re: my dad didn't make it to his fistula
«
Reply #11 on:
February 18, 2009, 09:54:09 PM »
Sheeeesh.... from the title I thought he was dead!
I'm sure things will go well. They put in my fistula and said I had time and then a week later put in the cathater! That is worse. I would have rather had it done all at once.
Glad he is alive!!!
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kidney4traci
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Re: my dad didn't make it to his fistula
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Reply #12 on:
February 18, 2009, 10:54:24 PM »
I thought the same! DIalysis in any case will help him hopefully start to feel better. I had to do it that way too, and I pray he does well with both accesses.
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Married - three children.
Alports female, diagnosed ESRD 10/04
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2/3/09 - Transplant from an angel of a friend!!!
paddbear0000
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Re: my dad didn't make it to his fistula
«
Reply #13 on:
February 19, 2009, 10:07:17 AM »
I'm very sorry to hear this. The exact same thing happened to me just last month. I was scheduled for a fistula, but a few days before surgery, my labs came back and my function had dropped from 17% to 9%. So my surgeon placed my chest cath during the fistula (turned out to be a graft tho) surgery, and 4 days later, I started dialysis. It happens more often than yo think, and it's not the end of the world. It's the beginning of a new one. One where he feels better!
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
MandaMe1986
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Re: my dad didn't make it to his fistula
«
Reply #14 on:
February 19, 2009, 10:26:52 AM »
Thanks everyone, they took him in first thing this morning and he is alright. He is taking it really hard. I have seen my father cry only a few times in my life, I could probly count on one hand, and yesterday he cired. So that was hard. That more then the rest was hard. But yeah thanks everyone.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.
Matthew 5:3-9
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten
Re: my dad didn't make it to his fistula
«
Reply #15 on:
February 19, 2009, 11:01:42 AM »
Like some of the others, I was fearing the worse when I read the title!! i suppose that happened to lots of us. I was to have a graft, but then my kidney function fell so low, I had to have a catheter put in and start right away. Soon he will get accustomed to it, and start feeling much better (though not right away!)
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
Sluff
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Re: my dad didn't make it to his fistula
«
Reply #16 on:
February 19, 2009, 07:45:12 PM »
It will be an adjustment but like the others have said, he will soon be feeling better.
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