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Author Topic: Writing for my dad...  (Read 3331 times)
p076
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« on: December 26, 2008, 08:41:37 PM »

Hi!  My name is Angela and I've joined this forum on behalf of my father who is dealing with ESRD and diabetic retinopathy.  He hates dialysis for sure - and we hate seeing what it's done to him!  I blame the diet he's maintaining on the most recent bit of damage done to his eyes... he's very nearly blind and we are desperate to find something to help him regain his sight and prevent further loss.  His energy is in the basement and his attitude toward getting better is diminishing.  He's 58 but has a health history that would make most 75 year olds cringe... To be honest, it's my sister, mom and me who are trying to find ways to help him.

He's a Vietnam Vet with Agent Orange exposure and complications (Type 2 Diabetes).  Is anyone else on here in a similar predicament?

My heart goes out to everyone on here dealing with their illnesses and banding together.  It's important and I hope that I can interest my dad in seeing what others are writing.  He currently lives in a small town in NY, but I'm hoping he and my mom will join my husband and me in NC for better health care and more medical options than he currently has.  Wish me luck!

Thanks for reading, and if anyone has any leads about treating diabetes and all its issues in Vets with AO, I'd love to hear them.
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G-Ma
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« Reply #1 on: December 26, 2008, 09:32:28 PM »

 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Joe Paul
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« Reply #2 on: December 26, 2008, 09:55:59 PM »

Welcome Angela, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #3 on: December 26, 2008, 10:05:02 PM »

Welcome to our community, Angela!  We are glad you decided to join us through your concern for your dad.  There is much helpful information here.  But even more than that, this is a wonderful place for support and encouragement.  Really, this is a genuine caring and sharing family.  :grouphug;  I hope your dad joins us at some point.  He and I are contemporaries (I am also 58) and I too have faced lots of health challenges (cancer, diabetes, etc.) But the human spirit is strong.  We will survive.
Please keep reading and keep posting.  Let us know how your dad is doing.



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Chris
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« Reply #4 on: December 26, 2008, 11:26:08 PM »

I have diabetes eye complications also blind in one eye, saved vision in the other, but another surgery is on the way due to a cataract growing. Dialysis did suck for me, it did not work well with my diabetes. As for the diet part have you been to a dietician and learned carbohydrate counting and portion control. That way your father maybe able to have food he loves, but at a smaller portion or at a regular portion but having to avoid eating something else. He probably wouldn't want to go though, but his eyes and other parts of the body are at risk with out of control blood sugars. As for the vision, I'm guessing they already did laser treatments to stop bleeding in back of the eyes? Possibly a vitrectomy. Depending how much vision he has, there maybe some equipment he can use to help him see. Special glasses, a portable video magnifyer, a video magnifyer for reading and self care, then theres computer software to help him see that can read for him (voices are human like now). Since he is a vet, there is probably a program he can get into in your state to get him this equipment for free. My states department of rehab purchased equipment for me which helps me with going back to college and they will even help me when I have a job for any adaptations I may need.
If your interested, I can supply you with links for low vision aids.

He may just need something to do to feel independent again, but his blood sugars need to be in control also to feel better.

And Welcome to the site.
Chris
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
willieandwinnie
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« Reply #5 on: December 27, 2008, 04:21:40 AM »

:welcomesign; Angela. Bless your heart for being there for your Dad. We are a wonderful group for information and support and I know if you ask questions, you'll get answers. Please keep us updated and give your Dad a  :grouphug; from us.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
boxman55
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« Reply #6 on: December 27, 2008, 06:40:21 AM »

Welcome to IHD. we have many members that are willing to help in anyway they can with their knowledge and background. Take some time and post your questions in the forums we have and also use our search engine to see if you can find topics that might help.


Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
cookie2008
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« Reply #7 on: December 27, 2008, 08:10:38 AM »

 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
kellyt
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« Reply #8 on: December 27, 2008, 09:08:28 AM »

 :waving;    Welcome!  You and your family have found the perfect place!  You will find much support and information here.  Read as much as you can and post all your questions.  Someone will be able to assist!  Welcome to the family!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Romona
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« Reply #9 on: December 27, 2008, 10:18:50 AM »

 :welcomesign;
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monrein
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Might as well smile

« Reply #10 on: December 27, 2008, 01:37:38 PM »

 :welcomesign;  Angela.  you will find a lot of information here and I hope that your Dad will eventually choose to come and have a look around for himself.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Wenchie58
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Always carrying the big silly grin!

« Reply #11 on: December 27, 2008, 08:30:35 PM »

Welcome!

Share, learn, vent.  Its a wonderful group!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
coorsbob
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I dont live for dialysis, I do dialysis to live.

« Reply #12 on: December 28, 2008, 11:20:26 AM »

 :welcomesign;
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Diabetic 1990
Discovered Bladder defect 1995
Bladder Surgery 1995
Retinal Hemorrhage 2005
Eye surgery 2005
ESRD February 2008
Perm-Cath installed March 2008
In-center Hemo March 2008
PD Cath installed July 2008
CA PD June 2008
CC PD November 2008
Fistula placed Sept 2009
Training for Home Dialysis on the NxStage System One January 2010
pelagia
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« Reply #13 on: December 28, 2008, 05:35:08 PM »

 :welcomesign; 
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
jessup
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Gemma - the tucker monster

« Reply #14 on: December 28, 2008, 06:09:33 PM »

G'day and  :welcomesign;
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nursewratchet
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"Either do it, or don't do it, don't try"

« Reply #15 on: December 28, 2008, 08:21:02 PM »

So much to benefit from this site.  Welcome, and always ask questions, they'll always be answered.   :flower;
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RN, Facility Administrator 2002 to present
RN, Staff Nurse 1996-2002
Vicki
Ang
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« Reply #16 on: December 29, 2008, 09:58:48 PM »

 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
paris
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« Reply #17 on: December 30, 2008, 09:17:52 AM »

Welcome Angela.   I am about your Dad's age and I can appreciate how worried you are for your Dad.  My kids are dealing with all the worry and I hate it for them.   You Dad is very fortunate to have you.  We love family who takes time to learn all they can about this disease.   None of it is easy.  Depression seems to hit all of us at some point.  Your love and care will help him cope.   Also, there are several of us that live in N.C.   What area are you in?   I am very glad you found us and joined.  We are really supportive of each other and will help any way we can.   Keep asking questions.  Someone will have the answer.    :cuddle;




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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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