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Author Topic: John in hospital  (Read 36529 times)
willieandwinnie
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« Reply #50 on: January 31, 2009, 10:19:49 AM »

Yvonne :grouphug; Why did they move him out of HDU? No electric bed, I thought ever hospital bed was electric (learn something new everyday). I sure hope that you can get to speak to someone about your concerns. I really don't understand the medical profession sometimes. They act like we should know all this and then act like we aren't smart enough to understand.  :banghead; I know where you are coming from on the burying head in sand, I feel that way a lot.  :cuddle;
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Normie
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Ellie

« Reply #51 on: January 31, 2009, 12:56:52 PM »

Yvonne,

Hope things are going better now for you and John.  My thoughts and prayers are with you both.

Normie      :grouphug;
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Normie

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2_DallasCowboys
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« Reply #52 on: January 31, 2009, 02:13:26 PM »

Yvonne,

Thinking and praying for both of
you every day.

Sending you a big  :grouphug;

Anne
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drinkboy
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« Reply #53 on: January 31, 2009, 06:48:17 PM »

I hope things get better soon;  I know it's tough, but hang in there.  Just being there for John has to be a great comfort for him. Wishing you the best   :)
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Yvonne
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Yvonne

« Reply #54 on: January 31, 2009, 10:58:31 PM »

Saturday morning I phoned the hospital to see how John was and they said no change. Went to visit in the afternoon and John didn't want to know just slept most of the time and said he feels so bad. They have at last put him in an electric bed. They keep clamping of the nephrotomy hopping it might make the urostomy work.
John is very swollen up, his belly, hands, fingers can anyone tell me the reason for this?, as now he is out of HDU there are never any doctors around to ask. Yvonne
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
monrein
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Might as well smile

« Reply #55 on: February 01, 2009, 04:09:49 AM »

Swelling like that is usually fluid build-up Yvonne and can cause breathing problems in addition to being very uncomfortable. 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
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Yvonne
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Yvonne

« Reply #56 on: February 01, 2009, 11:50:58 PM »

Sunday 1st Feb John has been moved to a side ward (isolation) as he has the runs. I can imagine how he feels a man of his age having to wear pads, and having to keep being cleaned up.  He can't do anything for himself not even fill up his beaker of water, can't even be bothered to ring the bell he has, he justs waits for someone to come in the room and then ask, I feel so helpless for him I wish I could just stay in the room with him all the time. John has 2 lines going into his neck, I noticed they were leaking onto his pillow.  When the nurse came in I pointed it out to her she said she would redress it. half an hour later she came back to do so, leaving John without his oxygen. I am so frustrated but what can I do. He is in their hands and I must try to trust them.

 :ukflag; Monday 2nd Feb.  Woke up to in inch of snow, Britain comes to a stand still when we have snow, just hope I can get to the hospital to see John today. Yvonne
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
G-Ma
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« Reply #57 on: February 01, 2009, 11:54:26 PM »

 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
RichardMEL
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« Reply #58 on: February 02, 2009, 03:38:12 AM »

Gee this is so tough on you both I really hope things improve soon.

Snow in the UK? Send you some of our 45C heat.. that should melt it away!!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
willieandwinnie
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« Reply #59 on: February 02, 2009, 05:32:21 AM »

 :grouphug; Yvonne. I'm still praying real hard for John and you.  :cuddle;
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drinkboy
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« Reply #60 on: February 02, 2009, 05:48:28 AM »

John is still in all our thoughts;  I hope your next update brings better news.  You're doing all you can do by being there for him as much as possible and like you say, you have to trust them to take care of him and I'm sure they are doing everything they can.

Remember to take care of yourself...try to get as much rest as you can when you're not there. 
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rose1999
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« Reply #61 on: February 02, 2009, 12:19:27 PM »

Quote
:ukflag; Monday 2nd Feb.  Woke up to in inch of snow, Britain comes to a stand still when we have snow, just hope I can get to the hospital to see John today. Yvonne
Hope you got to see him Yvonne, we didn't get to see Dad today as it was just impossible, we have nearly a foot of snow and Mum was completely snowed in.  I hope John will improve, I know what you mean about him being left and you feeling helpless, we have the same issues - there's nothing you can do either, you can't be there all day, it's an awful feeling leaving them there.  God bless both of you. Rose







EDITED:Fixed quote tag error-kitkatz,Moderator
« Last Edit: February 02, 2009, 03:57:47 PM by kitkatz » Logged
thegrammalady
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« Reply #62 on: February 02, 2009, 03:18:59 PM »

:grouphug; :grouphug; :grouphug; if it were me i would be camped at the nurses station demanding answers but then i'm a pushy ...............

hope today finds things better  :grouphug;  :grouphug;  :grouphug;
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Yvonne
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Yvonne

« Reply #63 on: February 02, 2009, 11:11:37 PM »

:ukflag;
Monday 2nd Feb. As I said before I woke up to snow, but by the time it was ready for me to catch the bus to go in to see John a lot had melted. That's just my part of the country some places have come to a stand still with the snow. England is just not used to this cold weather.

