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Author Topic: Introduction  (Read 4005 times)
JeffKinzer
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« on: January 29, 2009, 01:26:34 PM »
Just a short shout out to everyone.  My name is Jeff, I am 43, and a PKD patient.  Have been on dialysis since 07/22/2005, been on the transplant list at 2 centers for 3 years 1 month now, and boy am I ready for a transplant.

Been married nearly 25 years, have 3 children (16,13,10).


Was using a fistula till last August, and it clotted off (kept having alergic reactions during my fistulagrams).  Had a cathetar placed in my chest.  Two weeks ago, I had another fistula put in my arm, hopefully I'll get a transplant before I have to use it!
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Zach
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"Still crazy after all these years."
« Reply #1 on: January 29, 2009, 01:27:23 PM »
It's good to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
G-Ma
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« Reply #2 on: January 29, 2009, 01:28:29 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
MandaMe1986
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« Reply #3 on: January 29, 2009, 01:33:13 PM »
 :waving; hi
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
paul.karen
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« Reply #4 on: January 29, 2009, 01:36:39 PM »
Hey Jeff,

Glad you found IHD.
Hope to see you on many of the threads.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
monrein
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Might as well smile
« Reply #5 on: January 29, 2009, 01:37:58 PM »
Welcome Jeff.  Glad you found us.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #6 on: January 29, 2009, 02:01:49 PM »
 :welcomesign; Jeff. Glad you found us and we hope to hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
kellyt
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« Reply #7 on: January 29, 2009, 02:26:29 PM »
 :waving;   Welcome Jeff!  You've come to the right place for fun, friendship and support!  I'm hoping you get "the call" before you have to use your new fistla, too!  Come on phone....RING!   :yahoo;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
twirl
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« Reply #8 on: January 29, 2009, 02:26:50 PM »
I have PKD also
hello
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boxman55
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« Reply #9 on: January 29, 2009, 02:41:53 PM »
Hi Jeff, glad you found us. Your kids must wear you out. Look forward to your posts


Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Normie
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Ellie
« Reply #10 on: January 29, 2009, 02:50:04 PM »
Hi Jeff and  :welcomesign;

So glad you found this site.  You will find amazing people here and their wealth of knowledge.  Sorry you had to get

another fistula, but hope you will get that transplant before you have to use it.

Best wishes,

Normie            :grouphug;
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Normie

Kidney damage 4/22/07

Predialysis
JeffKinzer
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« Reply #11 on: January 29, 2009, 04:02:46 PM »
Thanks for the warm welcome!

Its nice to find a community of people who are famiiliar and understand everything I am going through in life.

I still work fulltime, I have an employer who is very flexible about allowing me to work my hours flexible.  Plus my clinic has wireless internet, so I can just link into my work desktop and work while on dialysis.

My wife has been my strength through all this.   She's wanted to give me one of her kidneys since the beginning but for the first 2 years, I resisted the idea, as our kids were too young, and I didnt feel comfortable us both being in the operating room.  With everything Ive went through this last year, I've reconsider, had her check, and miracously she is a match for me, however, she is on 1 blood pressure medicine, that also has a diuretic (sp) in it, and my center won't allow it.  So she is working on getting in better shape, so she can drop the meds (as she hasn't always been on BP medicine)

My biggest gripe about dialysis has been the particular machine we use, if they don't do an extra cleaning cycle, my face heats up and flushes and I feel horrible for the first 30 minutes of dialysis.  But otherwise its pretty normal, though with a cathetar my ktv isnt as good as it was, so they've had to increase my time.

Looking forward to becoming an active member in the community.
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #12 on: January 29, 2009, 05:40:51 PM »
Welcome to our community, Jeff!  Great to have you with us.  This is just the place for you to be.  It happens that we started dialysis within two months of each other.  I found this website just before I went on dialysis and have been very grateful for the information and support that it has been to me.  this is more than just a website - it is a family  :grouphug; with all that means.  Please take advantage of all this site has to offer.  I pray that things work out well for your transplant.  You will be able to join the growing list of our members who have had transplants.
Looking forward to hearing more from you.





Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Romona
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« Reply #13 on: January 29, 2009, 06:17:15 PM »
 :welcomesign;
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thegrammalady
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« Reply #14 on: January 29, 2009, 06:20:14 PM »
 :welcomesign;
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Joe Paul
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« Reply #15 on: January 29, 2009, 07:32:43 PM »
Welcome Jeff, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #16 on: January 29, 2009, 08:27:27 PM »
 :welcomesign;
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
paul.karen
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« Reply #17 on: January 30, 2009, 04:51:52 AM »
Hey Jeff,

I dont want to be a buzzkill :(
But i want to pass this along in case you dont know it.  But you very well may.
PKD which i also have is generally a heredity disease that is/can be passed on to your children.
For this reason i have two brothers who both have young children.  They want to try to see if they are a match for me but i wont let them.  For the fact that there children may need that kidney in the future.
Please dont take this wrong it would be wonderful for your wife to give you a kidney.
I just want you to know the heredity part in case you were unaware.

P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
JeffKinzer
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« Reply #18 on: January 30, 2009, 08:12:41 AM »
Thanks for the info, but I was aware of it already.   Has struck my family 4 generations in a row now.  All only children.  Whats the odds? 

But still thanks for bringiing it up.
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Wattle
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« Reply #19 on: January 30, 2009, 03:04:58 PM »
 :waving;  Hi Jeff

Another PKDer here. I am glad you found us.
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Dan.Larrabee
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Dialysis Dan
« Reply #20 on: February 01, 2009, 03:23:50 AM »
 :waving;
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AKA Dialysis Dan
Feeling the best I can because of Home Hemo
Doing it the best way I can by making it Nocturnal
Sharing it to help everyone feel they best they can
www.youtube.com/dialysisdan
paris
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« Reply #21 on: February 01, 2009, 04:55:10 PM »
 :welcomesign;   We are glad you joined this great group.  We hope you will find great support and information.  This is a wonderful group of people and we really do care for each other. I am looking forward to hearing more from you and I hope you feel at home here.   :grouphug;





paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
jessup
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Gemma - the tucker monster
« Reply #22 on: February 03, 2009, 01:44:00 AM »
G'day and  :welcomesign; mate
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pelagia
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« Reply #23 on: February 03, 2009, 03:46:27 AM »
 :welcomesign;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Tinah1968
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ME
« Reply #24 on: February 03, 2009, 11:35:40 AM »
Hello and Welcome
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
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