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Author Topic: What do you do while you have insomnia?  (Read 11161 times)
Chris
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« on: January 12, 2009, 12:27:53 AM »

Since I have insomnia and don't go to bed till he next day after 10 am,  thought popped in my head.

If you have insomnia, what do you do to deal with it/spend time while not able to sleep?

As you can see, I'm here posting, or in the chat room ith other insomniacs. Otherwise I have the tv on and do other things on the laptop to get old files to new laptop. :waiting; :stressed;

Edited: Fixed subject line-Boxman,Moderator
« Last Edit: January 12, 2009, 02:09:48 PM by boxman55 » Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Joe Paul
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« Reply #1 on: January 12, 2009, 12:41:49 AM »

I go fishing on my Daughters wii. Fishing master world tour is cartoonish, but it does pass the time  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
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Transplant Jan. 8, 2010
Chris
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« Reply #2 on: January 12, 2009, 12:45:31 AM »

My luck, if I put Need For Speed Underground 1 and 2 on Vista, it will have a s%^$ fit. Probably will happen to the 6 games I do have.
« Last Edit: January 12, 2009, 02:45:21 AM by Chris » Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Wattle
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« Reply #3 on: January 12, 2009, 02:42:50 AM »



I have to just lay there attached to my machine. Lately I have become attached to playing Tetris on my daughters DS.   :shy;


My mother-in-law does the ironing!   :urcrazy; :urcrazy;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
MandaMe1986
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« Reply #4 on: January 12, 2009, 08:04:54 AM »

I read or paly Oblivion on my boyfriends ps3
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nursewratchet
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« Reply #5 on: January 12, 2009, 08:22:27 AM »

TV,  Computer, if it's really bad, I go to work.  I have been in the clinic in my PJ's several times.  I leave at 5, when pts come in.  Have to go home to get ready for work!!!! :rofl;
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Vicki
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Always carrying the big silly grin!

« Reply #6 on: January 12, 2009, 02:25:43 PM »

I chat with Chris!  Read, play computer word games, post to IHD and eat!  All while watching
various auctions on tv...they sell EVERYTHING on tv....except kidneys of course, but I will keep checking on that!  :)
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
kitkatz
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« Reply #7 on: January 12, 2009, 03:20:21 PM »

I sometimes have insomnia at the dialysis center fro 8p.m. to 4p.m. Informercials can be entertaining and late night talk show hosts can be funny. I also read a book..
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
paris
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« Reply #8 on: January 12, 2009, 03:59:27 PM »

On really good nights, I chat with Chris, RichardMel and Wenchie!!  I am visiting my sister this week and it is hard to be in another's house anymore.  Last night I was up throwing up at 12, back to bed, up again, back to bed; finally went downstairs and walked around and then read until 4.  All that with Ambien and pain killer.  I think I understand how some people overdose on sleeping pills. It would have been easy to take more just to fall asleep.   Instead, I rely on cable tv and my computer.   :rofl;
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kitkatz
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« Reply #9 on: January 12, 2009, 04:20:17 PM »

Some of my best friends are in my computer late at night!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
MiSSis
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« Reply #10 on: January 12, 2009, 07:43:29 PM »

I have a lot of sleepless nights and find myself spending most of the time on my computer.  Pogo.com is one of my favorite sites for passing the time.  I just can't stand being hooked up to my machine and not being able to sleep.  It just seems to compound the problem.  Insomnia sucks!
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Sunny

« Reply #11 on: January 12, 2009, 08:15:34 PM »

When I can't sleep I read books, use the computer, design my dream house (in my mind),worry, fidget with my legs. I try to be very quiet because my house lay-out makes it easy for my husband or two teens to hear and I don't want to wake them.If things get really bad I take an Ambien or pain killer.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
Chris
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« Reply #12 on: January 12, 2009, 08:15:49 PM »

So far today, well since yesterday without sleep, Laundry, clean house, be on computer. Do I know how to have fun or what? :rofl; :(

As of right now, I feel I can't rest, not tired.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
G-Ma
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« Reply #13 on: January 12, 2009, 08:22:12 PM »

Same here...ambien, benadryl, bed, sleep my 2 hours, walk, read, tv, pc, talk to myself, IHD, bed, sleep 1 hr, 2 if I'm lucky, forget it, get up and do another day.  I'm so overtired but not sleeping.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
mikey07840
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« Reply #14 on: January 12, 2009, 11:22:38 PM »

