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Author Topic: Got my transplant surgery date today  (Read 73184 times)
nursewratchet
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"Either do it, or don't do it, don't try"
« Reply #25 on: January 15, 2009, 06:41:21 AM »
WOOHOO!!!  :bandance; :bandance;
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RN, Facility Administrator 2002 to present
RN, Staff Nurse 1996-2002
Vicki
2_DallasCowboys
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« Reply #26 on: January 15, 2009, 07:13:59 AM »
Wonderful news!

Doin the Banana Dance for ya

 :bandance; :bandance; :bandance; :bandance; :bandance; :bandance;

Anne
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Zach
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"Still crazy after all these years."
« Reply #27 on: January 15, 2009, 08:41:49 AM »
 Congrats!

:wine;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
paul.karen
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« Reply #28 on: January 15, 2009, 09:22:15 AM »
 :clap; :2thumbsup; :clap; :2thumbsup; :clap;

This is very GOOD news.

P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
harley08
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« Reply #29 on: January 15, 2009, 09:47:31 AM »
This is the best news ever.... I think it is so wonderful of your sister in law to donate, what a special person she has to be. May this new year bring many persons on this board the special gift of a new kidney!! Best wishes and prayers to you and your sister in law :flower; :flower; :clap; :grouphug;
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vandie
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« Reply #30 on: January 15, 2009, 11:17:30 AM »
Wonderful news.  I am thrilled for you.  Your sister in law is an angel.
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Life is the journey, not the destination.
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I received a kidney transplant on August 4, 2007.
okarol
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« Reply #31 on: January 15, 2009, 11:38:42 AM »
 :bestwishes; Yay!
This is very exciting news!  :cheer:
 :yahoo;
 :2thumbsup;
:clap;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile
« Reply #32 on: January 15, 2009, 01:09:13 PM »
Quote from: Chris on January 15, 2009, 04:36:06 AM
Great news Monrein.

Ok, what's minimal invasive surgery for a kidney transplant. I was always told laproscopic removal was the minimal invasive surgery for the process. I need to get up to date on techniques.

Chris, my understanding of this is that it is an open surgery nephrectomy but with a much smaller scar.  About four inches is what we've been told. 

Thanks everyone for your support and good wishes.  It means a lot to me.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kellyt
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« Reply #33 on: January 15, 2009, 02:33:16 PM »
I'm so happy for you!  You and I both have wonderful and caring sister-in-laws!  Give her a big hug from all of us here at IHD when she arrives!  Congratulations!!!   :bestwishes;     :cheer:
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Sunny
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Sunny
« Reply #34 on: January 15, 2009, 03:32:32 PM »
This is wonderful news for you. Your sister in law is one of a kind. Keep us posted.
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Romona
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« Reply #35 on: January 15, 2009, 05:27:19 PM »
 :bandance; Best Wishes for a Speedy Recovery to both of you! :grouphug;
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KT0930
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« Reply #36 on: January 20, 2009, 03:43:20 PM »
I'm late, but no less excited for you. I'm so glad you have a wonderful sister-in-law!! Best of luck to both of you!
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
monrein
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Might as well smile
« Reply #37 on: January 20, 2009, 04:05:59 PM »
Our transplant coordinator called today with the news that the same surgeon, Dr. Michael Robinette, will be doing both our surgeries.  I'm not sure why I thought we'd have 2 surgeons, one each, but Dr. R has a great reputation here so I'm happy.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
G-Ma
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« Reply #38 on: January 20, 2009, 04:30:42 PM »
As long as you are happy with the surgeon that's good.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
okarol
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« Reply #39 on: January 20, 2009, 05:10:02 PM »
Quote from: monrein on January 20, 2009, 04:05:59 PM
Our transplant coordinator called today with the news that the same surgeon, Dr. Michael Robinette, will be doing both our surgeries.  I'm not sure why I thought we'd have 2 surgeons, one each, but Dr. R has a great reputation here so I'm happy.

Jenna had 2 different surgeons. At around 7 am Dr. Schaeffer opened Patrice, removed the kidney and closed her up. After the kidney was washed and examined, it taken to a nearby surgical room where Jenna had already been prepped, opened and was ready to have the transplant performed by Dr. Marsh. He came out at noon to say all had gone as planned.

