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Author Topic: Im finally home and ........  (Read 4977 times)
draven
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« on: December 15, 2008, 09:16:57 AM »
The transplant was a success :bandance;

Where do i even begin...

Basically the transplant went well. my sister is fine, she had slight issues with her epidural. but went home after a few days.

a few days after the transplant  my B.P went up and stayed around 160 over 107. Docs found  out that although i was peeing. i was retaining fluid and was overloaded. so they put me on a diuretic. and bp came down.

i would have been home sooner but my wound started to ooze. and docs put me on a antibiotic. its still oozing at the moment but should clear soon.

as far as side effects  from the immunosepressents i developed severe heartburn and my stomach felt on fire when i ate. thanks to cyclosporin.
had to have a gastroscope not fun :'( thats sorted out know with meds.

thanks for all the well wishes and hope to hear from u guys. its good to be home @ IHD
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Romona
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« Reply #1 on: December 15, 2008, 09:19:51 AM »
 :bandance; So happy you're home.
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Chris
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« Reply #2 on: December 15, 2008, 10:01:08 AM »
Congrats on your transplant and finally being able to get home.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #3 on: December 15, 2008, 10:07:33 AM »
 :yahoo; Yippeee! Happy to hear from you - take care - hope you and your sister heal well!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willieandwinnie
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« Reply #4 on: December 15, 2008, 11:23:38 AM »
 :yahoo;  :bandance;  :clap;  :bow; draven. So glad you are home. Now drink plenty and get lots of rest.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile
« Reply #5 on: December 15, 2008, 01:16:53 PM »
That's the good news we've been waiting (not so patiently) to hear.  Give your sister a big hug from me when you next see her.  Living donors rock the most and I'm so glad that your sister is so caring.   :cuddle;
 :bandance; :bandance; :bandance; :bandance; :bandance; :bandance; :bandance; :bandance; :bandance; :bandance; :bandance; :bandance; :bandance; :bandance; :bandance; :bandance; :bandance; :bandance;
« Last Edit: December 15, 2008, 01:28:13 PM by monrein » Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paul.karen
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« Reply #6 on: December 15, 2008, 01:24:46 PM »
 :clap;

More good news :thumbup;

You have a good sister  :beer1; to you both.
And a fast and speedy recovery for you both.
P&K
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
jessup
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Gemma - the tucker monster
« Reply #7 on: December 15, 2008, 02:04:13 PM »
 :clap; :clap; :clap; :clap; :clap;
Yippee mate
Great news
Lots of love and best wishes to you and your blister (aussie slang for sister)

 :beer1; :beer1; :beer1; :beer1; :beer1;
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Sluff
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« Reply #8 on: December 15, 2008, 03:09:14 PM »
Good for you Draven, hope things continue to go well.   :beer1;
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Lori1851
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This is me Lori , Dustin's mom
« Reply #9 on: December 15, 2008, 03:50:21 PM »
 :yahoo; :yahoo; :yahoo; :bandance; :bandance; :bandance;
Congrats Sluff!!!!! I am so glad you are doing great!!!!
God Bless,
Lori/Indiana
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kidney4traci
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« Reply #10 on: December 15, 2008, 03:54:33 PM »
Awesome news draven!!!  Get to healing and peeing!!! :yahoo;
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
paris
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« Reply #11 on: December 15, 2008, 04:57:22 PM »
We have all been worrying and praying for you.   So glad to read your post and heqr things are going well.   Take care, don't push yourself.  Rest and recover.  Sending you love and hugs   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Sunny
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Sunny
« Reply #12 on: December 15, 2008, 04:57:34 PM »
Good for you Draven. Glad things went well. Hope the meds get sorted out soon.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
kitkatz
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« Reply #13 on: December 15, 2008, 05:02:39 PM »
Awesome!  :bandance; :bandance; :bestwishes; :bestwishes; :bestwishes; :bandance; :bandance;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
G-Ma
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« Reply #14 on: December 15, 2008, 05:02:47 PM »
 :cheer: Draven.....happy holidays.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
kimcanada
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« Reply #15 on: December 15, 2008, 05:08:32 PM »
Congrats Draven, I am so happy for you ....Here's to many many years with your new kidney!! :wine;
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donnia
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me and my donor Joyce
« Reply #16 on: December 15, 2008, 07:08:54 PM »
YAY!!!  Congrats!!! 

What kind of antacid do they have you on?  I take protonix and have not had any problems whatsoever since transplant 6 months ago.
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
kellyt
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« Reply #17 on: December 15, 2008, 08:16:28 PM »
Oh Draven!  That's great your home and doing well.   :cheer: :cheer: :cheer: :cheer:     I'm on Pepcid (it was the cheapest co-pay).  I can't wait to hear all about your transplant!  I hope your sister is doing better, too.  The only "problem" I seem to be having is my stomach is still so big!!  Uncomfortably big!  It drives me nuts!  My BP is good, my temp is good, my labs are good, etc.  However, I get out of breath easy because of my stomach being in the way!!  ha ha

I'm glad you're doing well!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Zach
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"Still crazy after all these years."
« Reply #18 on: December 15, 2008, 08:28:09 PM »
Congrats!

And have a couple of Banana Splits for me! 

:beer1;

8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
jbeany
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Cattitude
« Reply #19 on: December 15, 2008, 09:09:51 PM »
 :clap;  :clap;  :clap;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
MiSSis
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« Reply #20 on: December 15, 2008, 10:08:55 PM »
What a wonderful way to start the holidays and an absolutely great way to start the new year!  Congrats to you and a big hug to your wonderful sister.  Keep taking those drugs and drinking that water...keep that new kidney working. 
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"Keep your face to the sunshine and you will not see the shadows."  Helen Keller
Joe Paul
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« Reply #21 on: December 15, 2008, 11:32:48 PM »
Glad to hear you and your sister are doing well  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
rose1999
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« Reply #22 on: December 16, 2008, 05:41:28 AM »
Great news, I hope both you and your sister continue to do well.  :2thumbsup;
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RichardMEL
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« Reply #23 on: December 16, 2008, 05:43:25 AM »
fantastic news draven! We have all been wondering!! So glad it is working out for you!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #24 on: December 16, 2008, 06:44:27 AM »
Great news! :yahoo;  My caring thoughts and prayers are with you and your sister. :2thumbsup;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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