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Author Topic: Hi, I'm Roseann  (Read 2772 times)
Roseann
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« on: December 12, 2008, 05:13:55 PM »
Hello everyone. My name is Roseann. I've got PKD and I've been on dialysis since August. Last month I had both kidneys removed and I'm waiting for a transplant now. I f'ing hate dialysis. The center I go to couldn't care less about me. My treatment is scheduled to begin at 10:30 and not one, single time have they been on time. I could rant and rant but I'm afraid nothing I have to say would be news to anyone here!

best to all, Roseann
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willieandwinnie
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« Reply #1 on: December 12, 2008, 06:14:19 PM »
:welcomesign; Roseann. Rant away, we understand and will give you much support. There's lots of information and great people here from all over the world. We hope to hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile
« Reply #2 on: December 12, 2008, 06:44:37 PM »
This is a great place to rant Roseann.   :welcomesign;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Zach
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"Still crazy after all these years."
« Reply #3 on: December 12, 2008, 07:22:40 PM »
Welcome to our community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #4 on: December 12, 2008, 07:26:10 PM »
Welcome to our community, Roseann!  Glad that you found us.  Feel free to rant as much as you like - here we understand what you are going through.  In my centre, only those in the first shift are more or less guaranteed to go on the machine on time.  The second shift's starting time depends on how the first shift did!  I am second shift which can start anytime  from about 10 a.m. to 1.00 p.m.!  I suppose I am now quite accustomed to that.  Let us know how you are doing.  Keep reading and please keep posting.  you are now part of the IHD family. :grouphug;



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Budluv
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« Reply #5 on: December 12, 2008, 08:04:02 PM »

   Hi Roseann.
   I have remarked at dialysis a few times that I feel like cattle with a dollar sign brand on my hide.  I understand what you mean... By all means, Rant Away.

                                                   m Lewis
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nursewratchet
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"Either do it, or don't do it, don't try"
« Reply #6 on: December 13, 2008, 06:10:29 AM »
Ranting is fine.  It will keep you from going "Postal".  ( my husband is a mailman, he hates that expression) :welcomesign;
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RN, Facility Administrator 2002 to present
RN, Staff Nurse 1996-2002
Vicki
boxman55
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« Reply #7 on: December 13, 2008, 08:20:21 AM »
Welcome to IHD. You have joined a group of well seasoned rantors. So please feel free to to step it up. Sorry to hear about your clinic. is there another in the area you can check out?

Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Romona
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« Reply #8 on: December 13, 2008, 10:06:21 AM »
 :welcomesign;
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kellyt
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« Reply #9 on: December 13, 2008, 03:35:36 PM »
 :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
jessup
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Gemma - the tucker monster
« Reply #10 on: December 13, 2008, 03:52:31 PM »
G'day and  :welcomesign;
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Joe Paul
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« Reply #11 on: December 13, 2008, 10:31:39 PM »
Welcome Roseann, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
G-Ma
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« Reply #12 on: December 14, 2008, 12:30:38 AM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
paris
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« Reply #13 on: December 15, 2008, 04:17:30 PM »
Hi Roseann, Welcome to our happy family!   Go ahead and rant!  We all deserve to and this is just the place to do it.  You will find lots of support here.  And great information.   I am glad you joined.  Please post often.   :grouphug;




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kimcanada
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WWW
« Reply #14 on: December 15, 2008, 06:10:54 PM »
 :welcomesign;
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RichardMEL
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« Reply #15 on: December 16, 2008, 05:11:20 AM »
G'day Roseann! Rant away!! That's what we're for... (well we also organise dates, hand out advice and are available for weddings, parties and bamitzvahs!  :rofl;)

Welcome to our little part of the world. Hopefully dialysis can improve for you (and your center too!!)

 :grouphug;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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