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Author Topic: What do you do while you have insomnia?  (Read 11169 times)
Wenchie58
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Always carrying the big silly grin!

« Reply #50 on: January 20, 2009, 10:55:06 AM »

Usually I multi-task.  I can't sleep because I am wound up.  Last night I was chatting in the chatroom, using a remote connection to catch up on some work from the office, doing laundry and watching an action movie on tv.  Today I am sitting around, proud of all my overnight accomplishments!   :yahoo;
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
kitkatz
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« Reply #51 on: January 20, 2009, 02:18:49 PM »

Oooops, supposed to go to the gym, you made me tired already!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #52 on: January 20, 2009, 06:56:14 PM »

I did find my blood test order after you left this morning Wechie. I just didn't go get the test done.I slept for 3 hours today, but also thought today was Wednesday.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paddbear0000
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« Reply #53 on: January 21, 2009, 08:29:16 AM »

Wait?! What?! You mean yesterday wasn't wednesday?? Crap, that just screws up my whole week!!    :o  ;)
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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www.facebook.com/profile.php?id=1659267443&ref=nf 
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
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« Reply #54 on: January 21, 2009, 05:16:45 PM »

It's bad when you go in for test and people that know you at the hospital basically tell you "You look like s#@!! You feeling OK?"

I was feeling ok till you said that. While waiting for test I started to really feel odd. That feeling got worse and lasted 30 min and was hoping no one would send me to the ER. I made it out of there and by my next destination, that odd feeling went away.

One of the workers suggested I try masage therapy and/or yoga. Neither of those is going to happen. I am squirmish of other people touching me and not going to be only covered by a towel. Great, get tortured and freeze to death, Great Plan Einstein! Yoga, HAH, like I caan bend any part of my body into a pretzel. Supposedly there is an injection or IV drip that can be given that knocks you right outfor many hours
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
monrein
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« Reply #55 on: January 21, 2009, 05:35:10 PM »

If anyone suggests massage to me I just lie down and strip, I love having massages and used to go once a month whether I needed it or not.  In my next life I'm coming back as a dog and hopefully one with good owners who will willingly pet and scratch me all day long. 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
G-Ma
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« Reply #56 on: January 21, 2009, 07:10:11 PM »

ohhhh massage............  :bow;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #57 on: January 22, 2009, 08:23:00 AM »

Supposedly there is an injection or IV drip that can be given that knocks you right outfor many hours

Yeah it's called anesthesia!   :rofl;
Logged

********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Chris
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« Reply #58 on: January 31, 2009, 03:33:36 AM »

Will see if transplant center will help with insomnia since local docs do not want to touch it besides telling me to drink Sleepy Time Tea or Tylanol PM. Rather feel uncomfortable and try a massage  :stressed; than drink tea. Give me some sleepy coffee.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
pam49
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« Reply #59 on: January 31, 2009, 04:37:15 AM »

I am fairly new to dialysis.But what is it that makes it hard to get to sleep?I lay there and think about all kinds of crap (for hours).If I do fall asleep I wake up between 4:00 & 4:30.On the days off from dialysis I don't want to sleep because I want to enjoy feeling good.
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« Reply #60 on: January 31, 2009, 05:01:09 AM »

I had insomnia on the days off dialysis, but would fall asleep after 3 am and get back up at 6 am for classes. On dialysis days, Ii just napped afterwards for a bit, cleaned house and naped again before working on homework.

With transplant, I'm going day's without sleep. It happened right after my transplant and went away on it's own, but still easily stayed up past 12 am. Now it's back for the last few weeks with just sleeping 1 to 2 hours at a time.

No idea what causes it, never searched possible causes.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
MandaMe1986
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« Reply #61 on: January 31, 2009, 05:04:10 AM »

I guess I have in to late  :'( still no one in chat
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Wenchie58
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Always carrying the big silly grin!

