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Author Topic: 'Dialysis from the sharp end of the needle' is one year old  (Read 4288 times)
okarol
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« on: December 29, 2008, 12:41:25 AM »

December 26, 2008
DSEN is one year old

By Bill Peckham

I started this blog one year ago. 800 posts later what have I learned?

About blogging I've learned that it is something I like to do - I went back and reread some of the early posts; I think I have gotten better but I can also see that there is still plenty of room to improve. When I started I would write and rewrite a post. Now I try to post my first draft. It doesn't always work out for the best but I like the challenge.

Not all 800 posts are mine. One unexpected development has been having Anna, Peter and Mel contribute (I'd really like other contributors - particularly on PD and/or additional non-US perspectives; anyone interested in writing about the industry). And the commenters - there have been 384 comments. Between contributors, commenters and the dozens of CKD blogs, listservs and discussion boards that I now follow more closely I feel like I know quite a few more people with CKD. It is also clear that more people feel like they know me, which I don't always remember.

I get weekly emails and phone calls from those who suddenly find themselves diagnosed with CKD or are thinking of going to home hemo or want to travel or are having a tough time.  I wish I had better answers. I also wish I had more time. I spend more time reading than writing - you could spend your whole day reading and replying to the discussion boards - but there is just far more data than time to process it. I'm a hobbyist at this; I find it's tough to maintain all the connections that have come out of blogging and/or participating in the online CKD community.

Besides the time I spend following industry and dialysphere developments, I (and Anna) spend a lot of time looking at the stats. The word obsession has been bandied about. I really had no idea how many people would read DSEN when I started this but because of the generous linking from RenalWEB, NephrOnline, HDCN, the discussion boards and other CKD blogs I get a steady stream of traffic, beyond the click throughs from Google and other searches.

I didn't install the Sitemeter traffic counter until February, so I don't have traffic data for DSEN's first month; since February I've had over 45,000 visits. The busiest day was back in June when HR6331 was a developing story and I had 600 visits in one day. I'm not sure how many people have me bookmarked or subscribe to the blog feed but it is more than me and Anna reading the posts. Zach commented earlier this week on one of my first posts - a New Years resolution post of sorts. I'm pretty sure Zach is a faithful reader - maybe he takes notes - but no I didn't quite achieve the New Year's goals I set for myself.

I had it in my head that I could post three times a day, I haven't maintained that pace or even been able to post every day - I think it is inevitable that something will come up trumping the importance of maintaining the blog. I had even less success achieving my goal of a completing a legitimate chin up. By the summer I had to concede that the gym membership was not a good use of money - my attendance was too spotty. Ah well there is always 2009.

http://www.billpeckham.com/from_the_sharp_end_of_the/2008/12/dsen-is-one-year-old.html
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #1 on: December 29, 2008, 12:41:53 AM »


 :yahoo; Well done Bill!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Wattle
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« Reply #2 on: December 29, 2008, 03:12:15 AM »



 :2thumbsup;   
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
aharris2
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Volcan Pacaya, Guatemala

« Reply #3 on: December 29, 2008, 03:24:53 AM »

December 26, 2008
DSEN is one year old

By Bill Peckham

I started this blog one year ago. 800 posts later what have I learned?

About blogging I've learned that it is something I like to do - I went back and reread some of the early posts; I think I have gotten better but I can also see that there is still plenty of room to improve. When I started I would write and rewrite a post. Now I try to post my first draft. It doesn't always work out for the best but I like the challenge.

Not all 800 posts are mine. One unexpected development has been having Anna, Peter and Mel contribute (I'd really like other contributors - particularly on PD and/or additional non-US perspectives; anyone interested in writing about the industry). And the commenters - there have been 384 comments. Between contributors, commenters and the dozens of CKD blogs, listservs and discussion boards that I now follow more closely I feel like I know quite a few more people with CKD. It is also clear that more people feel like they know me, which I don't always remember.

