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Author Topic: Gotta newbie here  (Read 2949 times)
desperadosgirl
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« on: December 04, 2008, 01:23:16 PM »
My fiance' is now on peritoneal, looking forward to start using the machine. We go tomorrow for his kt/v and pet. He was a transplant receipient 20 years ago. Failed in Aug. started Hemo. They never seemed to figure out his dry weight so the weekends were rough. Just about every Monday morning we were in emergency room with him having severe cramps, blood pressure sky high, not breathing very well, mind you, he has congestive heart failure and the excess water was not helping that problem. Aug 20th I almost lost him. Back in ER this time breathing was worse, they had to ventilate him, he was uncontrollable. Blood work came back, they discovered he had had a heart attack 7-10 days prior. 3 blockages in the "widow" maker vein. Those are fixed now no luck on the backside of his heart, it is completely blocked. Anyway, they finally have his dry weight figured out and after 2 weeks in the hospital, we are keeping everything in control with the peritoneal. It has definately brought the stress level down on both of our parts. I have been off of work since this all has happened, I go back Monday though and I am dreading it cause I won't be here to help him out if needed
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G-Ma
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« Reply #1 on: December 04, 2008, 01:33:53 PM »
 :welcomesign;  So glad you found this site.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Joe Paul
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« Reply #2 on: December 04, 2008, 02:03:22 PM »
Welcome desperadosgirl , good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #3 on: December 04, 2008, 02:15:40 PM »
Welcome to our community!   You are part of a wonderful sub-community here - those who are here because of a loved one.  I particularly appreciate all of you who come here because of your concern and love.  There is much here - information and lots of support.  There is always someone who understands exactly what you are going through.  So keep reading, and keep posting!  You are part of our family now!  :grouphug;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
monrein
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Might as well smile
« Reply #4 on: December 04, 2008, 02:50:18 PM »
 :welcomesign;  I hope you'll post often with questions or experiences to share with us.  Your fiance is lucky to have your support and caring in his life.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
jessup
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Gemma - the tucker monster
« Reply #5 on: December 04, 2008, 02:51:42 PM »
G'day and  :welcomesign;
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boxman55
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« Reply #6 on: December 04, 2008, 03:13:17 PM »
Welcome to IHD. being supportive and a caregiver has to be tough on you. We have alot of caregivers on the site that you can draw information from. I look forward to your posts

Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
cookie2008
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« Reply #7 on: December 04, 2008, 04:09:05 PM »
 :welcomesign;
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Started PD in 11/07
Started Hemo in 7/08
Started NxStage 5/09
kellyt
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« Reply #8 on: December 04, 2008, 04:30:36 PM »
:waving;   Did your fiance receive a living or cadaver donor?
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
desperadosgirl
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« Reply #9 on: December 04, 2008, 07:44:58 PM »
Hey guys.. Thanks for the warm welcome :clap; Greatly appreciated
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desperadosgirl
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« Reply #10 on: December 04, 2008, 07:51:29 PM »
Quote from: kellyt on December 04, 2008, 04:30:36 PM
:waving;   Did your fiance receive a living or cadaver donor?
He recieved a cadaver donor. He was very lucky to have it last for so long.
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willieandwinnie
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« Reply #11 on: December 05, 2008, 09:58:58 AM »
 :welcomesign; desperadosgirl. You have found the perfect site for information and support. Post often and have your fiance join us also. We are a great group.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
pelagia
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« Reply #12 on: December 07, 2008, 04:53:46 PM »
 :welcomesign;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Ang
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« Reply #13 on: December 07, 2008, 04:58:40 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
Normie
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Ellie
« Reply #14 on: December 11, 2008, 05:03:54 PM »
 :welcomesign;

Hope things go better for you now.
 
You have found a great site for help.

Welcome to the family.   :grouphug;

Normie
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Normie

Kidney damage 4/22/07

Predialysis
Romona
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« Reply #15 on: December 11, 2008, 06:42:32 PM »
 :welcomesign;
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