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Author Topic: Just wanted to let everyone know I miss you!!!!  (Read 8818 times)
Roxanne610
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I just dont know anymore!!!
« on: January 22, 2009, 10:42:02 PM »
Hello everyone,,,

You know at nights now I find myself lost I always looked so forward to the information that you all helped me and always giving me a glimpse of hope in every post you gave to me.. :thx; :cuddle;....................This is all so surreal for us right now, today was my dads birthday and my brother texted me saying I can't belive I cant call daddy to wish him a Happy Birthday,,,I said I know it sucks..I wish I could wake up and this just be a bad dream but every morning that I wake up with my mom unfortunately its real...

Miss you guys...Hope you all are well.
xoxoxoxo





EDITED: Moved to proper section - Bajanne/Moderator
« Last Edit: February 07, 2009, 02:05:52 AM by bajanne2000 » Logged
My DAD:
Cirrohsis at 32 from Hepatitis C,,,,50 Liver Failure from Hep C, 52 Liver Transplant, 2000 Lymphoma from Anti Rejection Meds treated and has been fine. 
Present:  Kidney failure from Meds for the liver transplant
Hepatitis C is very very active which is damaging the liver they are worried that he may need a liver transplant to, but until he is strong enough to get the liver biopsy.  And now he is hit with blood infection that he caught in the hospital ( i feel from nurses being not gentle enough with him)....
Started Dialysis Nov 08...Just waiting to see what the miserable Hep C disease is doing to our liver before we can even think about a kidney transplant!!!! :(

Roxanne  :(
My prayers and thoughts are with everyone!!!
RichardMEL
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« Reply #1 on: January 22, 2009, 11:24:35 PM »
Well Roxanne we miss you too.. and just because you don't need us for kidney related info you can still come here for support and to chat with us. We all love you and absolutely you can come here when you're lonely or down or whatever...

 :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
2_DallasCowboys
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« Reply #2 on: January 23, 2009, 03:12:04 AM »
Dear Rox,

I miss you, too!   Please know you
and your family are still being sent
prayers your way.

The loss of a beloved parent is one
of the hardest things anyone can go thru
in this life.  I remember well how I felt
when my own Father left us for heaven.

Please be well, and loving thoughts sent
to you and all of your family.

Anne
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paul.karen
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« Reply #3 on: January 23, 2009, 04:30:21 AM »
:waving; Roxanne

Thanks for popping in now and again.  We as well miss you here.
Sadly people find this site due to an illness of themselves or a loved one.
But with this site comes friendships that can last a long time from what i have seen.
So please drop by to let us know how you are doing when you can.
Even though you came here to learn from experienced people who have been there, some of us have  as well learned from you and your experiences.
For me it was very touching and nice to see the love you had for your father.
Wishing you all the best.
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #4 on: January 23, 2009, 08:26:03 AM »
 :cuddle; Rox
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #5 on: January 23, 2009, 09:07:33 AM »
We think of you and your family often.   You are still one of us, so come and visit anytime you can.  We want to know how you are doing.   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
rose1999
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« Reply #6 on: January 23, 2009, 09:24:41 AM »
I don't think you can ever stop being part of the IHD family - cos we won't let you  :2thumbsup;
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monrein
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Might as well smile
« Reply #7 on: January 23, 2009, 09:37:03 AM »
 :waving;  Hi Roxanne.  I think of you often and am glad you drop in from time to time.   :cuddle;
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
jessup
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Gemma - the tucker monster
« Reply #8 on: January 23, 2009, 12:37:32 PM »
G'day mate
 :flower; :flower; :flower; :flower; :flower;
lots of love to you, your mum and bro
take care
 :grouphug;
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Romona
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« Reply #9 on: January 23, 2009, 02:21:57 PM »
 :grouphug;
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pelagia
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« Reply #10 on: January 23, 2009, 03:08:27 PM »
You've been through a lot Roxannne.  I am sending you a  :cuddle;.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
G-Ma
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« Reply #11 on: January 23, 2009, 05:33:05 PM »
 :grouphug;
Logged
Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #12 on: January 23, 2009, 06:53:09 PM »
 :cuddle;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
kitkatz
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« Reply #13 on: January 24, 2009, 12:05:33 PM »
 :grouphug;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
drinkboy
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« Reply #14 on: January 26, 2009, 08:27:09 AM »
Hey Roxanne,

I just posted a reply to your previous thread and just saw this (I am still catching up after about a month of not being on the site).  I  realized I haven't been here in a while and missed seeing the familiar names/faces and wonderful posts everyone has. I am so glad you are still posting on here and popping in from time to time.  I hope you and your family are doing well.  I know how hard it is to lose a parent, especially due to circumstances related to kidney disease.