I get weekly emails and phone calls from those who suddenly find themselves diagnosed with CKD or are thinking of going to home hemo or want to travel or are having a tough time.  I wish I had better answers. I also wish I had more time. I spend more time reading than writing - you could spend your whole day reading and replying to the discussion boards - but there is just far more data than time to process it. I'm a hobbyist at this; I find it's tough to maintain all the connections that have come out of blogging and/or participating in the online CKD community.

Besides the time I spend following industry and dialysphere developments, I (and Anna) spend a lot of time looking at the stats. The word obsession has been bandied about. I really had no idea how many people would read DSEN when I started this but because of the generous linking from RenalWEB, NephrOnline, HDCN, the discussion boards and other CKD blogs I get a steady stream of traffic, beyond the click throughs from Google and other searches.

I didn't install the Sitemeter traffic counter until February, so I don't have traffic data for DSEN's first month; since February I've had over 45,000 visits. The busiest day was back in June when HR6331 was a developing story and I had 600 visits in one day. I'm not sure how many people have me bookmarked or subscribe to the blog feed but it is more than me and Anna reading the posts. Zach commented earlier this week on one of my first posts - a New Years resolution post of sorts. I'm pretty sure Zach is a faithful reader - maybe he takes notes - but no I didn't quite achieve the New Year's goals I set for myself.

I had it in my head that I could post three times a day, I haven't maintained that pace or even been able to post every day - I think it is inevitable that something will come up trumping the importance of maintaining the blog. I had even less success achieving my goal of a completing a legitimate chin up. By the summer I had to concede that the gym membership was not a good use of money - my attendance was too spotty. Ah well there is always 2009.

http://www.billpeckham.com/from_the_sharp_end_of_the/2008/12/dsen-is-one-year-old.html

hey bill you forgot to mention IHD in your post, tsk tsk tsk

cheers,

Rolando :waving;



Edited: Fixed quote tag error - okarol/admin
« Last Edit: December 29, 2008, 10:14:05 AM by okarol » Logged

Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
pelagia
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« Reply #4 on: December 29, 2008, 04:29:00 AM »

Happy Birthday to Bill's blog!  :flower;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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« Reply #5 on: December 29, 2008, 04:46:57 AM »

 :clap;
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Zach
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"Still crazy after all these years."

« Reply #6 on: December 29, 2008, 09:27:08 AM »

 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
monrein
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Might as well smile

« Reply #7 on: December 29, 2008, 10:21:10 AM »

Good stuff Bill.  Keep up the good work.  :clap;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kitkatz
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« Reply #8 on: December 29, 2008, 11:47:53 AM »

I see lots of important things crossing the boards about your blog. Congratulations Bill on your first year!  :clap; :bandance;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Bill Peckham
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« Reply #9 on: December 29, 2008, 01:12:07 PM »


hey bill you forgot to mention IHD in your post, tsk tsk tsk


The slight wasn't intentional. I definitely value IHD; I do see traffic coming off IHD links. I appreciate when a post is cross posted even if I don't take the time to comment every time I would wish.

When I think back on my year in blogging links coming from industry sites have been very motivating, I didn't anticipate that. I get to talk to you guys all the time but when the industry sites link I see hits from .gov and the renal companies. People I wouldn't otherwise connect to, maybe they're lurking on IHD and the other boards too ... I don't know

I think IHD is my number one out click by far. In other words I can see what a person clicks on when they navigate away from my blog and the most common next destination is IHD.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
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« Reply #10 on: December 29, 2008, 01:22:12 PM »

You and Epoman could have done great things together.  Both named Bill.

Congratulations on your efforts.    :clap;
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thegrammalady
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« Reply #11 on: December 29, 2008, 02:29:24 PM »

congratulations, a year is a big milepost. think of all the good you are doing.
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......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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Sunny

« Reply #12 on: December 29, 2008, 05:20:30 PM »

I check your blog regularly. Keep up the good work. We are counting on you.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
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