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Author Topic: My rant today  (Read 6762 times)
kitkatz
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« on: December 29, 2008, 11:37:41 AM »

 :rant;

Last night as I was leaving the dialysis center, I heard one of the patients complaining about how he has been on the transplant list for six years, and if he had known he would be on it so long he would have told them off long ago.
I shut my mouth because my hubby was there to get me. Here is what me and the big stick wanted to say:

Well lucky him!  On the list and waiting!  Well Buddy, try ten years of this dialysis crap and no end in sight. Try for the transplant list twice and getting turned down both times.  Try working a full time job and then coming to dialysis. Try being here near someone like you who has no head phones and has a TV up loud.  Try to sleep with that racket going on.  Then do dialysis and get two to five hours sleep and then go teach full time! And then know that there is no hope, because you have to do it again and again and again, until the good Lord decides you have had enough!  Come sit in my corner for a few years and see if you like it.  At least you have a glimmer of another treatment in transplant on your horizon of life.  So get off your proverbial complaining ass and call your transplant coordinator and bug her. Get your tests updated. Stop complaining about not getting one.  At least you have a chance.

 :rant;

 :rant;

It hit me last night more than ever that this is never going to end during my lifetime.  Oh shit! Two needles a week for three days for the rest of my living life here on this planet!  God, there better be a prize for me when i get there!
I cannot let myself dwell on these thoughts to long or else I will go crazier than I already am.

 :rant;

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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
paul.karen
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« Reply #1 on: December 29, 2008, 11:54:02 AM »

:-)

That was a rant?

Seemed more like FACTS to me.  You are a brave person with strong convitions.  I admire everyone here at this board.  And the fact that you teach fulltime gives me hope that i will continue to work full time once i start dilaysis in the next month or so.

As for the TV being to loud i can see how that could drive you crazy.  Maybe they should hand out headsets for people watching the TV???  Is there a suggestion box.


Oh and yes there will be a prize for you in heaven.   No more dialysis no more people to drive you crazy.
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
BigSteve
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« Reply #2 on: December 29, 2008, 12:07:45 PM »

Kitkatz: I really admire those of you that dialyize and work. I don't know how you all
do it. The only good thing for me was already being retired before I was forced to
go on dialysis. I don't think I would have the energy to work. I agree about our
fellow patients who blast the TV. I don't want to listen to your stupid show!!
The controllers in our unit didn't have a place for a headset, so you end up
hearing a bunch of programs. TGFPD.
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"I yam what I yam what I yam." Popeye's immortal words.
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paris
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« Reply #3 on: December 29, 2008, 12:23:33 PM »

Kit,  I am sorry for what you have to endure.  People can be so stupid with their words.   If the love we have for you could heal you--it would be a done deal.  I think we all are constantly amazed at how you cope with everything.  You walk through life with grace and kindness.  You could be full of hate, but you have a heart full of love for people.  I am proud to know you.  Keep ranting.  We are always a click away.   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
peleroja
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« Reply #4 on: December 29, 2008, 12:26:18 PM »

I know the feeling Kitkatz.  I've got a moaner (mostly she just cries "help"), but last Friday she began to scream, and I was in a position where every scream went right into my right ear.  I went home with such a vicious headache.  Any possibility of speaking politely to this a-hole, or asking not to be put in the chair next to him?  That's what I did with the screamer.  Hope everything works out for you.
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twirl
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« Reply #5 on: December 29, 2008, 12:31:14 PM »

we need our Katz
so keep your needles three times a week
what in the world would we do without you
we need our Katz
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boxman55
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« Reply #6 on: December 29, 2008, 02:52:34 PM »

your my hero Kit...Boxman
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"Be the change you wished to be"
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David13
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« Reply #7 on: December 29, 2008, 03:18:09 PM »

Kitkatz, for what it is worth, you have my respect and admiration.  I look forward to your posts because they are always full of wisdom and common sense and humor. 

As for the jerk who upset you, life is full of them.  It definitely helps to rant now and then.   ;)

Tell him to get a headset or complain to management.   :Kit n Stik; 
« Last Edit: December 29, 2008, 03:28:08 PM by David13 » Logged

“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
thegrammalady
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« Reply #8 on: December 29, 2008, 03:30:00 PM »

know that you are loved. i can send my 800 pound blue gorilla to sit on that guy if you want.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

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Rerun
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Going through life tied to a chair!

« Reply #9 on: December 29, 2008, 03:42:57 PM »

There will be many jewels in your crown.  Blast your TV..... he will get the message.

                                                :cuddle;
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Deanne
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« Reply #10 on: December 29, 2008, 03:44:04 PM »

I know  :grouphug; don't fix anything. I wish there was something I could do to make it a little better.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
kitkatz
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« Reply #11 on: December 29, 2008, 04:19:01 PM »

know that you are loved. i can send my 800 pound blue gorilla to sit on that guy if you want.


