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Topic: Hello all (Read 3551 times)
Budman
Newbie
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Posts: 7
Hello all
«
on:
August 26, 2006, 02:35:37 PM »
Hi my name is Robert and I just recently found out about this site through a friend. I thought I would come here and see what it was all about! Well my story is simple, I was diagnosed with Alports Syndrome at the age of 2, for those of you who don't know what that is, it's basically a constant degeneration of your kidneys. My kidneys failed just after my 18th birthday September 25th 2004 and I have been on in center hemo dialysis ever since. I am currently awaiting a transplant and have been on the list for a year and a half. I have always been in search of a dialysis community where I can share my thoughts and views with people who live with and around MY situation...I look forward to talking with you!
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willieandwinnie
Elite Member
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Posts: 3957
Re: Hello all
«
Reply #1 on:
August 26, 2006, 03:31:43 PM »
Hi Budman
Welcome. You have found the PERFECT site. I have been reading for months, there is so much information here and very helpful members.
willieandwinnie
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"I know there's nothing to it, but I want to know what it is there's nothing to"
goofynina
Member for Life
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Posts: 6429
He is the love of my life......
Re: Hello all
«
Reply #2 on:
August 26, 2006, 04:32:36 PM »
Well, Helloooooo Budman, and Welcome!!! You have come to the perfect place, not only will you find answers to some of those unanswered questions you may have but you will find support from all of us here. We have all become one big ol' happy family and we are all willing to lend an ear or give advice to anyone who needs it. I look forward to hearing more about you and your journey...
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....and i think to myself, what a wonderful world....
www.kidneyoogle.com
Mom3
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Posts: 154
Re: Hello all
«
Reply #3 on:
August 26, 2006, 05:29:19 PM »
Welcome! Hope you will find what you are looking for here and/or at some of the other helpful forums on the web. I've gotten a lot of helpful information...
Mom 3 (PKD pt and mother of hemo pt.)
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Sickness is a hindrance to the body, but not to the will, unless the will consent.
Epictetus
Bajanne
Member for Life
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Posts: 5337
Goofynina and Epoman - Gone But Not Forgotten
Re: Hello all
«
Reply #4 on:
August 26, 2006, 11:34:10 PM »
Welcome to our community. It is the fastest growing on the Internet, so you have lots to read. We cater to every part of the renal failure spectrum. Be sure to post, letting us know what you are going through. Sometimes, we just need to vent, and this is just the place to do it. And since you are a young person, I know you will enjoy our arcade. Have fun!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
Rerun
Member for Life
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Posts: 12242
Going through life tied to a chair!
Re: Hello all
«
Reply #5 on:
August 26, 2006, 11:37:55 PM »
Hi Budlite. Wait a minute that isn't right!
Anyway, hope you enjoy the site. It isn't all about dialysis. There is an "Off-Topic" section that gets pretty interesting sometimes.
Welcome to our site.
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Joe Paul
Elite Member
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Posts: 4841
Re: Hello all
«
Reply #6 on:
August 27, 2006, 01:45:26 AM »
Welcome Budman, glad to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
MattyBoy100
Full Member
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Posts: 264
What's dialysis?
Re: Hello all
«
Reply #7 on:
August 27, 2006, 01:57:10 AM »
Hi Budman,
Me and Shades also have Alports so that makes 4 (including Python) of us! I only found out recently at the age of 34 and have been dialyzing for 2 months now. Welcome to our little community and I hope you find it useful.
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SCOTLAND NO.1
Python
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Posts: 107
Bobby the Python
Re: Hello all
«
Reply #8 on:
August 27, 2006, 05:44:58 AM »
Hi Budman. As Matty said, my son and I have Alports too. Son is on dialysis (has been since he was 15), I'm not - my kidneys seem to be holding up so far. Since we joined this site we don't feel so lonely any more as Alports is comparatively rare.
Big welcome and I'm sure you'll love this site
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Alports Syndrome - A Rare Breed Indeed!!!
Sluff
Member for Life
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Posts: 43869
Re: Hello all
«
Reply #9 on:
August 27, 2006, 07:33:02 AM »
Welcome Budman.
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Zach
Elite Member
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Posts: 4820
"Still crazy after all these years."
Re: Hello all
«
Reply #10 on:
August 27, 2006, 09:03:57 PM »
Hey Robert,
Glad to have you here!
Look forward to your posts.
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment.
I make films.
Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600; Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day.
"Living a life, not an apology."
anja
Sr. Member
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Posts: 708
Re: Hello all
«
Reply #11 on:
August 27, 2006, 11:41:11 PM »
Welcome to the site, Budman! I also was diagnosed with Alports and have been on PD since June '05. Nice to have you join us.
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