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Author Topic: My Transplant Rollercoaster  (Read 14159 times)
TynyWonder
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Calvin
« Reply #25 on: April 10, 2009, 05:40:15 PM »
Wenchie,

I am truly sorry you are having to go through all that mess AGAIN and like others have said, I do hope you continue to keep your sense of humor because sometimes that is all we have to keep our sanity!   Please remember to keep us updated on the "goings on".   :cuddle;
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
del
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del and willowtreewren meet
« Reply #26 on: April 10, 2009, 05:41:24 PM »
 :cuddle; Hope you get those antibodies under control and Kalvin can get back to doing his job!!
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Don't take your organs to heaven.  Heaven knows we need them here.
RichardMEL
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« Reply #27 on: April 10, 2009, 05:57:56 PM »
Aww Wenchie hun you're in my thoughts... sorry to hear about this new ride on the rollercoaster...  :cuddle; :cuddle; :cuddle; :cuddle;

All I can say about the resident/intern whatever... it's just an opinion and I don't think he knows all the facts. Yes, it is true, a high PRA is toing to make another transplant (should you ever need it) much more difficult - I grant that... however "never" is a stupid thing to say - not only in terms of saying it in front of you or to your face - how does he know?

Heck in a few years they might come up with some sort of procedure/medication etc to deal with that issue, or make it easier.

So don't take his "never" as bad news... because like James Bond "Never say Never again!"

 :grouphug; :grouphug; :grouphug; :grouphug;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
jbeany
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Cattitude
« Reply #28 on: April 10, 2009, 06:02:34 PM »
A swift boot in the butt to the idiot resident!

Hang in there, Wenchie!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Wattle
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« Reply #29 on: April 11, 2009, 12:32:23 AM »
 :cuddle;  Hang in there Wenchie girl. Rollercoasters are meant to fun!   :-*


As for the young doctor.... he probably has no idea what he is talking about.   :Kit n Stik;   
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
rose1999
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« Reply #30 on: April 11, 2009, 01:13:57 AM »
Just sending some love and support your way  :cuddle;
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Joe Paul
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« Reply #31 on: April 11, 2009, 02:30:45 AM »
Sorry I missed your thread Wenchie, been wondering what was going on. I hope things settle down, and your kidney stays with you for a long time  :cuddle;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
aharris2
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Volcan Pacaya, Guatemala
« Reply #32 on: April 11, 2009, 08:10:24 AM »
Quote from: Wenchie58 on April 10, 2009, 08:19:16 AM
I am back on HUGE doses of steroids ( here goes the face again.....bye bye wrinkles!!) Gotta find the silver lining in everything, ya know? 

Wenchie58, but I LOVE your new photo. You couldn't be cuter. It is amazing how receptive the ears are to steroids! And the hair, definitely cutting edge!
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
aharris2
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Volcan Pacaya, Guatemala
« Reply #33 on: April 11, 2009, 08:14:20 AM »
Quote from: Wenchie58 on April 10, 2009, 08:19:16 AM
I did get one bit of bad news, kinda sorta by accident.  I go to a teaching hospital...so there are always groups coming through.  One Young doc says....without even thinking...."with all these antibody issues, you would never be allowed another transplant."  Never is such a tough word.

Don't believe him. A. He's a young doc wannabe, B. Times are always achanging!


Quote from: Wenchie58 on April 10, 2009, 08:19:16 AM
A friend said to me...transplants are sometimes like 10 miles of hard road.....I hope I just passed mile marker 9!   :flower;

I hope so too. Best wishes to you and Kalvin.

Alene
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
paris
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« Reply #34 on: April 11, 2009, 06:16:46 PM »
How are you doing tonight, wenchie?  You are always on my mind ---   ;musicalnote;  I know, it sounds like a song!  Sending you a huge hug   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Wenchie58
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Always carrying the big silly grin!
« Reply #35 on: April 11, 2009, 06:50:28 PM »
Thanks to all of you....what a family I have found here!!  I am home today...none the worst for wear but also no better.  I will go in once a week for four weeks for a nice lil dose of Ritxan.  They aren't sure this is going to be the answer...they were honest and told me that I have them stumped.  Ritux is the best option they have and it worked on me in the past, so we will try that route again.  I keep my attitude positive, have faith in my team and generally hope for the best and prepare for the worst.  I am glad I have all of you in my corner....it's like our own lil kidney army...ready to kick ass and take names!   :2thumbsup;

<--------  Yikes.....the steroids DID make my ears grow a bit.  Why oh why can't it work on boobs?     OMG did I type that......it's the drugs I tell ya!!   :rofl;
« Last Edit: April 11, 2009, 06:52:49 PM by Wenchie58 » Logged
Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
Chris
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WWW
« Reply #36 on: April 11, 2009, 07:21:40 PM »
 :rofl; :rofl; :rofl; :rofl; Wenchie.
If only that worked like Viagra for Men.  :rofl; :rofl; :rofl; :rofl;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
RichardMEL
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« Reply #37 on: April 12, 2009, 02:33:11 AM »
Don't worry everyone I checked Wenchie's boobs and they are just fine!!!!  :rofl; :yahoo; :bow;

stumping them just shows you are unique and wonderful Wenchie!!! :)

 :grouphug; :grouphug; :grouphug;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Darthvadar
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« Reply #38 on: April 12, 2009, 04:58:01 AM »
Great to see you home safely, Wenchie...