Not sure how centers decided about the procedure, but Dr. Marsh wanted the minimum amount of time between surgeries.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Wallyz
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« Reply #40 on: January 20, 2009, 05:12:15 PM »
E verything sounds good, Monrein.  Keep us posted.
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cherpep
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« Reply #41 on: January 20, 2009, 05:56:10 PM »
I'm so excited for you!!!!  Excited, but calm - cool as a cucumber!!  You are blessed to have such a great sister-in-law!!!  What a hero.
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pelagia
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« Reply #42 on: January 20, 2009, 06:22:27 PM »
Stephen and Michael had three surgeons all together.  One surgeon removed the kidney from Michael laparoscopically, and two more transplant specialists worked together on Stephen.  One was lead and one assisted.  I know that Michael was still being closed up while they were starting to work on Stephen because they were updating us regularly.  I also remember something about a "rest period" for the kidney before they transplanted it.  It had something to do the kidney being very sensitive and needing a careful transition.
« Last Edit: January 20, 2009, 06:25:00 PM by pelagia » Logged
As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Lori1851
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This is me Lori , Dustin's mom
« Reply #43 on: January 21, 2009, 09:25:41 AM »
Monrein,
I am so happy for you and give your sis a big hug! I love DONORS!!!

Lori/Indiana
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openboat
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« Reply #44 on: January 22, 2009, 06:19:19 AM »
That's great!  I can't wait to hear how it goes.   
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lola
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I can fly!!!
« Reply #45 on: January 22, 2009, 02:54:55 PM »
 :bandance; :bandance; only a month away  :bandance; :bandance; :cheer: :flower;
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monrein
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« Reply #46 on: January 22, 2009, 03:27:21 PM »
Just had clinic today and my neph is very pleased overall with everything.  He thinks I may be too exact with my diet and has told me to eat more  potassium containing foods, so fresh mango is for dessert tonight.  My heart rate runs high all the time since I quit taking beta blockers for high BP but my echo cardiogram was excellent and he said that my heart shows no signs whatsoever of being affected by dialysis.  BP is very good too. He thought it might be the benefit of exercise and also my low fat diet for many years.  I'm getting some iron infusions to raise that level prior to surgery.  He thinks that physically the surgery should be a piece of cake and he entered my date in his blackberry so he can visit me once it's done.  That's pretty nice of him since I'll be switching back to my former transplant neph as soon as I'm transplanted.  I like it when things appear to be falling into place. 
« Last Edit: January 22, 2009, 03:39:12 PM by monrein » Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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« Reply #47 on: January 22, 2009, 03:32:37 PM »
 :yahoo; monrein. We couldn't be happier for you. Please give that sister-in-law a big  :grouphug;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
MiSSis
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« Reply #48 on: January 22, 2009, 06:52:09 PM »
Dear Monrein,

I'm so happy to hear that things are falling into place so nicely for you.  I'M JEALOUS!!!  The opportunity for a transplant appears to be a little bleaker for me these days.  Tomorrow (Friday), I go in for my 16th angioplasty.  Unfortunately my heart is not in the excellent condition that yours is in. 

I hoping you've made some sort of arrangements to keep us all updated on your journey.  If you're not able to do it, I hope you're giving your hubby some lessons.  Someone has to keep your IHD family informed every step of the way! 

Low fat diet and exercise ... I know the drill but I just need to put it into practice more often.  You are such a role model for the rest of us.

One month to go and I'm sure you're cool, calm and collected. 

Hugs to you and your sis-in-law, the angel.

MiSSis/Michelle
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"Keep your face to the sunshine and you will not see the shadows."  Helen Keller
jessup
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Gemma - the tucker monster
« Reply #49 on: January 22, 2009, 07:03:36 PM »
Great news mate

 :flower; :cheer: :flower; :cheer:
Just a question about the mango
At Dad's dialysis unit there are posters everywhere stating
"Mango - not good tucker"
I am presuming this is especially for the indigenous patients who rely on this as a major staple of their diet?
Just wondering ?
 
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