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Author Topic: Mom on dialysis  (Read 2534 times)
shan22
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« on: January 08, 2009, 11:23:24 AM »
My mom has been on dialysis for the past 4years. She was born with Brights disease and her kidneys have slowly shut down. She has had 2 kidney transplants and the last 1 lasted 16 years and just failed again in Feb of 2005. Since then her health has slowly deteriorated. Due to her kidney failure she then had congestive heart failure and had heart surgery in 2005 also. Lets just say since then my family and I have had a up hill battle with this horrible disease. We have had countless visits to the Er and she has been in the hospital now more times then I can count. She has Been shocked 2 times due to high potassium and at one point coded. She also has very low blood pressure and due to that passed out the broke her pelvis in 3 places.You name she has been on it, she tried at home hemo which didn't work for her, PT at home-then got an infection in the catheter so she stopped that, she has had more then one graph fail and clot. She now has a temporary cath in her chest and does hemo at the clinic.She has fought though though and is the strongest person I have ever met.I'm just touching the surface of what we all have been through. I guess I have come here for guidance, advise, and support. I also hopefully can offer some advise also due to the fact we have been through just about everything and anything.My mom is only in her early 50's and its hearbreaking to me, to see what she goes through on a daily basis. My Dad and I sit at the hospital and sometimes feel like only people that have to go through this all the time and I know by joining this group I will learn I'm definitely not alone, and get help. It will be nice to meet people that can relate to our situation.
« Last Edit: January 08, 2009, 02:31:38 PM by shan22 » Logged
paul.karen
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« Reply #1 on: January 08, 2009, 11:28:33 AM »
:waving;

Welcome to IHD.
Sounds like you have alot of experience you can share and in return many members here have vast knowledge of different things.  Im pretty new to it all but have learned a TON of stuff from the great people here.
Your mom sounds like a tough lady.  Good for her and it is nice your by her side.
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
willieandwinnie
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« Reply #2 on: January 08, 2009, 11:31:30 AM »
:welcomesign; shan22. Your Mom has been through so much but you are not alone. Read some of the older introduction and you find some amazing people here. We are glad you found us and I'm sure there is much we can learn from you and you from us. Hope to hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Joe Paul
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« Reply #3 on: January 08, 2009, 12:01:13 PM »
Welcome shan22, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
MandaMe1986
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« Reply #4 on: January 08, 2009, 12:23:38 PM »
Welcome, I am new here too.  I have been sick for a long time now, so I feel for your mother.  I hope we find what we need here.  *smile* I have a feeling we will.  Good luck
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
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Matthew 5:3-9
Hilrose
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Me and my sister 09/08
« Reply #5 on: January 08, 2009, 01:13:51 PM »

 :welcomesign;

Please keep us posted

H
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hilrose- hemodialysis patient since April 2007
Transplanted from living donor March 2007 and failed
Kidney rejected August 2008 no longer considering removing
No longer on waiting list 2008

Neverless very happy to be alive!
G-Ma
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« Reply #6 on: January 08, 2009, 01:34:44 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Romona
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« Reply #7 on: January 08, 2009, 02:19:17 PM »
 :welcomesign;
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monrein
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Might as well smile
« Reply #8 on: January 08, 2009, 02:32:15 PM »
 :welcomesign; shan22.  You've definitely found the best place in cyberspace for support and information and it sounds (unfortunately) that you'll have much to pass on to us too.  I'm so sorry that your Mom and your entire family have been having to deal with all the complications and nastiness of ESRD.  She's lucky to have your support and love.   :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
jessup
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« Reply #9 on: January 08, 2009, 03:27:37 PM »
G'day and  :welcomesign;
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Rerun
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Going through life tied to a chair!
« Reply #10 on: January 08, 2009, 04:31:47 PM »
After reading your intro I just can't write much.  I would have quit a long time ago if I were her!!  But, she must love her family very much.  Best of luck to all of you.  I know you will find support here.

                                          :welcomesign;
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Razman
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« Reply #11 on: January 08, 2009, 05:15:51 PM »
Your mom has been through a lot.  I hope that she can join IHD as well.  Please stay in touch.
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Bajanne
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« Reply #12 on: January 13, 2009, 02:11:35 PM »
Welcome to our community!  So sorry to hear all that your mom has had to go through.  We are contemporaries, your mom and I (in my late fifties).  I am glad that she has the support of her family as she goes through these challenges.  Now you also have the support of the IHD family.  :grouphug;  Please take advantage of all this site has to offer.  Keep reading and keep posting. Let us know how your mom is doing.
Looking forward to hearing from you. :flower;



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
paris
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« Reply #13 on: January 21, 2009, 07:33:56 PM »
 :welcomesign;  The love for your Mother is marvelous.  She raised a very compassionate child.  Your love and care means so much to her (I am also your Moms age).  I hope we can be a support for you.  There are many caregivers here and they understand how painful it is to watch someone you love deal with kidney failure. We are all here for you.  Please keep posting.  Take care of yourself during all of this.   :grouphug;




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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Mimi
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For any who do not like me I use - prayer.
« Reply #14 on: January 21, 2009, 08:58:35 PM »
Well I am not your Mother's age, in fact I am 75 years old.  I also have not been on the road your Mom's on yet.  I am not on dialysis yet and am beginning to hope the grim reaper will get
me before I am to that point.  There is much to learn and benefit from at this site.  Hope things will get better for your Mom and tell her she is in my heart and prayers.

Love, Mimi[
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
Normie
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Ellie
« Reply #15 on: January 27, 2009, 06:40:19 PM »
Hi Shan and  :welcomesign;

Sorry to hear what your mom has been through.  She must be a very strong person.  I can only hope I will be as strong as she is when my time comes.  I am still predialysis.  Like Mimi, I hope to live my life to the end before dialysis.  I hope you find the support you need here.  It is wonderful that you are such a support for your mom.
God bless,
Normie       :grouphug;
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Normie

Kidney damage 4/22/07

Predialysis
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