Not sure how safe you'll REALLY be with Richard on the prowl, but yell if you need help in keeping him in his place... That vet's appointment can still be arranged, you know, Richard!... :rofl;

Lots of love...

God bless you!...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
MIbarra
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Stopping to smell the bluebonnets
« Reply #39 on: April 12, 2009, 06:26:19 AM »
 :boxing;  :boxing; Knock that kidney back into shape! Keeping you and Kalvin in my thoughts.  :cuddle;
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Cadaver transplant April 29, 2007
Wenchie58
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Always carrying the big silly grin!
« Reply #40 on: April 12, 2009, 10:55:53 AM »
RM!!   Shhhhhhhhhhh some things shouldn't be shared!  LOL  You're such a nut!   :rofl;  :rofl;  :rofl;

Vet appointment??  Rut roh...that doesn't sound good!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
Darthvadar
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« Reply #41 on: April 12, 2009, 12:49:24 PM »
Quote from: Wenchie58 on April 11, 2009, 06:50:28 PM
Yikes.....the steroids DID make my ears grow a bit.

But they've given you a great smile too, Wenchie!... :2thumbsup;

Quote from: Wenchie58 on April 12, 2009, 10:55:53 AM
Vet appointment??  Rut roh...that doesn't sound good!


On the plus side, Wenchie... The anaesthetic is pretty good... He won't feel a thing!... :rofl;

Great to see you back!...

God bless...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
kitkatz
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« Reply #42 on: April 15, 2009, 04:01:30 PM »
Wenchie you made me laugh with the "Shut up and go comb your face" comment. I know how THAT is!  :rofl; :rofl; :rofl;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Darthvadar
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« Reply #43 on: April 15, 2009, 04:08:58 PM »
Hi KK...

The 'stop complaining and comb your face' comment came from my mum to me... So typical of her sensitive nature!... :rofl; :rofl; :rofl;...

But the steroids do dreadful things to us... Mine have given me the body of a God... Budda!...

Love...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
kitkatz
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« Reply #44 on: April 15, 2009, 04:12:13 PM »
Sorry Darth, my bad,  it was hilarious. 
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Darthvadar
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« Reply #45 on: April 15, 2009, 04:15:10 PM »
No apology needed KK...

And you're right, it IS funny... She said that AFTER telling me that I reminded her of someone famous... I said "Who?"... She replied "Osama Bin Laden"... :rofl; :rofl; :rofl;... Oh boy... If I had feelings, I'd be hurt!!!...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
kitkatz
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« Reply #46 on: April 15, 2009, 04:17:36 PM »
YEah I bet.  I had a kid mention my beard the other day.   I told him I was on meds and to lay the hell off nicely.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Darthvadar
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« Reply #47 on: April 15, 2009, 04:24:14 PM »
Quote from: kitkatz on April 15, 2009, 04:17:36 PM
YEah I bet.  I had a kid mention my beard the other day.   I told him I was on meds and to lay the hell off nicely.

Ha Ha!!!... What a great story.... Just the kind of thing I get all the time... I had a scratch on my chin ( everything takes much longer to heal and looks much worse when you've EDS, and the dog needs to clip his nails!). Anyway, this precocious little brat yelled at the top of his voice "What happened to that woman's face?". I couldn't resist smiling my sweetest smile and saying "I cut myself shaving!"... The parents were mortified!.... :rofl; :rofl; :rofl;
« Last Edit: April 15, 2009, 04:31:42 PM by Darthvadar » Logged
Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
paris
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« Reply #48 on: April 17, 2009, 03:30:01 PM »
I keep sending good thoughts your way, Wenchie--- can you feel them?   :cuddle;   :cuddle;   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
MandaMe1986
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« Reply #49 on: April 17, 2009, 05:35:26 PM »
Okay so yeah somehow I have missed this post.  Sorry.  But I hope your feeling okay.  I am worried about you. Yesterday you were trying to stay out of the hospital and today I haven't seen you around. You doing alright?  Your in my thoughts.  :cuddle;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
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