I made the innocent remark yesterday evening to one of the nurses in my unit asking how long I had left to dialyze. Do you know what he replied? He meant it as a joke and said "about 15 years!".Now, I know this was a joke and he would`ve been offended if I took it the wrong way. But the problem is, it got me thinking about how long I really do have left with or without a transplant, I`m not even on the list at the moment. How long can you last on dialysis for??? I know everyone is different but what`s the longest time anyone has been on dialysis??? I don`t want to be morbid but I also know that most people in the end, pass away from some other illness related to kidney failure, not the kidney failure itself. I`m only 34 and the thought of possibly living until I`m only 50 has me slightly anxious and worried! I think it was a stupid comment to make anyway cos I got enough on my plate without having to worry about long I may or may not live for!!!
There are anecdotes about extraordinary extremes in all areas of life, from the length of people's lives to how many hot dogs they can eat in 10 minutes, but the only sensible statistics to concentrate on if you want to assess what your likely prospects are are the average values for typical people.Professor G. M. Danovitch in his book, "Handbook of Kidney Transplantation" (2001) gives on page 15 the average life expectancies of dialysis patients:For patients ranging in age from 20 to 39, non-diabetic: 20 years; diabetic: 8 yearsFor patients ranging in age from 40 to 59, non-diabetic: 13 years; diabetic: 8 yearsFor patients ranging in age from 60 to 74, non-diabetic: 7 years; diabetic: 5 years.These limited life expectancies are largely due to the fact that dialysis only replaces 10% of normal renal function, so patients remain in a permanently toxic state. Toxic chemicals leached from dialysis tubing, infection from the treatment process, hypotensive crises, etc., also contribute to the shortened life expectancy. Life expectancy is much improved by transplant, with non-diabetics gaining an extra 50% average lifespan, and diabetics under 60 more than doubling their life expectancy.
. Life after dialysis is just frosting. You should by all means be dead! So, just count every day as a day extra.
You know what don't worry, when it's your time, it's your time. You can live a long time on dialysis. It was very unprofessional of the nurse to make a comment like that even in jest. I am 34 and have been on dialysis since 21 with NO transplant and member "Zach" has been on like 24 years, no transplant. Hell we NEVER know when we are going to die, you may die in a car accident totally unrelated to your health. So do me a favor in the future ask your questions here on this site, I have found many nurses and techs are just their for a paycheck and don't really give a crap about you. Granted there are some wonderful techs and nurses out there who really do care and want to make a difference.- EpomanOwner/Admin
I think it was a stupid comment to make anyway cos I got enough on my plate without having to worry about long I may or may not live for!!!
Still here and in my 24th year at aged 30.
[rant] i wish those life expectancy figures would make more of a difference in allowing for funding for you all to get (those of you who want them ) more dialysis treatments. it's ridiculous the funding available for dialysis patients in this country is enough to cover a 10% replacement of renal function. it just makes me angry when so many of the patients i work with suffer great lengths and i wonder if many wouldn't have a longer and happier natural life expectancy with more dialysis. [/end rant]
We'll die when we're meant to and not before.