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Author Topic: Team Walking for Nana and Nina will walk again!  (Read 10695 times)
paris
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« Reply #25 on: January 28, 2009, 06:50:15 PM »
Yep!  Todd is my oldest!   He is so proud of his butt rubbing abilities, he will tell complete strangers all about his butt!!   :rofl;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
ToddB
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« Reply #26 on: January 28, 2009, 07:13:48 PM »
I'll even show and share my butt to complete strangers!!! :bandance; :sir ken;  :bandance; :sir ken;
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kitkatz
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« Reply #27 on: January 29, 2009, 06:38:20 AM »
 :sir ken; :sir ken;  Get on with it then!  :sir ken; :sir ken;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Chris
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« Reply #28 on: February 09, 2009, 12:39:27 AM »
Maybe my od sense of humor, but the butt bandit name seems to go with Todd  :rofl; :rofl; :rofl;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paris
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« Reply #29 on: February 09, 2009, 06:17:35 PM »
He would love the title "Butt Bandit" !    :rofl;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kitkatz
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« Reply #30 on: February 09, 2009, 06:20:04 PM »
And a new name was born for your son! 
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
AlohaBeth
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« Reply #31 on: March 08, 2009, 04:43:59 PM »
Hey everyone!

I am home from Paris and am now I am hanging out with Paris!!  (My Mom!)  I was so sad to leave but happy to be with my family again!

The Triangle Kidney Walk is right around the corner and our team is really  being hit by the economy (understandably so!)  We are just so grateful to anyone for donating, because we know how hard times are right now! 

Right now we are at $790 with just a couple of weeks to go! 

Thank you for all of the amazing support you have shown our family and especially the support you give to my mom (Paris) everyday.  You are her family too.

If you are interested in donating or finding our more about our team follow this link...

https://www.kintera.org/faf/donorReg/donorPledge.asp?ievent=285959&lis=0&kntae285959=45F643372DCF4351AE7D7ED1C5DA7BDB&supId=205271606
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Imagine a world that lived with the Aloha Spirit.
paris
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« Reply #32 on: March 25, 2009, 03:51:32 PM »
To my dear IHD family -   Our Kidney Walk is Saturday and we are looking forward to a nice day. My grands have used the trophy we won last year as a place to collect change.  Every penny they have found on the street, in the couch, at the bottom of Mommy's purse has gone into the trophy. They have filled it to the top! They are very proud of their contribution to the Kidney Walk.  Again, we are walking to remember our sweet Goofynina.  And of course, there will be lots of purple boas and tiaras!  We have added a few more adornments to our outfits!   We have large Purple Ribbons the say "In memory" and the name of a member we lost this year.  One for Ohio Buckeye, Flip, Dustin, Glitter's husband, Nola Gail, Chuck, Mikey.  And large Green Ribbons that say "to honor".  On those will be Martha (xtrememoostrax), KellyT, Monrein, Wenchie, Charee, Rookiegirl, many more names----all who received (or gave) the Gift of Life.  I feel it is important to surround myself with all of you on that day because you have made such an incredible difference in my life.  So, on the 28th, put on your own purple boa (where ever you are) and walk in thought with us.  Sluff and Bajanne--put on your shirts and boas!  We will post pictures so you can see the purple feather brogade!  I love you all!!   And you are all invited for lunch at my daughters after the Walk.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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« Reply #33 on: March 25, 2009, 06:31:25 PM »
Forgot about this post. I will donate what I can.

I just donated what I knew I could, but might be able to do more. When is the last time we can donate?
« Last Edit: March 25, 2009, 07:04:44 PM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
rose1999
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« Reply #34 on: March 26, 2009, 12:13:53 AM »
Paris I will wear my boa on Saturday and be with you in spirit, bless you all for doing this. Wish I lived nearer and could come and join you xxx
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charee
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« Reply #35 on: March 26, 2009, 03:05:28 AM »
Oh Thanks Paris i will be there in spirit , your all doing a fantastic job :clap;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
willieandwinnie
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« Reply #36 on: March 26, 2009, 04:36:53 AM »
 :yahoo; paris.  :bow; Bless your heart.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Sluff
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« Reply #37 on: March 26, 2009, 06:32:03 AM »
Hope you have a glorious day for the walk.
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kristina
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« Reply #38 on: March 26, 2009, 07:29:46 AM »
Good luck for the day and the walk! All the best and thanks for the good work. Kristina :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
paris
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« Reply #39 on: March 27, 2009, 06:05:32 PM »
Tomorrow is the day.  Todd, the "butt bandit" has smoked his butt.   :rofl;    Side dishes are ready and waiting. Brownies baked, cookies ready.  My dining room is covered with tiaras, boas, purple and green ribbons and all the change from the trophy the grands have collected.  The "found" over $40 in change---little ones can make a difference too!  Thank you, my friends, for being by our side tomorrow and walking in spirit with us.   My family knows how much everyone at IHD means to me and they are grateful that I have such a wonderful place to be myself in.   AlohaBeth will post pictures.  And the sun is suppose to shine and be 70!  Yea!!   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Sluff
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« Reply #40 on: March 27, 2009, 07:15:07 PM »
Now I really wish I could be there, we will be getting 3-6 inches of snow tomorrow.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #41 on: March 27, 2009, 09:06:21 PM »

Oh don't forget photos of the dining room!
I hope you have a beautiful day!
You guys ROCK!!  :cheer:  :cheer:  :cheer:
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #42 on: March 27, 2009, 09:07:53 PM »
They are saying we are suppose to get 8 inches here and 12 inches in other parts of IL. 12 inches sounds good if it was February.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
pelagia
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« Reply #43 on: March 28, 2009, 05:26:13 AM »
Hope you have a fabulous day (I know you will).  :flower;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
rose1999
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« Reply #44 on: March 28, 2009, 11:00:27 AM »
 :2thumbsup; Wearing my boa and thinking of you all. Wish we could donate via Paypal as my card was rejected and the bank issued a Falcon warning (whatever that is!!) - happened last year too!  Perhaps you can persuade them for next year?  Good luck!!
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monrein
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Might as well smile
« Reply #45 on: March 28, 2009, 03:34:52 PM »
I was there in spirit and my kidney and I thank you all for raising awareness and of course money for the cause of ESRD.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #46 on: March 28, 2009, 03:53:45 PM »
 :bow; paris. I was there with you today walking right beside you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #47 on: March 28, 2009, 08:26:14 PM »
The news story is here http://ihatedialysis.com/forum/index.php?topic=13121.0
I copied the photos from their slide show:
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kitkatz
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Posts: 17042
« Reply #48 on: March 29, 2009, 09:05:01 AM »
That looks like it was a lot of fun!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Chris
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« Reply #49 on: March 29, 2009, 11:21:13 AM »
Now waiting for the pictures of the butt bandit's smoked roast  :rofl; :rofl;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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