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HI
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Topic: HI (Read 2476 times)
dh514
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HI
«
on:
December 17, 2008, 05:20:02 PM »
Hi Everyone,
My name is Debbie and I have been on PD for 56 nights. I have PKD. Although new to dialysis not new to this disease. My dad was diagnosed in 1969 and died within a year of diagnosis before dialysis could begin. My older brother was on pd for eight years and was transplanted and had nine great years. He passed away last year. My other brother has been on hemo for eleven years. I was dianosed in 1992 and waited as long as possible (5%) to start.
I found this website the week I started training and it has been a valuable sorce of information for me.
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monrein
Member for Life
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Might as well smile
Re: HI
«
Reply #1 on:
December 17, 2008, 05:26:43 PM »
Debbie. I truly wish that you'd had less experience with ESRD in your family. So very sad. I look forward to getting to know you through this site.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
jessup
Sr. Member
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Gemma - the tucker monster
Re: HI
«
Reply #2 on:
December 17, 2008, 05:28:41 PM »
G'day and
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nursewratchet
Sr. Member
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Posts: 546
"Either do it, or don't do it, don't try"
Re: HI
«
Reply #3 on:
December 17, 2008, 06:28:50 PM »
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RN, Facility Administrator 2002 to present
RN, Staff Nurse 1996-2002
Vicki
G-Ma
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Posts: 2191
Re: HI
«
Reply #4 on:
December 17, 2008, 06:56:12 PM »
Logged
Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07. Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Zach
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"Still crazy after all these years."
Re: HI
«
Reply #5 on:
December 17, 2008, 07:10:11 PM »
It's real good to have you here!
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment.
I make films.
Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600; Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day.
"Living a life, not an apology."
kellyt
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Posts: 3840
Re: HI
«
Reply #6 on:
December 17, 2008, 07:39:33 PM »
You have had a lot of experience with this disease. God Bless you and your family. I'm sure it's been tough, but I'm also sure you're prepared for what lies ahead. I look forward to getting to know you better! Post often!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!
cookie2008
Full Member
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Posts: 422
Re: HI
«
Reply #7 on:
December 17, 2008, 08:19:19 PM »
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
BRANDY
Full Member
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Re: HI
«
Reply #8 on:
December 17, 2008, 09:01:33 PM »
:welcomesign;debbie
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Adapt and Overcome
Diabetic 1973
2000-clavical surgery
2000-rotor cuff surgery
2001- cervical surgery
2002 cervical surgery
2003 - cervical surgery
2004- lumbar surgery
2004 hysterectomy
2009-fistula placed
Im diabetic with neuropathy, ckd ,bad back bad neck
Rerun
Member for Life
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Posts: 12242
Going through life tied to a chair!
Re: HI
«
Reply #9 on:
December 17, 2008, 10:01:32 PM »
Hi Debbie and welcome to IHD. This site is very informative and humorous at times. I'm glad you arrived. We've been waiting for you.
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Joe Paul
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Re: HI
«
Reply #10 on:
December 17, 2008, 11:07:25 PM »
Welcome Debbie, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willieandwinnie
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Re: HI
«
Reply #11 on:
December 18, 2008, 02:46:39 AM »
Debbie. Lots of information and support to be had on this site. Hope to hear more from you.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
paul.karen
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Re: HI
«
Reply #12 on:
December 18, 2008, 04:24:29 AM »
Debbie welcome..
Glad that you can learn and share your own experiences here.
P&K
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Curiosity killed the cat
Satisfaction brought it back
Operation for PD placement 7-14-09
Training for cycler 7-28-09
Started home dialysis using Baxter homechoice
8-7-09
pelagia
Elite Member
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Posts: 2991
Re: HI
«
Reply #13 on:
December 18, 2008, 07:37:25 PM »
Debbie. I married into a PKD family so I know that feeling of having it all around.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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