« Reply #62 on: January 31, 2009, 07:35:54 AM »



I chat...and eat...and watch interesting tv!  LOL!
Logged

Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
MandaMe1986
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« Reply #63 on: January 31, 2009, 10:06:03 AM »

I always end up watching the history channle.  ;D Always the best in the middle of the night
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
monrein
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Might as well smile

« Reply #64 on: January 31, 2009, 10:13:48 AM »

I watch cooking shows and fantasize about cooking all the things I used to love making and eating.  I also read and play mahjong on the computer.  Sometimes I play scrabble against myself.  Now that's exciting, let me tell you.  :rofl;
Logged

Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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Posts: 3957


« Reply #65 on: January 31, 2009, 10:25:32 AM »

>:( I'm not the patient in our house but this morning at 2:10 I woke up and went out on the deck in 18 degree weather and smoked a cigarette then I put a whole chicken on simmer to make chicken and dumplings. I turned on A&E and curled up in the chair with Mouse, Willie and Winnie. I am getting tired now and I probably won't sleep tonight either. Maybe I'll use kitkatz   :Kit n Stik; on myself.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Chris
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« Reply #66 on: January 31, 2009, 04:09:40 PM »

Looking at my labs, I noticed I have low Iron (Fe or testing). Maybe I need to reread things from the past I read, but I thought I remember seeing that low iron will make you tired. Last time I was on Iron was  during dialysis.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
thegrammalady
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« Reply #67 on: January 31, 2009, 08:31:37 PM »

low iron means your anemic, yes i would think you would be tired.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Chris
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« Reply #68 on: February 01, 2009, 04:15:25 AM »

I have a lot of things to complain about Monday. But starting to feel they may admit me for dehydration due to frequent flyer miles to the washroom on top of the other problems I have.. Just have to make sure I get there on time.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kitkatz
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Posts: 17042


« Reply #69 on: February 01, 2009, 08:39:42 AM »

Go for it. Complain all you want. I hope you stay out of Hotel Needles!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Chris
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« Reply #70 on: February 01, 2009, 09:37:58 AM »

I think I might sleep today. Feeling worse after 9 am with nausea. Looked at what I had for fluids from yesterday and thru the night and it wasn't even 24 fluid oz, not good.Don't think it's the flu or cold, I can breathe easy and no cough or sore throat. Temp, have no idea, never did get a new thermometer. Looked at one with speech utput, but never got it. Whoops!

If I sleep, hope it's during the game and it's a sound sleep so I don't hear my dad yelling at the tv like they can hear him.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Wenchie58
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Gender: Female
Posts: 1655


Always carrying the big silly grin!

« Reply #71 on: February 01, 2009, 09:39:36 AM »

Waitaminute!!

Chris....are you telling me that when I yell at the drivers during a NASCAR race they
can't hear me giving them much needed instruction?

I am crushed!!!! :waiting;
Logged

Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
Chris
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******
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Gender: Male
Posts: 9219


WWW
« Reply #72 on: February 01, 2009, 09:46:51 AM »

They are turning left aren't they?

They're just lucky I'm not driving there, I'd be bumben them out of the way, like Jimmy Johnson, Jeff Gordon Waltrip, the Bushes to name a few.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paddbear0000
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2384


Dogs & IHDer's are always glad to see you!

WWW
« Reply #73 on: February 01, 2009, 09:57:44 AM »

If I sleep, hope it's during the game and it's a sound sleep so I don't hear my dad yelling at the tv like they can hear him.

 :rofl; :rofl; :rofl;

Chris, just start chugging water this evening! Maybe you can stay out of the hospital that way. Or better yet, start injecting some water with your old insulin syringes!  ::)
Logged

********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Chris
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Posts: 9219


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« Reply #74 on: February 01, 2009, 10:02:06 AM »

If I sleep, hope it's during the game and it's a sound sleep so I don't hear my dad yelling at the tv like they can hear him.

 :rofl; :rofl; :rofl;

Chris, just start chugging water this evening! Maybe you can stay out of the hospital that way. Or better yet, start injecting some water with your old insulin syringes!  ::)

I have problems drinking water though due to getting sick from it years ago. Ufortunately, I gave my syringes away to my diabetes educator for people who could use them. I remember that's what we did for animals to to hydrate them.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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