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Author Topic: Who can eat at your clinic while dialyzing?  (Read 72869 times)
TynyWonder
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Calvin

« Reply #100 on: August 29, 2008, 09:19:23 AM »

Quote
I use my D time to get the remaining hours of sleep (and to kill time).

I sooooo wish I could sleep!!!!  I use to be able to sleep when I was taking Xanax but I no longer take them (which is a GOOD thing) but now I can't sleep during dialysis. 





EDITED:Fixed quote tag error-kitkatz,Moderator
« Last Edit: August 09, 2009, 12:19:07 PM by kitkatz » Logged

Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
monrein
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Might as well smile

« Reply #101 on: August 29, 2008, 09:26:28 AM »

I try NOT to sleep during D because I'd be up all night if I did.  I'm still awake quite a bit at nights.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
mikey07840
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Her royal highness Queen Ruth on her throne, RIP

« Reply #102 on: August 29, 2008, 05:04:44 PM »

I can now eat while dialyzing! Queen Ruth lets me do whatever I want in her palace. (I do home CCPD.)

Queen Ruth sends all of you her royal love.  :waving;
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
kitkatz
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« Reply #103 on: August 29, 2008, 05:07:50 PM »

I was told by the nocturnal nurse that of course we let you eat here. It is dinner time for most of these people.  So my cup and ice and snack still are tagging along to dialysis.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
pamster42000
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« Reply #104 on: July 08, 2009, 05:59:09 PM »

My daughter's unit allowed food and drinks. I even brought her Long John's Silvers  and Burger King meals sometimes for a special treat. I was always told whatever you eat at dialysis will be clean out. I brought the food early in the treatment. The nurses never said anything and I would assume they would if they had a concern. Sarah usually just chewed on ice and didn't have a drink. She was always good about her fluid intake.
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RichardMEL
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« Reply #105 on: July 08, 2009, 06:37:01 PM »

Our unit has a staff tea room so they do their eating away from us mostly.. though often they drink at the nurses station, that's ok - they're human and work 8 or 12 hour shifts! I have no problem with them grabbing a coffee or drinking from a water bottle.

Sometimes people will bring in cake for a birthday or something and they OK chocolate or whatever - specially in the first hours of a run given the machine will leach out the extra potassium, so that's sweet.

I can't think the last time anyone had greasy food or something extra smelly in. Sometimes an in patient will have their hot dinner delivered and it smells good (well it is hospital food so the smell is probably the only good thing about it!!  :rofl;) but sometimes gets me going.

Of course while waiting for lunch I often play a video of Iron Chef and the nurses come watch, so I guess I'm kind of guilty too!!!  :rofl;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
dwcrawford
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Getting the heck out of town.

« Reply #106 on: July 08, 2009, 06:45:03 PM »

Patients can eat anything or anytime.  Staff cannot eat except in their break room.  Crazy Roy's mom brings donuts.  She passes them out to patients nearby and takes the rest to the nurses lounge.  It the only way she stops people from exterminating Roy.  Oh yea, the ambulance people dropped him beside his chair when they were trying to lift him.  That's awful.

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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
YLGuy
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« Reply #107 on: July 08, 2009, 06:53:14 PM »

My last center (RAI) let people eat just about anything.  I just switched to a DaVita center today.  I saw someone eating a protein bar and drinking a Nepro.  I had my little bottle of water and pack of chewing gum sitting next to me and nobody said anything. 
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kidneyless_In_PA
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WWW
« Reply #108 on: July 24, 2009, 09:54:05 AM »

My clinic told us we are the only ones in Pennsylvania that allows the patients to eat while on the machine. Medicare is trying to make all dialysis units in Pennsylvania non eating ones but our Dr.s thank Goodness is letting us till Medicare makes them stop us. A lot of us are Diabetics and have to eat.. I know I am diabetic and have problems with my sugar going to low like 30. So I for one am gonna have a problem. Now I bring my diet a & w rootbeer and usually a sandwich and some crackers. I guess it will go non eating soon enough though. :popcorn;
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Busy 3 times a week and the other 4 days so cold and weak etc.
Wayne
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Martin (the snorer) & Mack (cat w/renal failure)

« Reply #109 on: August 04, 2009, 12:25:11 AM »

At my center, there are more people eating and drinking than aren't.  I always have a water or mountain dew + lunch with me.
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Happily Married for 11 Wonderful Years!!! :-)
3/01 diagnosed with fsgs
7/07 listed
4/08 fistula surgery
10/08 pd catheter placed
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2/09 started hemo
mikey07840
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Her royal highness Queen Ruth on her throne, RIP

« Reply #110 on: August 04, 2009, 02:24:12 AM »

I am back to in center hemodialysis. This means no eating on the treatment floor. This is a rule from the NJ Department of Health and Senior Services, not my center. The rule applies everywhere in the state. I make sure to eat before I do my run.
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
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« Reply #111 on: August 04, 2009, 05:34:50 AM »

when I taught school I had to be at dialysis 30 minutes after I left school and I was in treatment until after 9 pm -- we could eat then --- I don't think it is fair for patients who work all day and stay there so late --- the time on dialysis crawls by and being hungry makes the time longer
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Rerun
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« Reply #112 on: August 04, 2009, 06:05:55 AM »

I'll say it again ---- The reason people choke is because they are trying to hide and sneek food.  I see nothing wrong with a snack.
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dwcrawford
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Getting the heck out of town.