However there is no change in John, they decided to take out the nephrostomy as the urine was flowing into the Stoma bag, but they are now a bit worried as the urine has turned to blood, doctors said drink as much liquid as you can, and we will take another look at it tomorrow. John's breathing is very deep scares me just to sit and watch him, I try and make conversation, most unusual for John not to be speaking, he just whispers if he wants anything. I suppose we must take one day at a time.  I can't understand when John had his major operation in June 2007,  bladder, prostrate and one kidney all with cancer removed, he was in and out of hospital in 2 weeks the doctors though he was marvelous for a man of 71.  I can't see him doing that this time he just looks so ill.

Thanks once again for your kind words of encouragement    Yvonne
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
G-Ma
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« Reply #64 on: February 03, 2009, 01:39:16 AM »

You are both in my prayers...be strong....   :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
jessup
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« Reply #65 on: February 03, 2009, 02:18:10 AM »

Oh geez mate
I only read this thread today
My heart is with you both
I am sending lots of love to you dear Yvonne and John
 :grouphug; :grouphug;
 :flower; :flower;
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pelagia
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« Reply #66 on: February 03, 2009, 03:03:16 AM »

Oh dear Yvonne, I have gotten behind on this thread.  I hope John regains his strength soon.  :grouphug;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
drinkboy
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« Reply #67 on: February 03, 2009, 07:21:26 AM »

Yvonne, you said it best...you have to take it one day at a time.  Hope for little victories each day and keep doing what you're doing and staying positive.  As we all know, the older we get, the longer it takes to recover from things, so it may take John a little longer that's all.  My thoughts are with you and I hope your next update brings good news.

I'm glad a lot of the snow melted.  Where I'm from, in upstate NY, we are used to snow and cold in the winter and we still have a hard enough time driving in it, so I can imagine how it is there.  Hopefully it'll get warmer and continue to melt so you don't have any issues getting to the hospital to visit.  Take care.
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paul.karen
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« Reply #68 on: February 03, 2009, 07:34:41 AM »

:-(

Still sending positive thoughts to you both.
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« Reply #69 on: February 03, 2009, 11:32:31 AM »

Hey Yvonne, I'm from the UK to and the weather sucks right now, it nice to look at but it very hard to travel.  I hope John is feeling better and you can get to see him soon. Look forward to the updates..
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hilrose- hemodialysis patient since April 2007
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Neverless very happy to be alive!
Yvonne
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Yvonne

« Reply #70 on: February 03, 2009, 11:14:52 PM »

They are thinking of putting John back in HDU as his heart went into fibrillation Monday night, they have increased his oxygen and are hoping that will sort things out. They say his bowel has gone to sleep as that had got caught up in his Hernia and was causing all the trouble, now they tell me. John is very ill he just sleeps all the time I am with him, I broke down yesterday when I was with him I told how much I love him, I needed him, please get better. What can I do, he is in their hands and I must trust them.  Yvonne
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
rose1999
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« Reply #71 on: February 03, 2009, 11:26:26 PM »

Yvonne I feel for you. All you can do is be there and hope John knows you are there, talk to him, he will hear you. 

At least if he's back in HDU he will get more attention and you will get to speak to someone to find out exactly what is going on. Yes you must trust them but you must also question them, they are not gods and can make mistakes so if you think things are wrong then speak up.  I say this as my Aunt is seriously ill in ICU and her son was sure the nurse hadn't reconnected her pap mask properly, he queried it and she said it was correct.  After a minute my Aunt was clearly struggling to breathe so he got another nurse - it wasn't connected properly and she sorted it.  The first nurse apologised but what if my cousin hadn't beenthere or hadn't queried it. Also keep asking questions, over the years Dad has been in and out of hospital I've seen it's the patient with the family who ask the questions who gets the attention - you know the squeaking hinge gets the most oil or whatever that saying is!

Wishing for better things for you both  :cuddle;
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pelagia
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« Reply #72 on: February 04, 2009, 03:22:21 AM »

I agree Yvonne that you can ask questions and expect answers.  I am sure that it means a lot to John when you are there, even if he is too weak right now to tell you.  My dad has had some very low points with his heart and has healed, so I know it can happen.  I think all you can do is take it day by day.  Do you have some family support?  I hope so.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
kitkatz
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« Reply #73 on: February 04, 2009, 06:27:39 AM »

Take care of you while John is in the hospital.  I send prayers and best wishes to you both.
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Take it one day, one hour, one minute, one second at a time.

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2_DallasCowboys
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« Reply #74 on: February 04, 2009, 07:33:42 AM »

Dear Yvonne,

Constantly thinking of you and your wonderful
husband, sending many, many prayers and lots
of warm  :cuddle; your way across the Atlantic.

Please do remember to take care of yourself, and
eat and rest.

Anne in NJ
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