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Author Topic: HI  (Read 2520 times)
mickey1973
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HI
« on: November 27, 2008, 07:56:28 AM »
Hi all I guess this site seems to be more US based ??
Anyhow I'm from Scotland  - was diagnosed this year with APKD , my dad had it and unfortunetly my younger brother and I have it . So I guess we grew up seeing Dialysis on a what seemed like a daily basis and saw the whole bitter sweet part of it - thankfully we are not at that stage yet but it will be in the post at some time ! NLOL
Is anyone else on this site not at that stage yet ? and does anyone else have any knowledge of LPH due to hypertension.

anyhow thought id say hi

LM
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Joe Paul
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« Reply #1 on: November 27, 2008, 07:59:16 AM »
Welcome Mickey, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
willieandwinnie
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« Reply #2 on: November 27, 2008, 08:40:28 AM »
:welcomesign; Mickey. We have folks on here from all over the world. Glad you found us and we look forward to hearing more from you. There are plenty of people here that are pre-dialysis, check some of the older post or try the search at the top. Bunches of topics to read.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile
« Reply #3 on: November 27, 2008, 09:23:23 AM »
 :welcomesign;  we've been looking for a Scottish representative and here you are.  Do an IHD search on "predialysis" and you should find quite a bit.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Rerun
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Going through life tied to a chair!
« Reply #4 on: November 27, 2008, 09:29:51 AM »
Hey Mickey you're so fine...... (forgot the rest of the song)  Welcome to IHD. I think you are the only one from Scotland.  I'm so glad you found us.  I'm part Scottish.  From the MacMillan Clan. I've gone to the Scottish Games in Woodland, CA as a spectator.

I've been on dialysis on and off for 20 years.  I'm glad you are not on it yet.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #5 on: November 27, 2008, 09:54:23 AM »

 :waving; Hi Mikey,
Welcome. You'll meet a variety of people here, pre-dialysis, hemo, PD, nxstage, transplants, caregivers and family members. One of our members MattyBoy100 is from Dumfries I believe.
I am glad you joined us.

okarol/admin
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jessup
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Gemma - the tucker monster
« Reply #6 on: November 27, 2008, 12:48:10 PM »
G'day and  :welcomesign;
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Ang
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« Reply #7 on: November 27, 2008, 02:25:46 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
Normie
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Ellie
« Reply #8 on: November 28, 2008, 10:33:52 PM »
Hi Mickey and  :welcomesign;

I am predialysis and hope to stay that way forever :)

Glad you joined the family   :grouphug;

Normie
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Normie

Kidney damage 4/22/07

Predialysis
G-Ma
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« Reply #9 on: November 28, 2008, 11:43:46 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Bajanne
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« Reply #10 on: November 29, 2008, 03:27:36 AM »
Welcome to our community!  And a special welcome from a fellow member of the Commonwealth (from Barbados, living in the British Virgin Islands).  Happy to have someone from Scotland.  Love that accent!!  I work at the Tourist Board where the cruise ships come in here, and this week met a Scot. He plays in a pipe band and wears a kilt.  Didn't give me the answer to the question.  Could you do that for me?
Anyway, we have many predialysis people here - our own dear Sluff, Administrato,r is predialysis.
This is a great place to be - lots of information, loads of support, and sometimes, barrels of fun.  Keep reading and keep posting.



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
annabanana
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« Reply #11 on: November 29, 2008, 09:29:29 AM »
 :welcomesign;
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #12 on: November 29, 2008, 01:39:34 PM »
 :welcomesign; from one Mikey to another!
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
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