Short Stuff
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« on: January 10, 2009, 07:55:42 PM » |
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Hi all, I've been fighting kidney failure for 18 years. I was one of the lucky ones and was transplanted for 16 years of it. However, recently my transplanted kidney has failed and I am back on hemodialysis. I believe it is harder to be on diaylsis the second time around. The first time I was so young and innoccent and really didn't know what was happening. I am older and hopefully, wiser now, so I am very aware of what is going on and what is to come next. Also with the advanced age, I am not as able to adjust or be as willing to accept my fate. Some people might call that being stubborn. I'd rather think I'm an independent thinker. No matter what it is called, I hate going through this all over again.
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G-Ma
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« Reply #1 on: January 10, 2009, 07:59:51 PM » |
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006 ESRD diagnosed 12/2006 03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading. Gortex 4/07. Started dialysis in ND 5/4/2007 Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest. 3/2008 move to NC to be close to children. 2 Step fistula, 05/08-elevated 06/08, using mid August. Aug 5, 08, trained NxStage and Home on 9/3/2008. Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction. Back to RAI-Latrobe In Center. No home hemo at this time. GOD IS GOOD
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Wenchie58
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« Reply #2 on: January 10, 2009, 08:07:27 PM » |
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"
Right nephrectomy 1963 Diagnosed ESRD 2007 "Listed" summer 2007 Transplant 3/6 match 10/24/08
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Romona
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« Reply #3 on: January 10, 2009, 08:29:42 PM » |
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Rerun
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« Reply #4 on: January 10, 2009, 08:53:21 PM » |
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Short Stuff.... That is why my name is RERUN. I was on dialysis then a transplant for 17 years, then back on hemo. The second time around is like a bad RERUN. I felt that the second time around I wasn't scared of the unknown.... I was scared of the Known. It is better than it was 20 years ago. Somewhat..... the machines are quieter but all the stupid rules get to me. I'm looking forward to your posts.
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Joe Paul
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« Reply #5 on: January 10, 2009, 10:01:04 PM » |
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Welcome Short Stuff, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules" Angels are with us, but don't take GOD for granted Transplant Jan. 8, 2010
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monrein
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« Reply #7 on: January 11, 2009, 04:22:29 AM » |
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Your situation is similar to mine.
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Pyelonephritis (began at 8 mos old) Home haemo 1980-1985 (self-cannulated with 15 gauge sharps) Cadaveric transplant 1985 New upper-arm fistula April 2008 Uldall-Cook catheter inserted May 2008 Haemo-dialysis, self care unit June 2008 (2 1/2 hours X 5 weekly) Self-cannulated, 15 gauge blunts, buttonholes. Living donor transplant (sister-in law Kathy) Feb. 2009 First failed kidney transplant removed Apr. 2009 Second trx doing great so far...all lab values in normal ranges
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willieandwinnie
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« Reply #8 on: January 11, 2009, 05:01:45 AM » |
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Short Stuff. Glad you found us and we are sure you'll find great information and lots of support here. Please post often as you have much to add from your experiences.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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napala turki
Full Member
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Have to plan for living
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« Reply #9 on: January 11, 2009, 05:29:53 AM » |
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Hi..... welcome..
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coorsbob
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I dont live for dialysis, I do dialysis to live.
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« Reply #10 on: January 11, 2009, 05:33:56 AM » |
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aboard short stuff
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Diabetic 1990 Discovered Bladder defect 1995 Bladder Surgery 1995 Retinal Hemorrhage 2005 Eye surgery 2005 ESRD February 2008 Perm-Cath installed March 2008 In-center Hemo March 2008 PD Cath installed July 2008 CA PD June 2008 CC PD November 2008 Fistula placed Sept 2009 Training for Home Dialysis on the NxStage System One January 2010
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Budluv
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« Reply #11 on: January 11, 2009, 05:36:41 AM » |
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Hey Newbie From TN.. sounds like our renal failure unfolded in about the same way... Looking forward to hearing about some of your experiences. Welcome to IHD
-Mike L
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boxman55
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« Reply #12 on: January 11, 2009, 08:59:01 AM » |
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Welcome Short Stuff, Glad you found our site. your experience will be appreciated here. Look forward to your posts
Boxman,Moderator
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"Be the change you wished to be" Started Hemodialysis 8/14/06 Lost lower right leg 5/16/08 due to Diabetes Sister was denied donation to me for medical reasons 1/2008
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MandaMe1986
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« Reply #13 on: January 12, 2009, 08:15:44 AM » |
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Blessed are the poor in spirit, for theres is the kingdom of heaven. Blessed are they who mourn, for they will be comforted. Blessed are the meek, for they will inherit the land. Blessed are they whohunger and thirst for righteousness, for theywill be satisfied. Blessed are the merciful, for they will be shown mercy. Blessed are the clean of heart, for they will see God. Blessed are the peacemakers, for they will be called children of God.
Matthew 5:3-9
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paul.karen
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« Reply #14 on: January 12, 2009, 10:12:29 AM » |
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SS. Sorry to hear what you have to go through. There are a few here in your same shoes. Glad you found us hope to see you often. P&K
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Curiosity killed the cat Satisfaction brought it back
Operation for PD placement 7-14-09 Training for cycler 7-28-09
Started home dialysis using Baxter homechoice 8-7-09
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Bajanne
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« Reply #15 on: January 13, 2009, 01:59:53 PM » |
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Welcome to our community! So sorry that you had that setback. But you will make it through. You have found a wonderful group of caring and sharing people. Much more than a website - we are family This is a great place to vent and rant whenever you need to. At least you know that we really UNDERSTAND! Looking forward to hearing more from you. Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith" I LOVE my IHD family!
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paris
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« Reply #16 on: January 21, 2009, 07:37:32 PM » |
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Glad you joined us. Stubborn or independent?? That describes a lot of us! I am sorry to hear about the second go around. This is a great site for information and for support. I hope you feel at home and post often. We have fun along with giving great support in tough times. Welcome to our family
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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Normie
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Ellie
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« Reply #17 on: January 27, 2009, 07:09:36 PM » |
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Hi Short Stuff and Sorry to hear your kidney failed. Good thing there is dialysis to keep you going. Here you will find support and information. You have a lot to offer here. Best wishes, Normie
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Normie
Kidney damage 4/22/07
Predialysis
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