Don't ya think you need to know

[paddbear0000]

Man, boxman, this just sucks! Reading about has made me so angry!! Has anyone given you an explanation as to why you were never told before now?

[pelagia]

I'm coming in late on this, so first off 

They handled this in a completely unacceptable way.  Maybe you should write a letter to put this incident on record.  I find that writing letters helps to ensure accountability.  You could state the facts as you know them and express your surprise and dismay that the information was not relayed to you in a timely manner.  If they are not letting you know what has happened, how can you possibly manage your own health?  Since this is your transplant clinic, I'm not sure that blowing up at them is a good idea.  You still need to work with them towards a transplant. 

 

[boxman55]

I have the cardiac cath on Tues the 10th of this month. I had to shake a lot of trees to get this scheduled because the transplant team would not write the order until they got the results of the abdominal CT. Which I thought was a bunch of crap but, they said that if the CT comes back negative then I am no longer their patient and I am on my own. All along they are agreeing that because I had a heart attack that I should have the cath but not by them and no order unless I pass. Well I passed on them and went ahead on my own...Boxman

[MandaMe1986]

You would no longer be their patient? That is a load of crap!!!!! 

[pelagia]

 

[boxman55]

You would no longer be their patient? That is a load of crap!!!!! 

Yes that is true if the CT of the abdoman turns out negative then I would not be eligible for a transplant
so I would be let go...Boxman

[Rerun]

See..... we are already in a "Socialized" Medicine Country and we don't even know it.  Get in line....... AND pay huge prices!

When you get the heart cath they probably won't tell you this, but you will need a ride home and 24 hour care by a friend or family member.  You cannot even bend over to pick up something off the floor because if the scab pops open someone needs to be there to put immediate pressure on the opening.

Also ask if you need to alter any BP medicines or blood thinners before the procedure. 

                                   

[breezysummerday]

Boxman, I'm a little confused.  What is the CT of the abdomen for?
Is it to get a visual of the area they would be operating in,
to make sure they could transplant a kidney in the first place?
If that is so, then a 'negative' scan would show something wrong?


Sooo, if it's 'positive', your next step would be a cardiac catch,
for your peace of mind and one of the tests you have to pass
in order to get a transplant?

(hope i make sense)

[pelagia]

I had the same thoughts.  I was thinking that negative means "bad result", but I am not sure about the purpose of the abdominal cath. 

[Chris]

See..... we are already in a "Socialized" Medicine Country and we don't even know it.  Get in line....... AND pay huge prices!

When you get the heart cath they probably won't tell you this, but you will need a ride home and 24 hour care by a friend or family member.  You cannot even bend over to pick up something off the floor because if the scab pops open someone needs to be there to put immediate pressure on the opening.

Also ask if you need to alter any BP medicines or blood thinners before the procedure. 

                                   

Yep, Rerun is right about that one. Luckily they called the person who was to pick me up not to come since I was being admitted.

I forgot boxman, are you on insulin?
They will have special instructions for the test then, at least they did for me when they did mine. Unfortunately I got to stay overnight. After the procedure, I was so dehydrated, they finally gave me something to drink, but laying flat and drinking, it went down the wrong way. I started bleeding even with the nurse holding pressure on me. Also one of the levels they watch out for was still elevated. If the receptionist/ nurse has no idea about diabetes and what to do about meds, have her get someone who does.

Good Luck

[MandaMe1986]

Well Boxman I really hope your test turn out alright and clear you for a transplant again.  I am sorry all this is happing to you.

[boxman55]

The CT scan of the abdoman is to view the blood flow in the viens in that area to make sure they are significant enough to handle  attaching a kidney. With the Heart cath they want to see that your heart will be strong enough that you don't possibly have a heart attack while recieving your transplant. They dothe CT scan and stress test once a year to stay listed and a cardiac cath only if the stress test shows something might be wrong. Hope that answered your question Breezy...Boxman

I passed both tests and have been reactivated to the list as of this afternoon!

[st789]

Congratulation.

Preservation pays off.

[Chris]

That's great boxman, to bad the center put you thru the ringer of headaches though.

[Joe Paul]

Sorry I missed this thread, but I am glad all turned out good 

[kitkatz]

See! Boxman knows how to apply the stick to a few medical heads when needed!   

Good going!

[paddbear0000]

Yay boxman!!!   

[MandaMe1986]

Yey! I am happy for you, I am so gald you are back on the transplant list.   

[willieandwinnie]

  boxman. So glad you were put back on the list. Keep us posted. 

[Sunny]

Boxman,
I am so glad to hear you have been listed again for a transplant.I hope it happens soon.

[pelagia]

Y 
E
S
 

[boxman55]

Thanks all...Boxman

[okarol]

  Yay! Good luck Box!

[TynyWonder]

That is sooooo GREAT Boxman!!!!   I am doing the happy dance for ya!   

[jbeany]

YaY!  Nice of them not to shut of the light at the end of the tunnel!