« Reply #113 on: August 04, 2009, 07:30:20 AM »

They are in the process of changing a bunch of rules in my center.  Food hasn't been mentioned so far.  I just wish people wouldn't bring food with strong odors.  Fried chicken from Popeyes can smell good at times but the grease smell doesn't go too well with my blood.
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
billybags
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« Reply #114 on: August 09, 2009, 11:26:12 AM »

My husband dialysis's ( is that spelt right)first thing in the morning,7.45am he is always offered toast and 2 cups of tea. :thumbup;
Just wondering how many people here can eat while they are dialyzing. This is a prickly issue with me. My clinic is strictly anti-eat, anti-hard candy, anti-gum. I'm not talking about eating a 3 course dinner. I'd just luv to be able to chew a little gum or suck on a root beer barrell.

Please give me some input here.



EDITED: Topic moved to proper section "Dialysis: Centers" - Epoman, Admin/Owner
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kitkatz
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« Reply #115 on: August 09, 2009, 12:18:10 PM »

I bring a snack, but have not been eating it lately.  I usually have eaten before I arrive at D.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
dwcrawford
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Getting the heck out of town.

« Reply #116 on: August 09, 2009, 12:22:50 PM »

I can eat anything I can find.  Tomorrow I'm taking a can of "Mac and cheese and spam"
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
kitkatz
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« Reply #117 on: August 09, 2009, 10:05:55 PM »

DW--- EWWWWWWW!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
sico
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wheres my bike gone?

« Reply #118 on: August 11, 2009, 05:59:16 AM »

When i was on dialysis in centre i cant remember anybody taking food in. I think because we got good food there, nice sandwiches, sweet biscuts, tea, coffee, juice or flavoured milk. The sandwiches were great, i used to love the egg and lettuce. ;D
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Brad      "Got myself a one way ticket, going the wrong way" - Bon Scott

6/11/08 diagnosed with ESRF, dialysis that day

HD and PD

8th of April 2010 Live kidney transplant from my father.
jpearce
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« Reply #119 on: August 11, 2009, 06:13:44 AM »

I used to bring grapes with me. Our Clinic gives us tea or juice and social cookies (yuck) They will give us a sandwich if we have low BP after the run. However I was told not to eat on a run b/c it makes the blood rush to your belly and it'll cause you to be sick ( whether it's true beats me) They used to have ice delivered to the unit but they stopped that about a year ago. We have to bring our own ice. :urcrazy;
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diagnosed lupus - June 2007
Lupus nephritis resulting in dialysis- Jan 2008
On the waiting list for transplant May 2009
monrein
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Might as well smile

« Reply #120 on: August 11, 2009, 08:14:37 AM »

jp, would the NB Kidney Foundation buy an ice machine for your unit?  Just wondering? 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
jpearce
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« Reply #121 on: August 11, 2009, 04:36:28 PM »

I wrote to them today, hopefully they will get back to me.
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diagnosed lupus - June 2007
Lupus nephritis resulting in dialysis- Jan 2008
On the waiting list for transplant May 2009
dwcrawford
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Getting the heck out of town.

« Reply #122 on: October 03, 2009, 05:49:28 PM »

anybody who has food or who has a bud who'll share his food...
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Come to think of it, nothing is funny anymore.

Nothing that I post here is intended for fact but rather for exploration into my personal thought processes.  Any slight, use of words with multiple connotations or other percieved insults are totally unintended.  I reserve my insults for private.
del
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del and willowtreewren meet

« Reply #123 on: October 03, 2009, 06:39:57 PM »

Hubby always had a snack when he was in center. Never had a problem with blood pressure.  Actually he found that it would keep his B/P from dropping.  Personally I think it is cruel to expect a person to sit for 3 or 4 hours and have nothing to eat or drink if they want it as long as it is something renal friendly.
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Don't take your organs to heaven.  Heaven knows we need them here.
nick
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here iam still skateboarding even on dialysis

« Reply #124 on: October 03, 2009, 08:14:12 PM »

in my clinic they allow eating while in dialysis i kknow everyone on dialysis after 2 1/2 hrs we feel so hungry the biscuit is not enough so i ask the janitor to buy me a a sandwich from mcdonalds, and a cup of ice only thats all i feel okay, on my 2nd clinic befor i saw just like they are on picnic they bring there bag full of food most of the clinic here in philippines they allow food,
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thank you and take care
Nicolas Buenafe

January 2 diagnose ESRD
January 05, 2007 start dialysis
51.5k dry weight
Braun Dialog Machine
2x a week
Blood Pump 300-380
Plan for transplant maybe next year looking for funds
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