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Author Topic: I feel much more in control  (Read 1896 times)
cat
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« on: February 18, 2009, 09:01:15 AM »

Thanks to all who responded to "A New Worry"!  :thx;  Before yesterday's dialysis, I had a long talk with the nurse practitioner - who had not been informed of the problem on Saturday!  It has now been fully documented.  She agreed with me that because I do not retain fluids, very little fluid needs to be removed.  We agreed on .3 liter (300cc) as the amount I should have taken off for now.  She put it in my records and added it to the computer screen with my information.   One of the nurses and a tech then showed me how to read the machine - which is now turned so I can see it.  I feel much better about things now.  I even went ahead and had them start using my fistula!  Although I know it will be a while, I cannot wait until I can get rid of this darn catheter.  Thanks again for the encouragement and suggestions.  :grouphug;

cat
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cat
paris
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« Reply #1 on: February 18, 2009, 09:09:28 AM »

It is good to hear that yesterday was better.  We go into this whole situation thinking the doctors and nurses know everything.  And they are brilliant, but we, as the patient, need to have control over what happens to us.  I am glad your team listened to you and also glad that IHD members helped you.  That is why we are all here!   
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
peleroja
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I have 16 hats, all the same style!

« Reply #2 on: February 18, 2009, 09:13:00 AM »

I am so doing the happy dance for you!!!!!  I love to hear when the patient triumphs.  After all, the nurses and techs are here to serve us.  Major applause for you.   :clap;  :clap;  :clap;  :clap;  :clap;
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willieandwinnie
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« Reply #3 on: February 18, 2009, 09:25:34 AM »

  :yahoo; cat. Good for you and don't let your guard down for a minute.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile

« Reply #4 on: February 18, 2009, 09:29:59 AM »

So glad to hear that you're now in the driver's seat.   :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
thegrammalady
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« Reply #5 on: February 18, 2009, 09:50:17 AM »

glad you stood up for yourself. always remember you're the one in the driver's seat.
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s
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
jessup
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Gemma - the tucker monster

« Reply #6 on: February 21, 2009, 03:29:19 PM »

  :yahoo; cat. Good for you and don't let your guard down for a minute.  :cuddle;
Spot on advice willieand winnie

 :grouphug;
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pelagia
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« Reply #7 on: February 21, 2009, 04:21:26 PM »

That's great news Cat.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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