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Author Topic: Got my transplant surgery date today  (Read 73993 times)
Sluff
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« Reply #250 on: March 25, 2009, 06:26:54 AM »
Thinking of you Gail.  :cuddle;
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Zach
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"Still crazy after all these years."
« Reply #251 on: March 25, 2009, 10:34:26 AM »
 :cuddle;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
paris
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« Reply #252 on: March 25, 2009, 10:41:19 AM »
We know you are a fighter, Gail.  You can get over this bump.  I will say prayers that they find the source of the fever and you start recovering.  Sending love   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
pelagia
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« Reply #253 on: March 25, 2009, 03:44:37 PM »
Here's Lee's latest post:

Hi everyone. I just got back from the hospital and am happy to report that Gail is doing much better.She is still in a cubby hole in the emerg but should be in a proper room by tonight.The doctors are not worried about her kidney and feel it is some infection elsewhere.Gail is on some major antibiotics and she will not be released untill she has no fever for 48 hours.They still are not sure what is wrong but it could be her gall blader. I told Gail she should have a velcro incision so they could take out and put in organs at will.At any rate Gail is feeling good and telling me how she could make the emerg run more efficiently,something about mace and a riding crop.Better them than me. Thanks for the support Lee

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Sending hugs Gail  :cuddle; This is good news, but I'll be happy when they figure out what it is. :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
okarol
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« Reply #254 on: March 25, 2009, 04:09:03 PM »
 :thumbup; Good news - let's hope it continues and they get you home soon Gail!!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kellyt
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« Reply #255 on: March 25, 2009, 07:26:32 PM »
 :thx;   It's good to hear the kidney is not being damaged.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
charee
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« Reply #256 on: March 25, 2009, 09:24:12 PM »
Good news hope they sort it out soon :cuddle;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
G-Ma
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« Reply #257 on: March 25, 2009, 09:40:14 PM »
Mace and riding crop????????    :P

Hope you are doing well.........    :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Yvonne
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Yvonne
« Reply #258 on: March 26, 2009, 12:46:08 AM »
 :grouphug; John and I send our love and please have a speedy recovery  :flower;
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #259 on: March 26, 2009, 10:09:27 AM »
Oh no! I've been out of commission myself for the last week and missed this!! Gail, I hope you're doing better by now! I'll keep you in my thoughts and prayers.  :grouphug; :grouphug; :grouphug;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
pelagia
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« Reply #260 on: March 26, 2009, 10:45:35 AM »
No new messages on CB yet.  Hope you are getting better Gail.  :flower;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Jill D.
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« Reply #261 on: March 26, 2009, 11:06:08 AM »
Gail - hope you are home soon and cooking up a storm!
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
willieandwinnie
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« Reply #262 on: March 26, 2009, 11:09:30 AM »
 :cuddle; Gail, I've been thinking about you all morning. I hope they find out what is causing your fever and you get home soon.  :grouphug;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Sunny
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Sunny
« Reply #263 on: March 26, 2009, 02:11:35 PM »
I'm thinking of you and wishing you the best.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
monrein
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Might as well smile
« Reply #264 on: March 26, 2009, 04:06:29 PM »
Hi everyone
I'm on the computer at the hospital where they got me up from ER yesterday afternoon.  They think (and I agree especially since I had suggested this diagnosis) that I have a flare up of diverticulitis probably a bit from all the seeds and fibre and fruit (raspberries especially) that I love.  They considered some other nonsense too, like gall bladder but all was ruled out.  Back on a couple of antibiotics and had my stent removed today.  I feel way better and did 29 laps around the atrium which is a pretty good walk.
I'm not on the transplant floor but in the cardiac one and that alone strengthens all my resolve about eating healthy food.  I asked the doc about the seeds etc but she said to change nothing that in the long run what has likely caused my diverticulitis is the overprocessed renal diet.  She likes how everything looks, including me which is quite hilarious since my hair is once again a dangerous substance. My creatinine has been floating between 77 and 83 (Canadian scale).
I'm scheduled to go home tomorrow afternoon which will mark 48 hours with no fever.
« Last Edit: March 27, 2009, 12:07:09 PM by monrein » Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
G-Ma
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« Reply #265 on: March 26, 2009, 04:46:06 PM »
 :bandance;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
charee
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« Reply #266 on: March 26, 2009, 05:20:48 PM »
Thats great news  it will be good to get home :bandance;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #267 on: March 26, 2009, 05:26:44 PM »
 :cheer: Good news!  :cheer:
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
pelagia
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« Reply #268 on: March 26, 2009, 05:28:25 PM »
Thank goodness you are back on-line because I had already started having withdrawal symptoms!  :cuddle;
 
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
openboat
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« Reply #269 on: March 26, 2009, 06:21:57 PM »
 :clap;
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paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #270 on: March 26, 2009, 08:39:07 PM »
 :grouphug; :grouphug; :grouphug; :grouphug;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
circleNthedrain
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« Reply #271 on: March 27, 2009, 02:40:57 AM »
GREAT NEWS!!!
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric  kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
RichardMEL
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« Reply #272 on: March 27, 2009, 03:11:08 AM »
absolutely fantastic!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Wattle
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« Reply #273 on: March 27, 2009, 03:37:19 AM »
 :cheer: :cheer:  Yay    :cheer: :cheer:
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
willieandwinnie
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« Reply #274 on: March 27, 2009, 04:54:19 AM »
 :flower; Gail, so happy to hear the news. I bet that fever was from that stent, glad that it's gone. You take care of yourself now (which I know you will) and try to rest just a little or Lee might have that paper route for you sooner then you want.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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