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Author Topic: Disaster last night!  (Read 7028 times)
Adam_W
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Me with Baron von Fresenius

« on: December 15, 2008, 09:10:29 PM »

Ok, so I got on the machine last night around 9pm like usual, and the first half of the treatment went fine. Suddenly about half way through, I started feeling a little dry, which I thought was kind of odd because I still had .5L to go till I reached my dry weight. Not too long after that, I get a 715 alarm and everything just shuts down. I noticed immediately that my blood had turned really dark brown (it had it's normal colour less than a minute before), and I had dialysate pouring out of the bottom of the cycler. And then came the crash. Right as I was starting to get myself off the machine (no rinseback with blood looking like that!), my bp plummeted and I had a hard time getting off because I wasn't able to give myself any saline. So I just unhooked, and immediately propped my legs up and reclined back as far as I could go. After a couple minutes I was able to stand up to get my standing bp (97/75, and it started around 140/85) and my weight. I discovered that I was .5 kilos BELOW my dry weight, and that was with only half a tx. So either my machine is malfunctioning, or I got a bad scale reading when I got my pre weight. (Most likely it's the scale). So, I called my on-call nurse, and then NxStage, and everyone has come to the conclusion that it started with a blood leak in the dialyzer, and I may have had dialysate actually enter my blood (good thing I didn't rinse back). They think the dialysate leak may have been over-pressure in the balancing chamber due to the leak in the dialyzer, and that gave me the 715 alarm and stopped the machine. NxStage is having me return the cartridge, and I also found out from my nurse that I was the fourth or fifth patient to have a similar problem yesterday! We think it's a bad lot of cartridges. The lot # is 8057707. I didn't dialyze today, but I'll be using a different lot # tomorrow and hopefully things will go better.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
silverhead
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« Reply #1 on: December 15, 2008, 09:51:00 PM »

Wow Adam, that's scary, glad you caught it when you did, but understand it leaves you a little shaken, We have had so many leaker's recently, we are almost gun shy now, they say they have made some improvements in the carts, but is this part of the new ones?
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Do not argue with an idiot. He will drag you down to his level and beat you with experience.
paris
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« Reply #2 on: December 16, 2008, 05:50:00 AM »

Very scary, but you seem to have handled the situation very well.  Your knowledge really helps you when things go wrong.  Hope today goes much better!   :grouphug;
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twirl
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« Reply #3 on: December 16, 2008, 05:52:35 AM »

 :stressed;    oh Adam, a better day will be today :cheer:
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monrein
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Might as well smile

« Reply #4 on: December 16, 2008, 05:57:34 AM »

Does Nxstage have a higher percentage of problems than other, larger machines?
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paul.karen
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« Reply #5 on: December 16, 2008, 06:02:30 AM »

Scary stuff glad you caught it and didnt take any of that bad blood back.

Do the cartridges say where they are made by any chance??
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
silverhead
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« Reply #6 on: December 16, 2008, 06:19:18 AM »

Mexico.......

Wonder what the testing protocol is.
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Do not argue with an idiot. He will drag you down to his level and beat you with experience.
breezysummerday
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« Reply #7 on: December 16, 2008, 08:49:47 AM »

Silverhead has posted some cartridge/lot numbers in the Leaky Leaky thread by terry3004.
Thank heavens you didn't rinse back.
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
G-Ma
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« Reply #8 on: December 16, 2008, 08:52:34 AM »

Good you came out of that ok.  Those are scarey.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
wrandym
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Whatever, dude!

« Reply #9 on: December 16, 2008, 10:58:33 AM »

Wow!  Glad you had the knowledge to get yourself through :)
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Abyssus abyssum invocat

1982 Diagnosed with Type 1 Diabetes-started on pork insulin
1999 Started showing protein in urine
2000 Retinal issues began-ended with losing sight in both eyes due to retinal detachment-sight returned by surgery
2003 Started on Insulin Pump
2008 November started hemodialysis
Razman
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« Reply #10 on: December 16, 2008, 02:51:44 PM »

Does Nxstage have a higher percentage of problems than other, larger machines?

I had talked to my neph about getting Nxstage and he said he was not satisfied with the specs and  reliability.  I wonder if anyone has ever seen data that compares different machines.
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Sluff
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« Reply #11 on: December 16, 2008, 05:30:58 PM »

I'm just glad you are OK Adam. I think NxStage has been having problems with those cartridges now for awhile. I think it is the same problem anyway.
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pelagia
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« Reply #12 on: December 16, 2008, 08:21:52 PM »

Adam - thank goodness that you were able to handle that situation. Sounds so scary.  :cuddle;

How the heck can a company continue to distribute malfunctioning cartridges if they know they have problems?  Aren't they setting themselves up for a lawsuit?
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
skyedogrocks
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Rob showing off his pot of gold!

« Reply #13 on: December 17, 2008, 05:44:47 AM »

Sorry to hear that Adam.  We also had a blood leak last week with Rob.  He was going fine for an hour and we got the 715 alarm.  I shut it down real quick and restarted but got the same alarm.  We didn't rinse back because it wouldn't let us.  However, Rob's blood didn't change colors, it was still the same.

So annoying because you can't re-prime, you have to give the machine time to dry and re-set.
Does Nxstage have a higher percentage of problems than other, larger machines?

I had talked to my neph about getting Nxstage and he said he was not satisfied with the specs and reliability. I wonder if anyone has ever seen data that compares different machines.

Razman - we haven't had a lot of problems with NxStage and the results for Rob have been amazing.  In March of 2009 he will be on it for 2 years and it's been the best thing for him.
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Wife to Rob who is currently doing Nx Stage Home Hemo Dialysis.

11/17/09 After 4 years on dialysis, Rob received a kidney from our George.  Kidney is working great!  YEAH!!!!
monrein
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Might as well smile

« Reply #14 on: December 17, 2008, 05:56:26 AM »

I'm very curious about why we don't have them in Canada.  I've heard the same as Razman from the few hospital people I've mentioned it to, although we really push home hemo here.  Everything is supplied but they don't seem to like Nxstage.  I wonder if they are more expensive machines?  Curious.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
pelagia
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« Reply #15 on: December 17, 2008, 12:51:15 PM »

Hope everything is going well for you today Adam!
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
David13
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A meow massages the heart.

« Reply #16 on: December 22, 2008, 11:25:20 AM »

Sorry to hear about the difficulties, Adam.  Have you discovered yet if it was the scale or the machine? 
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
kidney4traci
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« Reply #17 on: December 22, 2008, 01:20:57 PM »

Hope you are having better treatments...   :grouphug;
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
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