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Author Topic: Approved!! Date is Set!...  (Read 9983 times)
kidney4traci
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« on: November 28, 2008, 04:58:45 AM »
I am so excited!  We are approved for Ryan to donate to me and the date is set for Feb 3rd!   I have to do cellcept one month prior as well as rituximab - an IV for 6 hours.  Anyone go through this?  I would love your feedback on the details of everything... from what to expect to what to pack!  I can't believe it will finally happen!! Over 4 years on dialysis... can't remember what non-dialysis feels like! :bandance;
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
idahospud
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« Reply #1 on: November 28, 2008, 05:03:19 AM »
 :clap; :2thumbsup; :bandance; Im so happy for you  :grouphug; Carol
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Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #2 on: November 28, 2008, 05:28:02 AM »
Excellent news. I'm so glad for you :2thumbsup; :yahoo;
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Ken
willieandwinnie
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« Reply #3 on: November 28, 2008, 05:48:06 AM »
:bandance;  :yahoo;  :2thumbsup; kidney4traci. I'm going to pray that the time goes by fast. Congratulations.  :cuddle;  :clap;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Lori1851
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This is me Lori , Dustin's mom
« Reply #4 on: November 28, 2008, 06:46:18 AM »
 :bandance; :beer1; :clap;
I am so excited for you!!!!!!

Lori/Indiana
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monrein
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« Reply #5 on: November 28, 2008, 07:00:34 AM »
So exciting.  I'm hoping for my transplant around the same time but nothing is finalized as yet.  No one has so far mentioned starting the immunosuppressive drugs prior to the surgery but I'll let you know if they do.

Wishing you guys all the best and I hope the wait doesn't feel like an eternity.   :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kellyt
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« Reply #6 on: November 28, 2008, 08:33:10 AM »
Congratulations!  What wonderful news!   :bandance;     I didn't have to do any treatments prior to transplant.  I hope all goes well in that area.

As far as packing, I took a pillow, blanket, bathrobe, cell phone, charger, lite make-up, face cleansing items, etc.  My donor brought a ton of magazines for us to browse through.  In my hospital they had the most horrible, hard, tiny towels!  I suggest you take a nice fluffy towel for after showers.  I wish I had taken one with me!

I cleaned my house pretty good before transplant.  My husband wasn't allowed to use the hall bath while I was gone so that there was at least one good, clean bathroom.  He did a pretty good job at keeping the house picked up before I came home.  He was sure to have all the dishes out of the sink and the trash taken out. 

I'm very happy for you!  I wish you the best!  Keep us informed on all that is to follow!!!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Romona
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« Reply #7 on: November 28, 2008, 09:35:27 AM »
 :bandance; I am so happy for you!
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okarol
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« Reply #8 on: November 28, 2008, 10:11:04 AM »

 :yahoo; Whoo Hooo traci! Great news!

I have not heard of that pre-surgery protocol. Jenna had IVIG and plasmapheresis the day before the surgery because she had a mild B cell sensitivity in the final crossmatch. Do you have a similar situation?

4 1/2 weeks away - that is so exciting!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Run8
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« Reply #9 on: November 28, 2008, 11:55:27 AM »
Great news Traci.
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kidney4traci
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« Reply #10 on: November 28, 2008, 01:13:43 PM »
Thanks Kelly... that helps alot!!! OKarol - I have to do the IVIG but not the plasmaphorisis. 
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
lola
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I can fly!!!
« Reply #11 on: November 28, 2008, 01:49:28 PM »
 :bandance; :bandance;
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www.caringbridge.org/visit/ottomachado
Chris
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« Reply #12 on: November 28, 2008, 02:02:47 PM »
Congrats Traci,
As far as the meds go, with CellCept,  expect frequent flyer miles to the washroom. It may or may not happen, but CellCept does cause that to happen until body adjust to it. Some people can not tolerate it, so if there are problems, let the doctor know asap.

No idea about the other med, but my transplant was not timed, but did have the IVIG.

Good Luck to the both of you.
« Last Edit: November 28, 2008, 02:31:24 PM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kidney4traci
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« Reply #13 on: November 28, 2008, 02:17:35 PM »
I just want to say I may hate dialysis but I LOVE the people on this site!!  Thank you for all your responses!!  You Rock!!
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
kellyt
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« Reply #14 on: November 28, 2008, 06:43:09 PM »
Oh yes Chris, good advice!  The CellCept definitely keeps you "busy" on the potty!  With the stomach cramps to match!  Mine is getting a little better, but still crampy.  So far I'm not having any problems with the Prograf, but a definite "yes" on the CellCept!!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Chris
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« Reply #15 on: November 28, 2008, 06:55:09 PM »
Head the warning of CellCept, the eat 2 hours after taking med or take med 1 hour before eating. Just invest in T.P. if left over T.P., just have aT.P. party on someones house  :rofl;
Sad part is I wish that were true.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Beth36
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« Reply #16 on: November 28, 2008, 07:24:16 PM »
I am so so so happy for you!!!  That is the best news I have gotten all week!  YEA!!!!  I know you are excited to put it mildly and I can't wait to hear all about it....

Beth
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Mom had positive crossmatch transplant at Mayo Clinic on 6/13/08!!
chris73
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its me ...Chris

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« Reply #17 on: November 28, 2008, 07:59:41 PM »
congrats on the transplant date, i know it cant come soon enough.....i was instructed to take cellcept the day b4 transplant and of course still taking it!!   God Bless You!!
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11/10/07 esrd
12/07/07 permcath placed
dialysis started 2 days later
transplant 4/15/08  from close friend and coworker  of 12 yrs. Thanks Jeff!!
Wattle
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« Reply #18 on: November 28, 2008, 11:29:24 PM »
  :cheer: :cheer:  Yeah Traci Woohoo   :cheer: :cheer: :cheer:

That is wonderful news! I wish you and your donor a smooth transplant.

Maybe come March you can finally "live on your Boat"   :flower;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
thegrammalady
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« Reply #19 on: November 29, 2008, 06:50:32 AM »
 :yahoo; :2thumbsup; :clap; :yahoo;
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Sluff
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« Reply #20 on: November 29, 2008, 07:24:50 AM »
I am very happy for you. Congratulations Tracy.  :beer1;
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paris
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« Reply #21 on: November 29, 2008, 10:13:35 AM »
Great news--congratulations!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
annabanana
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« Reply #22 on: November 29, 2008, 11:00:14 AM »
 :bandance; :bandance; :bandance; YAY!!! :bandance; :bandance; :bandance;
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
pelagia
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« Reply #23 on: November 30, 2008, 10:08:07 PM »
 :yahoo; :yahoo; :yahoo; :yahoo; :yahoo;

I saw your message over on the Secret Santa thread and came looking for an "official" thread.  This is the greatest of news. 

Stephen didn't have any treatments in advance of his hospitalization.  But, he was admitted the night before and I am not sure what they gave him then.  I will check.  Also, he didn't seem to have any major problems with any of the drugs.  But, maybe I missed it because I am big on stocking extra toilet paper anyway.  ;D
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
rose1999
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« Reply #24 on: November 30, 2008, 10:31:21 PM »
:yahoo; Just caught up with this and it's great news to start the week, in fact the new month,  with (it's 6.30 a.m. Monday 1 December here)
I pray that all goes well.   :cuddle;
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