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Author Topic: New from Pennsylvania  (Read 4483 times)
msleeter
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« on: January 10, 2009, 08:43:47 AM »
Hey Everyone!  I'm 34 years old and up until last summer I was completely healthy.  In October of 2008 I ended up in the hospital for what I thought was just a "normal" sickness and dehydration.  After multiple tests and biopsies I was diagnosed with Goodpasture's Syndrome.  Antibodies were attacking and destroying my kidneys.  I have been on dialysis 3 times a week, plasmapheresis treatments at various times, and chemotherapy treatments once a month for the past 3.5 months. 

Unfortunately when I ended up in the hospital initially, I just started a new job and only worked for 8 days.  I ended up losing my job so now I have been unemployed and just unable to work due to my health, doctors appointments, and multiple hospitalizations.  Looking forward to being part of a community that understands some of the things I am going through.

-Mark
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Hospitalized October 6, 2008 (kidney biopsy October 9)
Diagnosed with Goodpastures Syndrome October 13, 2008
Started on chemotherapy & plasmapheresis October 13, 2008
Started on hemodialysis October 18, 2008 in hospital
Hemodialysis in center October 31, 2008
Re-hospitalized November 19, 2008 for more plasmapheresis treatments
Re-re-hospitalized December 3, 2008 - 2nd kidney biopsy done
Zach
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"Still crazy after all these years."
« Reply #1 on: January 10, 2009, 08:45:39 AM »
Welcome to our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
willieandwinnie
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« Reply #2 on: January 10, 2009, 08:47:35 AM »
:welcomesign; Mark. Well, we are glad you found us. Lots of information and support on this site. I'm sorry to hear about your health issues and job. Have you applied for Social Security? Hope we hear more from you and please take some time to read the older posts, lots of information there also. Again, welcome to the group.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Wenchie58
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Always carrying the big silly grin!
« Reply #3 on: January 10, 2009, 08:50:58 AM »
Hi Mark!  Welcome to the group.  You'll be able to
learn much here or just vent and yell if thats what
you need to do!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
Razman
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« Reply #4 on: January 10, 2009, 09:46:22 AM »
You've had a rough ride for the past few months.  I  hope that you will visit often.  There are lots of people that you can share with.
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Joe Paul
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« Reply #5 on: January 10, 2009, 10:04:49 AM »
Welcome Mark, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
jessup
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Gemma - the tucker monster
« Reply #6 on: January 10, 2009, 10:10:43 AM »
G'day and  :welcomesign;
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wrandym
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Whatever, dude!
« Reply #7 on: January 10, 2009, 10:53:47 AM »
Hello Mark!
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Abyssus abyssum invocat

1982 Diagnosed with Type 1 Diabetes-started on pork insulin
1999 Started showing protein in urine
2000 Retinal issues began-ended with losing sight in both eyes due to retinal detachment-sight returned by surgery
2003 Started on Insulin Pump
2008 November started hemodialysis
cookie2008
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« Reply #8 on: January 10, 2009, 11:04:48 AM »
 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
monrein
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Might as well smile
« Reply #9 on: January 10, 2009, 02:59:59 PM »
 :welcomesign;  you won't ever regret joining this site if it's understanding of what you're going through that you're after.  We get it and then some.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Romona
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« Reply #10 on: January 10, 2009, 03:32:51 PM »
 :welcomesign;
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boxman55
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« Reply #11 on: January 10, 2009, 03:39:59 PM »
Hi Mark, So glad you found our website. Please take some time reading posts and join in alot. There is a lot of experience with kidney failure here and we all can be of some help with any questions you might have. Welcome again.

Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
wrandym
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Whatever, dude!
« Reply #12 on: January 10, 2009, 08:34:06 PM »
Where in PA are you?  I think you might be th closest IHD member to me...
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Abyssus abyssum invocat

1982 Diagnosed with Type 1 Diabetes-started on pork insulin
1999 Started showing protein in urine
2000 Retinal issues began-ended with losing sight in both eyes due to retinal detachment-sight returned by surgery
2003 Started on Insulin Pump
2008 November started hemodialysis
msleeter
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« Reply #13 on: January 11, 2009, 03:39:59 PM »
Thanks everyone for the welcome!
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Hospitalized October 6, 2008 (kidney biopsy October 9)
Diagnosed with Goodpastures Syndrome October 13, 2008
Started on chemotherapy & plasmapheresis October 13, 2008
Started on hemodialysis October 18, 2008 in hospital
Hemodialysis in center October 31, 2008
Re-hospitalized November 19, 2008 for more plasmapheresis treatments
Re-re-hospitalized December 3, 2008 - 2nd kidney biopsy done
David13
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A meow massages the heart.
« Reply #14 on: January 11, 2009, 04:43:07 PM »
Welcome to the site, Mark!  You will find a great deal of information here and will also find an understanding community with which to communitcate.  I hope to see you posting often.
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
Wattle
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« Reply #15 on: January 11, 2009, 04:44:51 PM »
 :waving;  Hi Mark
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
MandaMe1986
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« Reply #16 on: January 12, 2009, 08:22:14 AM »
 :waving; hi
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
paul.karen
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« Reply #17 on: January 12, 2009, 10:10:15 AM »
 :waving;  MArk

Wow so much for a simple sickness huh.
Hope to se you post often.
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #18 on: January 13, 2009, 01:52:05 PM »
Welcome to our community, Mark!  You have definitely come to the right place.  You were really handed a enormous challenge!  But one thing I am always amazed at - the strength of the human spirit in the face of difficulties!  So you are going to make it through this.  As the quote says ' That which does not destroy us, only makes us stronger'.  So welcome to the IHD family  :grouphug;  You are going to find this place a real weapon in your dealing with this renal challenge.  So keep reading and keep posting.  Let us know how you are doing.
Looking forward to hearing from you. :flower;




Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
G-Ma
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« Reply #19 on: January 13, 2009, 01:59:09 PM »
 :welcomesign;   to a great group of people.  Yes, many of us just "found out" our kidneys were failing.  I'm astounded by how many of us on vacation or just time away.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
paris
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« Reply #20 on: January 21, 2009, 07:40:11 PM »
Welcome, Mark.  We are glad you joined. This is an incredible site, full of information and great support.  Ask questions.  We are all in this together.   :grouphug;






paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Normie
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Ellie
« Reply #21 on: January 27, 2009, 07:00:55 PM »
Hi Mark and  :welcomesign;

Glad you found us and joined.  We are here to help each other.

Wow, what a shock that must have been for you.  So sorry that you lost your job.  Amazing isn't it how a job can just dump you when things go wrong. 

How are you handling finances?  With only being on the job for 8 days you couldn't have had insurance.  Kidney problems are bad enough without the money problems.  Hope it is working out for you.

Great information and support here.

Best of luck,
                                  :grouphug;
Normie
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Normie

Kidney damage 4/22/07

Predialysis
msleeter
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« Reply #22 on: January 31, 2009, 06:59:46 PM »
Thanks for the welcome Normie. Finances are getting tight, but doing ok so far. My wife works full time and has survived a recent round of layoffs. Thankfully I am under my wife's insurance so that has been huge in this situation. Medicare just started the beginning of this calendar year for me so that will help. I guess I'm just trying to take things one day at a time. Each day is different in regards to how I feel physically so it keeps things interesting.

-Mark
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Hospitalized October 6, 2008 (kidney biopsy October 9)
Diagnosed with Goodpastures Syndrome October 13, 2008
Started on chemotherapy & plasmapheresis October 13, 2008
Started on hemodialysis October 18, 2008 in hospital
Hemodialysis in center October 31, 2008
Re-hospitalized November 19, 2008 for more plasmapheresis treatments
Re-re-hospitalized December 3, 2008 - 2nd kidney biopsy done
Dan.Larrabee
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Dialysis Dan
« Reply #23 on: January 31, 2009, 11:14:38 PM »
Welcome Mark. I am new as well and have not even posted my story yet. From what I can tell, we have allot of new friends!!
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AKA Dialysis Dan
Feeling the best I can because of Home Hemo
Doing it the best way I can by making it Nocturnal
Sharing it to help everyone feel they best they can
www.youtube.com/dialysisdan
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