My best piece of advice is to stay as close as possible with your mom and family, and see them as much as possible, especially your mom.  Everyday it hurts, especially on significant days like birthdays, holidays, etc, but your family is what helps you get through it the best you can.

Take care
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #15 on: January 26, 2009, 11:17:44 AM »
Sorry I only just saw this.  And to find out that I have the same birthday as your dad! We have a special birthdate-  the only date that counts correctly - 0123!
That fun fact aside, I was so glad to see you post.  I join with the others to beg you to stick with us.

I am moving this to the family thread, because that is what you are to us!
« Last Edit: February 07, 2009, 02:04:33 AM by bajanne2000 » Logged
"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
breezysummerday
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« Reply #16 on: February 06, 2009, 03:55:17 PM »


Hey Miss Roxanne, how are you?
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
Roxanne610
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I just dont know anymore!!!
« Reply #17 on: February 06, 2009, 10:31:28 PM »
Hello everyone!!!! Miss you all
Logged
My DAD:
Cirrohsis at 32 from Hepatitis C,,,,50 Liver Failure from Hep C, 52 Liver Transplant, 2000 Lymphoma from Anti Rejection Meds treated and has been fine. 
Present:  Kidney failure from Meds for the liver transplant
Hepatitis C is very very active which is damaging the liver they are worried that he may need a liver transplant to, but until he is strong enough to get the liver biopsy.  And now he is hit with blood infection that he caught in the hospital ( i feel from nurses being not gentle enough with him)....
Started Dialysis Nov 08...Just waiting to see what the miserable Hep C disease is doing to our liver before we can even think about a kidney transplant!!!! :(

Roxanne  :(
My prayers and thoughts are with everyone!!!
okarol
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Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #18 on: February 06, 2009, 10:53:35 PM »

Hi Rox,
 :flower;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile
« Reply #19 on: February 07, 2009, 02:36:13 AM »
Hi Roxanne.  Hope you guys are doing OK.  We think about you.  :grouphug;
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Sluff
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Posts: 43869
« Reply #20 on: February 07, 2009, 06:26:03 AM »
Glad to see you post again. How's your Mo holding up? Your Dad would be so proud of his family the way you all care about each other and stick together through thick and thin. It is a great legacy for your Father.   :grouphug; Don't be a stranger.
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paul.karen
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« Reply #21 on: February 07, 2009, 06:51:54 AM »
 :waving;
Logged
Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Roxanne610
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I just dont know anymore!!!
« Reply #22 on: February 07, 2009, 07:00:57 AM »
Hello,,,

We are hanging in it still doesnt feel real I have to be honest with all of you...Last nite we went to a medium this spirtual event it was good...My dad came through last nite to me it was nice....So it made me feel a little better but now I want more... :(  Hope everyone is doing good...  I think of you all the time and my best wishes are always with you..
Logged
My DAD:
Cirrohsis at 32 from Hepatitis C,,,,50 Liver Failure from Hep C, 52 Liver Transplant, 2000 Lymphoma from Anti Rejection Meds treated and has been fine. 
Present:  Kidney failure from Meds for the liver transplant
Hepatitis C is very very active which is damaging the liver they are worried that he may need a liver transplant to, but until he is strong enough to get the liver biopsy.  And now he is hit with blood infection that he caught in the hospital ( i feel from nurses being not gentle enough with him)....
Started Dialysis Nov 08...Just waiting to see what the miserable Hep C disease is doing to our liver before we can even think about a kidney transplant!!!! :(

Roxanne  :(
My prayers and thoughts are with everyone!!!
pelagia
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Posts: 2991
« Reply #23 on: February 07, 2009, 08:53:35 AM »
Nice to hear from you Roxanne.   :cuddle;
Logged
As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
jessup
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Gemma - the tucker monster
« Reply #24 on: February 07, 2009, 02:17:04 PM »
Great to hear from you mate
Please give my love to your Mum and bro
 :grouphug;
and of course  :cuddle; for you
Take care
 :flower; :flower; :flower;
Logged
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