I watch TV, spoil His Royal Highness King Leon, surf the net. Hope you can get to sleep real soon.
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
MiSSis
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« Reply #15 on: January 13, 2009, 12:49:01 AM »

Since I'm a PD patient, once I hook up I pretty much there to stay for the night.  And if I can't sleep or if I get the fidgets, I start feeling so trapped!  I take Clonazepam most evenings to try to shut down my overactive mind down but some nights it's just not enough.  I haven't even started to dialyze tonight because I'm just too keyed up and I know I won't be able to get to sleep.  I like to read and have a small reading light that doesn't bother my husband too much but it doesn't help if the legs get too restless.  Since it's going to be so darn cold tomorrow and I don't intend to be leaving the house for anything, I guess I have the option of doing manual exchanges for most of the day.  I don't normally like CAPD and prefer using the cycler but I guess it won't be so much of a hassle since I won't be doing much anyway.  I might even decide to take a break from the never-ending laundry and housecleaning.  Does anyone else play games on Pogo?
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"Keep your face to the sunshine and you will not see the shadows."  Helen Keller
paris
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« Reply #16 on: January 13, 2009, 07:54:35 PM »

Pogo is one of my favorite spots when I can't sleep.   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
MIbarra
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Stopping to smell the bluebonnets

« Reply #17 on: January 13, 2009, 09:35:42 PM »

I have been known to clean out the fridge when I can't sleep. Anyone need their's cleaned?

Otherwise, I read or find old movies on TV. Or grade a stack of dusty papers.
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Cadaver transplant April 29, 2007
kitkatz
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« Reply #18 on: January 13, 2009, 09:36:52 PM »

Grading papers at night is dangerous! The lower the scores the more depressed you get.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Wenchie58
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Always carrying the big silly grin!

« Reply #19 on: January 14, 2009, 08:48:39 PM »

I LOVE pogo!  It's got so much variety...there's always something different to play.
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
MiSSis
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« Reply #20 on: January 14, 2009, 10:50:06 PM »

Here I am at 12:40pm and no sleep in sight.  This is getting so aggravating.  Monday night I didn't sleep one bit.  My supplies were to be delivered sometime on Tuesday so when the sun started to come up, I decided I might as well get showered and dressed to wait for my delivery.  I hadn't dialyzed at all that night as I didn't want to be going in and out of the bedroom disturbing my husband.  My delivery was later than normal so once my husband Dan was up and about, he volunteered to wait for the delivery and check to make sure it was all as I had ordered.  Although I use a cycler and it was all set up and ready to go, I ended up using it as more of CAPD exchanges that day, in that I would hook up, drain, fill and unhook again.  I started getting pretty tired about mid-afternoon but decided to try and avoid any napping in the hopes that I'd get a good nights sleep on Tuesday.  I guess I did because I apparently was noisy enough to chase my husband out to the couch about 6am this morning.  He says I was snoring but I know for a fact I DON'T SNORE!!!  It must have been Percy, the cat. 

So for now I'm floating between MYSPACE, IHD and POGO (I'm a badge freak!) ... my three favorite sites to while away the time when I can't sleep.  Tonight I'm going to give sleeping my best shot and try some Tylenol PM.  If that doesn't work, you might find me back here sometime later on.  Hopefully it'll work though.  Too many sleepless nights and I have a tendency to get even crankier than normal.  Just ask my hubby! 

Night all and if you're ever on POGO, feel free to look me up.  My name there is MiSSis54 (go figure!)
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paris
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« Reply #21 on: January 14, 2009, 11:13:04 PM »

Some of us late nighters are in chat right now.  Join us!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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« Reply #22 on: January 15, 2009, 02:52:02 AM »

I finally had 2 hours sleep after 8 Wed morning, but now wide awake still and in chat still. Have to go out again to get things done. Sleep is an elusive act for me.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
MiSSis
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« Reply #23 on: January 15, 2009, 10:31:48 AM »

I've never ventured into the chat area.  Can someone tell me how it's different from here?
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"Keep your face to the sunshine and you will not see the shadows."  Helen Keller
willieandwinnie
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« Reply #24 on: January 15, 2009, 11:17:02 AM »

I'm not even the patient and I have had trouble with insomnia since Willie had he's surgery December 16th. I'm a very light sleeper and that doesn't help any but if I get about 2 hours straight and then wake up, I'm done. My body thinks it is time to get up. I told Len that I am taking a hammer to bed with me tonight.  :Kit n Stik; Myself in the head and maybe get sleep that way.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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