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Author Topic: New Dialysis Partner  (Read 3244 times)
willowtreewren
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My two beautifull granddaughters

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« on: December 01, 2008, 06:16:49 PM »
Hi,
I just found this site last night and had to admit that I cried reading through some of the posts. Since I did not know about this site while we were training, I did my training journal at: http://willowtreewren.livejournal.com/

My journaling had two purposes. The first was to try to give "outsiders" an understanding of how complicated the process is. Secondly, I wanted to document tips that we had learned so that they could be shared with others. I wish I had known about this site at the beginning.

Most of the posts are NxStage dialysis related, with a few that are just normal stuff.

I am the partner for my husband's dialysis. He began in-center dialysis in June of this year and transferred to NxStage in August. His sister has been on NxStage for about 2 years. They both have PKD, as does our 34 year old daughter. Unfortunately, her disease affects her liver, too. We are rooting for a breakthrough in time to help her.

I'm looking forward to the community here.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
boxman55
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« Reply #1 on: December 01, 2008, 06:32:17 PM »
Welcome Aleta, Glad you found us. We have a forum for nxstage patients and a lot others. Look forward to you participating here on IHD


Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
monrein
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Might as well smile
« Reply #2 on: December 01, 2008, 06:36:22 PM »
 :welcomesign;   I'm so glad you found us too Aleta and I look forward to getting to know you better through this site.  Such a terrific group of people.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
jessup
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Gemma - the tucker monster
« Reply #3 on: December 01, 2008, 06:37:44 PM »
G'day and  :welcomesign;

I started to read your training journal - great stuff - will continue reading it later

Cheers
 :beer1;
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G-Ma
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« Reply #4 on: December 01, 2008, 07:03:00 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
annabanana
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« Reply #5 on: December 01, 2008, 07:26:53 PM »
 :welcomesign;
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
jbeany
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Cattitude
« Reply #6 on: December 01, 2008, 08:34:43 PM »
Welcome!  Always glad to have more NxStage people on here!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Ang
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« Reply #7 on: December 01, 2008, 09:51:31 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
Joe Paul
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« Reply #8 on: December 01, 2008, 10:51:11 PM »
Welcome Aleta, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willieandwinnie
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« Reply #9 on: December 02, 2008, 03:24:17 AM »
:welcomesign; Aleta. Glad you found us and we hope to hear more from you. I too was a dialysis partner, but not NxStage, there are so many caring people here all you have to do is ask and we will answer.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #10 on: December 02, 2008, 10:16:56 PM »
Welcome to our community, Aleta!!  It is really great that you finally found us.  We have been waiting for you!!   I appreciate it very much when they are those that join us because of their love and concern for a loved one.  There is quite a group of caregivers, partners and loved one here.  You must realize that this is more than just a forum - it's a family  :grouphug; and you are now a family member.  the founder of this website, Epoman, was an advocate for NxStage.  Sorry you didn't get to meet him, but his posts here will make him very alive to you! 
There is lots going on here - information, support, and even fun!  So keep reading, and above all, keep posting!


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Razman
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« Reply #11 on: December 03, 2008, 04:28:03 PM »
Its great that you joined and trust that you will be  visiting often.  Its great to hear from those that support others.
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petey
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« Reply #12 on: December 03, 2008, 04:55:43 PM »
Hello, willowtree!  I'm a caregiver, too (NxStage -- 16 months now! -- to my husband Marvin).  Glad you found us.  Come often and share much.
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pelagia
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« Reply #13 on: January 03, 2009, 10:11:37 PM »
Kind of a late welcome, but better late than never.  Happy to have you posting.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
paris
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« Reply #14 on: January 04, 2009, 05:20:53 PM »
 :welcomesign;  Glad you joined us.  You made a wonderful introduction.  Your family has had more than their share of worries.  I pray, also, that a breakthrough will be made.  We live with a lot of hope on this site.   We love caregivers.  They are heros in our lives.  Looking forward to hearing more of your story.   :grouphug;






paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Hilrose
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Me and my sister 09/08
« Reply #15 on: January 05, 2009, 08:58:06 AM »
 :welcomesign;

Looking forward to more post...
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hilrose- hemodialysis patient since April 2007
Transplanted from living donor March 2007 and failed
Kidney rejected August 2008 no longer considering removing
No longer on waiting list 2008

Neverless very happy to be alive!
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