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noduh
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« on: November 28, 2008, 01:15:56 PM »
Hi,  I am Judy from Northern California. I am 63 years old and work full time as a Hotel Manager.  I have been on dialysis for 2 months.  I am scared  and curious and unsure of what is Normal ??? I have enjoyed reading some of the phases others go through and intend to ask bunches of questions ???  I have a fistula in my upper arm.  It seems to be difficult for the techs to get it working each time.  I have been infiltrated several times already.  I am looking forward to visiting and getting to enjoy such a supportive group of people.  Thanks, Noduh in Ca
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willieandwinnie
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« Reply #1 on: November 28, 2008, 01:27:01 PM »
:welcomesign; noduh. You have found the perfect place for information and support. We are a great group and will answer your questions honestly. Please post often.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
paris
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« Reply #2 on: November 28, 2008, 02:14:00 PM »
 :welcomesign;   You have found the best site on the internet for honest answers and for great support.   How do you feel working full time and being on dialysis?  I am sure you will have lots to add to this group and we look forward to hearing more about you.  Ask lots of questions.  Everyone is very willing to help and they will give you their honest opinion---the good, the bad, and the ugly!   We also have a lot of fun with each other.  We just need to laugh somedays!    We are very glad you joined us, Judy  :grouphug;





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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Rerun
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Going through life tied to a chair!
« Reply #3 on: November 28, 2008, 02:32:31 PM »
NoDuh!  I love your name.  I lived in Sacramento for 6 years and have good friends in Redding.  How far is north?  Two months and still working.  That is great.  Try and keep it up.  Rest when you can.  I'd like to hear more about you.  Are you eligible for a transplant?  What did your kidneys fail from?  So much to know.  I'm glad you joined us.  I look forward to your posts.

           :welcomesign;
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nursewratchet
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"Either do it, or don't do it, don't try"
« Reply #4 on: November 28, 2008, 05:40:50 PM »
Hi Judy,

  Ask for the best cannulator in the facility, and insist to the highest one in charge to have the best cannulator establish your needle sites.  If you still have trouble, you may need to have a fistulagram, taking a picture of your fistula.  Sometimes you will have a stricture, or occlusion that can be easily opened up.  Good Luck.
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Vicki
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« Reply #5 on: November 28, 2008, 06:08:27 PM »
 :welcomesign;

NurseW...Ask for the best Cannulator???? oh please let me tell you what I was told when I asked that "several" times....Now I just give specific instructions to whoever cannulates me and I make sure my instructions are followed.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
boxman55
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« Reply #6 on: November 28, 2008, 06:30:02 PM »
Hi noduh, Welcome to IHD so glad you found us. We are here to help and listen. Please post often I am sure you have tons of questions


Boxman, Moderator
« Last Edit: December 30, 2008, 02:19:34 PM by boxman55 » Logged

"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Romona
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« Reply #7 on: November 28, 2008, 07:01:45 PM »
 :welcomesign;
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nursewratchet
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"Either do it, or don't do it, don't try"
« Reply #8 on: November 28, 2008, 07:11:32 PM »
Ask again.  Ask the Administrator.  Ask the Dr.  Ask the Medical Director.  Change clinics if they won't take care of you.  Your arm, your lifeline. 
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Vicki
Joe Paul
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« Reply #9 on: November 28, 2008, 11:02:13 PM »
Welcome NoDuh, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Normie
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Ellie
« Reply #10 on: November 28, 2008, 11:10:45 PM »
Hi Judy and  :welcomesign;

Glad you joined.  Lots of help here.

Normie
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Normie

Kidney damage 4/22/07

Predialysis
twirl
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« Reply #11 on: November 29, 2008, 04:26:26 AM »
 :cheer: howdy
and I have been on dialysis for three years  :waiting;
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thegrammalady
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« Reply #12 on: November 29, 2008, 06:40:49 AM »
 :welcomesign; this is a good place to land.  ask all the questions you want, i'm sure someone will have an answer for you.
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s
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

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annabanana
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« Reply #13 on: November 29, 2008, 09:28:08 AM »
 :welcomesign;
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caregiver to Randy:
HepC and stage 4 ckd
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Ang
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« Reply #14 on: November 30, 2008, 02:18:23 PM »
 :welcomesign;   Noduh
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live  life  to  the  full  and you won't  die  wondering
monrein
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Might as well smile
« Reply #15 on: November 30, 2008, 02:25:01 PM »
 :welcomesign;  Nice to have you with us Judy.  Post often and I look forward to hearing about your experiences with dialysis.  As for your fistula, once you get it established and it's matured, you might consider cannulating yourself.  Best control and consistency you can hope for.  I know how crazy that sounds at first but many people would never go back once they get comfortable with doing it themselves.  I am one of those people.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
jessup
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« Reply #16 on: November 30, 2008, 02:53:04 PM »
G'day and  :welcomesign;
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nursewratchet
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"Either do it, or don't do it, don't try"
« Reply #17 on: November 30, 2008, 04:25:29 PM »
I agree with Monrein about the cannulating.  Once you have identified a great cannulator, ask him\her to show you how.  Patients all say it hurts less to do it themselves.  You will have more control, and who will take better care of your lifeline than you.  Hats off to anyone who can do it themselves, it is a big step...
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kellyt
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« Reply #18 on: December 30, 2008, 12:39:15 PM »
 :waving;   I look forward to hearing more about you.  Welcome!!!!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Bajanne
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« Reply #19 on: December 30, 2008, 04:46:39 PM »
Welcome to our community, Judy! Greetings from the Caribbean!  So glad you found us and joined us.  i can guarantee that this website is going to be one of your important weapons in dealing with this renal challenge we face.    So please keep reading and keep posting so that we can know what is going on with you.  You see, we are family here.  :grouphug;
Looking forward to hearing from you. :flower;



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I LOVE  my IHD family! :grouphug;
David13
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« Reply #20 on: January 05, 2009, 03:54:42 PM »
Welcome, Judy!  Please do ask lots of questions.  You will find much useful information here.
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noduh
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« Reply #21 on: January 05, 2009, 05:19:10 PM »
Thank you so much everyone, I'm looking forward to talking to everyone. Of course that will be when I get used to navigating the site!!  I have been lucky enough to have been awarded 3 techs who are great with my fistula so I've over come that stress.  I am looking forward to being as brave as Monrein.  I am holding at the end and have started putting my own finishing bandages on.  That cuts out about 1/2 hour of sit around time.  I am always in a hurry, wrong thing to be huh! Not to mention the cold, what the heck is that all about, I'm a California girl ,heck my winter shoes are socks with my sandals, now I'm wrapped up like an Eskimo and on my back,  what a fine mess I've gotten myself into. Got  Go
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thegrammalady
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« Reply #22 on: January 05, 2009, 05:25:36 PM »
 :welcomesign;  this is a great place
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #23 on: January 05, 2009, 09:10:51 PM »
 :welcomesign; :waving;
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
pelagia
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« Reply #24 on: January 08, 2009, 07:12:23 PM »
 :waving;  not sure how I missed this post.  A belated  :welcomesign; to you, noduh.
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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