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Author Topic: Got my transplant surgery date today  (Read 73191 times)
Wattle
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« Reply #225 on: March 03, 2009, 06:39:12 PM »
 :flower;  Welcome Home xox
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
thegrammalady
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« Reply #226 on: March 03, 2009, 06:50:09 PM »
 :welcomesign; home monrein
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
jbeany
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Cattitude
« Reply #227 on: March 03, 2009, 07:01:17 PM »
Ooooh, have some mexican for me - refried beans, cheese and more cheese, and a gallon of ice water to wash it down. . . .

Or feed that rodent something!

 :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
pelagia
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« Reply #228 on: March 03, 2009, 07:17:09 PM »
 :yahoo; you're home  :yahoo;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Yvonne
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Yvonne
« Reply #229 on: March 04, 2009, 01:54:53 AM »
 :welcomesign; love from Yvonne and John  :grouphug;
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
willieandwinnie
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« Reply #230 on: March 04, 2009, 05:20:14 AM »
 :yahoo; Gail.  :clap; So happy you are home. Now get some rest, eat a banana and drink, drink, drink. Can't wait to hear you story and see pictures.  :cuddle;
« Last Edit: March 04, 2009, 05:31:24 PM by willieandwinnie » Logged
"I know there's nothing to it, but I want to know what it is there's nothing to"
paul.karen
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« Reply #231 on: March 04, 2009, 05:23:25 AM »
 :waving; Welcome home

Your bed-Your food-Your schedule-Your life back.
 :beer1;

We missed you but it was well worth it.
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
monrein
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Might as well smile
« Reply #232 on: March 04, 2009, 10:32:25 AM »
Thanks everyone.  My creatinine was 71 yesterday, better than Kathy's with both her kidneys...and better than my neph's....how wild is that???  I just had my lunch, a delicious avocado and chopped liver sandwich with arugula on fresh whole grain bread with lots of seeds and a glass of orange juice.  Low fat yogurt and half a banana plus 5 raw almonds for dessert.
I want to cook again and am dreaming about a lamb and veggie with chick peas couscous.  Maybe even tomorrow.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
G-Ma
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« Reply #233 on: March 04, 2009, 03:07:31 PM »
I am so glad you both are feeing so good and look at you, back on your wonderful meals and wanting to cook.  You are fantastic.   :cheer:
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Sunny
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Sunny
« Reply #234 on: March 04, 2009, 05:10:00 PM »
Yaay! Glad your feeling good and able to eat what you want. Sounds like and your sister-in-law made it through the surgery very well.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
monrein
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Might as well smile
« Reply #235 on: March 04, 2009, 05:50:22 PM »
Tonight I cooked dinner for Lee and Kathy and it was fantastic.  I made basmati rice with a chicken, shitake mushroom, onions, red pepper, carrots, baby corn, sugar snaps, water chestnuts, and cilantro stir fry and garnished with a few chopped peanuts.  We also had a delicious salad that Lee made and fresh blueberries for dessert although we've postponed eating the berries because we're full.  I felt terrific cooking but did take a tylenol part way through as the "squirrel" kidney was gnawing a little.  I always cook for my family when we spend the Christmas holidays in Florida and Kathy loves my food so it was an extreme pleasure to feed her again.  Lee is our super shopper and he has been so amazing through all this.  It feels good although a bit surreal to be coming back to life again and I want you all to know how much I wish I could wave my wand and give you each the gift of health again too.  I don't take even one second for granted and remain steadfastly beside all of you in the ESRD struggle.  :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #236 on: March 04, 2009, 06:14:29 PM »

 :clap; I love to hear about you cooking Gail - that makes me so happy.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
pelagia
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« Reply #237 on: March 04, 2009, 07:36:56 PM »
Wish I'd been there for dinner rather than stranded in Houston eating bad airport food.  Hope tomorrow is more of the same for you - great, great and even better.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #238 on: March 04, 2009, 09:11:15 PM »
 :clap;  Yay! Gail is back!! Now  don't go disappearing on us now that you've gotten a transplant.   ;D
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
monrein
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Might as well smile
« Reply #239 on: March 05, 2009, 11:00:31 AM »
I certainly don't plan to disappear Paddbear although I must tell you that I'm looking forward to spending a bit less time in total here, only because I have so much other stuff I want to do.  My connection to all of you is super strong and I'll always need to know how this crap disease is treating each and every one of you.  :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
TeenHatesDialysis
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« Reply #240 on: March 05, 2009, 09:13:50 PM »
Congratulations Gail!!! :yahoo;
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Susan, mom of Jaclyn, Deziree and Valerie

www.cotaforjaclynp.com
Jaclyn and Deziree diagnosed CKD 2/07; NPHP (type 1) 9/07
Jaclyn started dialysis 1/2/08
Successful Transplant 7/4/2009 at Lucile Packard Childrens Hospital @ Stanford, Palo Alto, CA
Deziree in denial
Jaclyn listed 5/08
Deziree listed 1/09 ("Inactive")
Jaclyn Cadaver kidney transplant 7/4/09 (Independence from dialysis day!)
willieandwinnie
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« Reply #241 on: March 24, 2009, 06:59:17 PM »
 :grouphug; According to Lee's (monrien's hubby)  post on her Caring Bridge Site she was admitted to the hospital today. Hope your are doing better Gail.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
pelagia
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« Reply #242 on: March 24, 2009, 07:32:35 PM »
I hope they will quickly figure out what is causing her fever.  ???
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
kellyt
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« Reply #243 on: March 24, 2009, 08:21:09 PM »
When did she start running a fever?  Does anyone have any more information on Monrein?  Is there a post I can read?  Thanks.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #244 on: March 24, 2009, 09:36:52 PM »

The fever started on Mar. 18th - so it's good she's gone into the hospital so they can figure out what's up. Her creatinine is great - so that a very good sign.

 :grouphug; Sending you LOVE and HUGS Gail.
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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WWW
« Reply #245 on: March 24, 2009, 10:17:50 PM »
Hope they figure it out and she get's better soon.

Does her hospital offer email service to send her notes?
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
circleNthedrain
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« Reply #246 on: March 24, 2009, 11:18:08 PM »
Hope you are back home soon and feeling better Monrein.
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric  kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
Wattle
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« Reply #247 on: March 25, 2009, 12:26:41 AM »
 :grouphug;  I hope they sort it out quickly.

Sending hugs xox
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
charee
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« Reply #248 on: March 25, 2009, 02:12:51 AM »
hope your home soon thinking of you :grouphug;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
pelagia
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« Reply #249 on: March 25, 2009, 06:19:52 AM »
No update on the CaringBridge site yet :(

Kelly, the link to Gail's CaringBridge site is at the bottom of her posts.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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