Please send the gorilla.

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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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Sunny

« Reply #12 on: December 29, 2008, 05:11:30 PM »

You are so positive in many ways. I think if you were to tell this insensitive idiot what you told us, maybe he would appreciate his position more. Because you are positive and a good teacher, hearing from you may be just what he needs. You could teach him a few things, no doubt. You are an inspiration.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
kitkatz
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« Reply #13 on: December 29, 2008, 05:13:53 PM »

Just want to whack away with the stick first, then talk later.   :Kit n Stik;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
monrein
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Might as well smile

« Reply #14 on: December 29, 2008, 05:47:31 PM »

What Sunny said.   :cuddle; kit  :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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« Reply #15 on: December 29, 2008, 05:54:07 PM »

Ever thought aabout typing that up and somehow slip it over to him unnoticed or noticed. Or fold it into an airplane throw it at him and hit him in the  :sir ken; hard enough to he has a paper cut on his behind so everytime his arogant butt sits down, he has a pain in his butt to remind him of himself. ;D
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Romona
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« Reply #16 on: December 29, 2008, 06:38:20 PM »

 :grouphug; You are our hero! You have done this for so many years and your rants are rather mild in my opinion. I think that you are wonderful example of someone that is living a busy and productive life. You are a great role model not only to the kids you teach at school, but to others around you.
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Lucinda
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Life is great!

« Reply #17 on: December 29, 2008, 10:17:31 PM »

Hey Kit. You are a star.  How you do it is beyond me completely.  You not only do all the things you noted but you are also sweating it out at the gym.  You are a fantastic role model for anyone pre-dialysis who is nervous about the start of their journey. Sometimes I get overwhelmed with the idea of six nights, eight hours and lots of needles but you are a terrific role model for me because I want to keep working at go to the gym etc etc.  I'm so sorry you can't have a transplant and unfortunately there are a lot of people out there like your dialysis neighbour - Rerun knows all about it.  So many of my family members have been on dialysis, have had transplants and there are pros and cons to both.  I actually think those on dialysis faired better than those who had transplants because they chose not to wait for a perfect, even better, match and they had numerous complications.  I don't begin to understand how you feel as I haven't even started down the road yet and for all my bravado about saying I will never have a transplant, let's just see how I feel about that after 10 years. You are the only rightful owner to that big stick and you start swinging it around honey!!!
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Ang
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« Reply #18 on: December 29, 2008, 10:32:56 PM »

i  reckon  some  people  need a whack  on  the  head  some  days.


yesterday  at  dialysis  a  patient  was  left  sitting  in  his  chair  for  about 5 minutes  as  his

nurse  was  in  the  toilet,when  she  got  back  he  promptly  abused  her.

take  a  chill  pill  DH,

i guess  some  people  believe  the  world  revolves  around them
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live  life  to  the  full  and you won't  die  wondering
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!

« Reply #19 on: December 30, 2008, 09:27:19 AM »

And here's me ranting on about having to now do haemo (on another thread) Kitkatz your determination and bravery are outstanding and an inspiration to us all.
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Ken
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« Reply #20 on: December 30, 2008, 10:40:28 AM »

I love you, Kitkatz!  Meeting you in Vegas was a true highlight!   I admire your strength and perseverance.  And now, in addition to dialysis, work, being a wonderful wife and friend to Victor, you are now going to the gym and getting yourself in shape!  You amaze me!     :clap;  :clap;  :clap; :clap; :clap;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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« Reply #21 on: December 30, 2008, 12:18:05 PM »

My center turned all the sound off of the TVs and we either have earphones or read it in close caption.  Maybe you could suggest that to the lead person.  I work full time too and I am in awe of you and your stamina.  I am a newbee and can't even imagine 10 years of this but living is  my goal so I will do what I have to. Thanks for the ranting.  Its comforting to know I'm not the only one who gets frustrated.
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jbeany
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Cattitude

« Reply #22 on: December 30, 2008, 08:24:43 PM »

 :grouphug;

Go ahead, smack 'em.  We'll watch and applaud.   :clap;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

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« Reply #23 on: December 30, 2008, 10:51:40 PM »


You know how I feel Kit - you are a goddess to me!  :bow;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
pelagia
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« Reply #24 on: December 30, 2008, 11:09:20 PM »

Hero has been used already, but it was the first word I thought of too.  You are an inspiration to me KK and I sure do love how you swing a stick.

 :Kit n Stik; :Kit n Stik; :Kit n Stik; :Kit n Stik; :Kit n Stik; :Kit n Stik; :Kit n Stik;

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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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