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Author Topic: Sorry to have disappeared!  (Read 11998 times)
Falkenbach
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« on: December 07, 2008, 10:58:55 PM »
I feel a little guilty actually - disappearing from a kidney-failure forum is a bit inconsiderate, making people wonder what is happening to you!

All is well for me. Transplant is still going strong. I've had some more surgery - parathyroidectomy, kind of a little walk in the park really, in comparison! Or maybe I am just tougher now. I'll say it again, without fear or guilt this time - I wouldn't change what I've been through, it's made me who I am. I'm tougher, smarter, calmer and more understanding than I ever was before.

I am still working in my medical transcription job, and will hopefully be doing the same type of work from home next year, so I can avoid hours of travel each day.

Enough about me - I hope everyone at IHD is doing well, esp the regulars I was getting to know so well!
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charee
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« Reply #1 on: December 08, 2008, 12:36:10 AM »
Hi Louise Good to see you back i have been wondering where you were glad things are going good for you. My sister donated a kidney to me 6 weeks ago we are living in the big smoke (Sydney) for 3 months, I feel really good creatine just going up and down hopefully it will settle down soon so we can get back home see you around maybe in chat one day

Charee
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #2 on: December 08, 2008, 02:06:36 AM »
Since you are back, it is all forgiven!! :cuddle;   Now please don't try that disappearing act on us again!   It is great to hear that things are going quite well with you.  Expect to see you back posting as before.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
monrein
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Might as well smile
« Reply #3 on: December 08, 2008, 05:04:01 AM »
Nice to see you here again.  I'm of course especially happy to hear that your trx is doing well.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
boxman55
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« Reply #4 on: December 08, 2008, 05:11:31 AM »
Great to hear from you. I am so glad your transplant is doing well. Stick around we can all learn some from you
Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
rose1999
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« Reply #5 on: December 08, 2008, 09:59:11 AM »
I'm so happy that all is going well for you.  Please don't go away again, we miss you and I really miss your dog, I just love that avatar!!
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thegrammalady
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« Reply #6 on: December 08, 2008, 10:40:15 AM »
glad you decided to check in it's good to hear that you are doing well.
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
kellyt
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« Reply #7 on: December 08, 2008, 02:31:51 PM »
 :welcomesign; back!   Glad you're doing good!     :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Chris
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« Reply #8 on: December 08, 2008, 04:00:01 PM »
Welcome Back!
And a new picture to boot in your avitar.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sluff
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« Reply #9 on: December 08, 2008, 04:15:42 PM »
Great to hear from you. :2thumbsup;
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kidney4traci
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« Reply #10 on: December 08, 2008, 06:33:35 PM »
 :waving;  Hi there!  Glad to hear from you!  Happy all is well with your new kidney!!
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
Falkenbach
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« Reply #11 on: December 09, 2008, 12:03:04 AM »
Quote from: charee on December 08, 2008, 12:36:10 AM
My sister donated a kidney to me 6 weeks ago

OMG Charee, it's all done and dusted (well not dusted, exactly, it never is for kidney patients, but you know what I mean!). That's fantastic!
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kitkatz
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« Reply #12 on: December 10, 2008, 06:33:32 AM »
Glad you are back. Now don't go away too soon!  :cheer:
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Slywalker
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« Reply #13 on: December 10, 2008, 09:51:22 AM »
 :welcomesign;  back.  Glad to hear the transplant is going strong. 

Sandyb

 :bunny: :bunny:
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xtrememoosetrax
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« Reply #14 on: December 10, 2008, 02:43:17 PM »
Hi Cycobully.  Glad you're back!  Say, I seem to remember that you were having trouble with pain (muscles? joints? can't remember the details).  Is it better now?  What happened with that?
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Living donor to friend via 3-way paired exchange on July 30, 2008.

www.paireddonation.org
www.caringbridge.org/visit/marthahansen
Falkenbach
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« Reply #15 on: December 10, 2008, 09:50:04 PM »
Would you believe, my joints are almost normal now!! It only took over 12 months, and the removal of 3.5 out of 4 parathyroid glands. At first, after the surgery, there were no results. My joints still hurt and I was just in constant tears about it, because even the doctors looked baffled as to why there hadn't been any change. Anyway, I am off the daily painkillers all together now. I don't even carry emergency Panadol in my bag or anything, anymore.

I still can't run or jump like a "normal" person, so I'm a bit limited in the exercise field, but heck I'M ALMOST NORMAL.  :yahoo;  :yahoo;
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xtrememoosetrax
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« Reply #16 on: December 11, 2008, 07:53:36 AM »
Wow, that's great! :2thumbsup;  So glad to hear you're feeling better. :flower;
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Living donor to friend via 3-way paired exchange on July 30, 2008.

www.paireddonation.org
www.caringbridge.org/visit/marthahansen
Falkenbach
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« Reply #17 on: December 20, 2008, 04:24:18 PM »
Yeah, now I have no excuse not to EXERCISE!  :boxing;
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paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #18 on: December 20, 2008, 08:57:41 PM »
You should try aquatic exercise. It puts absolutely no stress on the joints so you remain pain free.
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Mimi
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« Reply #19 on: December 20, 2008, 09:29:58 PM »
Welcome back Cycobully.  Good to hear life has been good to you.  Stay in touch now,
you hear?

LoveMimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #20 on: December 20, 2008, 11:52:09 PM »
 :2thumbsup; Hope you and your dad have a great holiday! Welcome back!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Falkenbach
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« Reply #21 on: January 06, 2009, 01:46:06 AM »
Quote from: paddbear0000 on December 20, 2008, 08:57:41 PM
You should try aquatic exercise. It puts absolutely no stress on the joints so you remain pain free.

That was the plan - there's a pool right near my work. But I just haven't gotten around to it! Slack, hey?!
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Chris
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« Reply #22 on: January 09, 2009, 02:50:33 AM »
Aqua therapy does help. Been doing that for the last year. Just hate doing the treadmill in the water, it doesn't stop like a regular treadmill. It just jolts to a stop, doesn't slow down first.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #23 on: January 09, 2009, 12:30:49 PM »
Well, at least you won't get slammed into a wall!   ;D
Logged
********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Chris
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« Reply #24 on: January 09, 2009, 07:16:56 PM »
That's still a possibility since it is against the wall in the pool. My luck, it will happen and then ned more therapy.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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