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vandie
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« on: August 30, 2006, 08:31:46 AM »
Hi all,
I am 39 years old, diagnosed last year with CKD.  Not on dialysis yet. If I don't transplant soon, I will need to make a decision as to dialysis.  Kidney function is at 17%.  I have four donors who are willing to give me a bean, but my antibodies are too high.  I will reject any kidney. Have been doing an infusion process called IVIg to bring them down.  No luck with my donors as yet. 
 
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Life is the journey, not the destination.
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I received a kidney transplant on August 4, 2007.
SpeedFleX
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« Reply #1 on: August 30, 2006, 08:50:07 AM »
Hey Vandie and Welcome,

Good Luck with your Anti Body's and a Donor Kidney
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goofynina
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He is the love of my life......
« Reply #2 on: August 30, 2006, 10:29:53 AM »
Hey Vandie, Welcome.  Make sure you know all your options before you begin dialysis such as  CCPD and CAPD,  i was on hemo for 3 years and now i am doing CCPD and i find it to be alot better, diet and fluid are not AS restricted, but there still are limits ;)   Hope to hear from you again soon...
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....and i think to myself, what a wonderful world....

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Sluff
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« Reply #3 on: August 30, 2006, 11:59:22 AM »
Welcome Vandie.
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Mom3
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« Reply #4 on: August 30, 2006, 01:28:01 PM »
Good luck and that is good advice about comparing and becoming knowledgeable about all your options! Hope you don't have to go on dialysis but the more someone knows the better. I am also pre-dialysis. I have PKD.

Mom 3 (Mother of PKD pt.)
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Sickness is a hindrance to the body, but not to the will, unless the will consent.
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Joe Paul
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« Reply #5 on: August 30, 2006, 01:37:37 PM »
Welcome Vandie, hope it all works out for you. Good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Sara
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« Reply #6 on: August 30, 2006, 06:36:09 PM »
Welcome to the site, Vandie.  I hope you stay off dialysis for a long while.
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Sara, wife to Joe (he's the one on dialysis)

Hemodialysis in-center since Jan '06
Transplant list since Sept '06
Joe died July 18, 2007
MattyBoy100
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What's dialysis?
« Reply #7 on: August 31, 2006, 03:30:55 AM »
Hi Vandi,

Hope you get it all sorted out.  I wish I had four offers from people willing to be donors!!!
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vandie
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« Reply #8 on: August 31, 2006, 07:31:29 AM »
I am a very fortunate girl, I know that.  Thank you very much!!
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Life is the journey, not the destination.
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I received a kidney transplant on August 4, 2007.
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #9 on: August 31, 2006, 07:55:46 AM »
Greetings, Vandie, and welcome to our community.  This is just the place for you.  Here you can see what others have gone through, and get answers to some of your questions.  I do wish that everything works out well for you and the transplant.   We have a great section here concerning transplants, so have a look.  Welcome again, and I look forward to hearing lots from you.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
John S.
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« Reply #10 on: August 31, 2006, 09:58:51 PM »
Hi vandie and welcome!!! One thing to remember: question, question, question everything they want to do to you!!! Stay informed and research alot.
john s. >:D
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Rerun
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« Reply #11 on: September 02, 2006, 12:48:12 AM »
Vandie, good luck with your IVIg treatments.  Welcome to our site.  There is a section on transplants.  Remember, a transplant is not a cure.  It is just another form of treatment for CKD.
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tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #12 on: September 02, 2006, 04:06:07 AM »
Quote from: vandie on August 30, 2006, 08:31:46 AM
Hi all,
I am 39 years old, diagnosed last year with CKD. Not on dialysis yet. If I don't transplant soon, I will need to make a decision as to dialysis. Kidney function is at 17%. I have four donors who are willing to give me a bean, but my antibodies are too high. I will reject any kidney. Have been doing an infusion process called IVIg to bring them down. No luck with my donors as yet.
 

Question, what is IVIg ?
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
vandie
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« Reply #13 on: September 02, 2006, 08:14:21 AM »
IVIg is Intra Venous Immune Globulin, it's a pooling of thousands of people's plasma.  It is cleaned and then then tranfused into me.  The end goal is to tame my immune system so that I can accept a donor kidney.  It seems to have worked.  I found out the other day that two of my donors are a match. ;D. 
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Life is the journey, not the destination.
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I received a kidney transplant on August 4, 2007.
Zach
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« Reply #14 on: September 02, 2006, 09:03:27 AM »
Welcome!
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
BigSky
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« Reply #15 on: September 02, 2006, 06:36:52 PM »
Welcome
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