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Author Topic: Catheter comes out Dec. 2  (Read 3450 times)
Adam_W
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Me with Baron von Fresenius
« on: November 24, 2008, 06:51:58 PM »
I go in next Tues to have my PD catheter taken out. I'm disappointed, but I'm dealing with it. I'm just glad I have NxStage to go back to, and I don't have to do in-centre. I'm still going to be able to move, it will just be a little more awkward because my "partner" won't actually be living with me. There are also a couple new home hemo machines coming out soon (one from Baxter and one from X-Corporeal), and I may be able to participate in the clinical trials of one of them. The X-Corporeal machine is actually being marketed for UNATTENDED home hemo. So, At least I can't say I didn't try PD.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Run8
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308-850-5711
« Reply #1 on: November 24, 2008, 09:39:37 PM »
All We can so is never give up and try Adam.
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mikey07840
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Her royal highness Queen Ruth on her throne, RIP
« Reply #2 on: November 24, 2008, 09:56:16 PM »
Hang in there buddy. Ruth sends her special royal love.  :waving;
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06/85 Diagnosed with type 1 Diabetes
10/04 Radical Nephrectomy (Kidney Cancer or renal cell carcinoma)
02/08 Started Hemodialysis
04/08 Started Peritoneal Dialysis (CAPD)
05/08 Started CCPD (my cycler: The little box of alarms)
07/09 AV Fistula and Permacath added, PD catheter removed. PD discontinued and Hemodialysis resumed
08/09 AV Fistula redone higher up on arm, first one did not work
07/11 Mass found on remaining kidney
08/11 Radical Nephrectomy, confirmed that mass was renal cell carcinoma
12/12 Whipple, mass on pancreas confirmed as renal cell carcinoma

• Don't Knock on Death's door; Ring the bell and run away. Death hates that.

• I'm not a complete Idiot -- some parts are missing.
willieandwinnie
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« Reply #3 on: November 25, 2008, 01:08:18 PM »
Adam, I am so sorry that PD didn't work for you. Please keep us updated on how things are going.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #4 on: November 25, 2008, 03:21:33 PM »
Sorry that PD didn't work for you. On the bright side at least you won't have to walk around with what sometimes feels like a second penis and no more fannying about keeping your exit site clean. If Nextage was available in the UK I would quite possibly consider it.
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Ken
monrein
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Might as well smile
« Reply #5 on: November 25, 2008, 03:41:00 PM »
Quote from: Ken Shelmerdine on November 25, 2008, 03:21:33 PM
Sorry that PD didn't work for you. On the bright side at least you won't have to walk around with what sometimes feels like a second penis and no more fannying about keeping your exit site clean. If Nextage was available in the UK I would quite possibly consider it.
:rofl;  Some of us don't know what it feels like to have ONE of those things (attached permanently, at any rate), let alone two.


I'm thinking Nxstage stock might be a decent investment right now, it's trading at approx $2.50 down from the year's high of over $15.00.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Sluff
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« Reply #6 on: November 25, 2008, 06:42:41 PM »
 :grouphug;
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David13
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A meow massages the heart.
« Reply #7 on: November 29, 2008, 04:06:17 PM »
Sorry to hear about this setback, Adam.  You did everything right, it just didn't work out, it seems. 

As you said, at least you have another home dialysis option, and you are already familiar with it.  Those new machines, especially the one from X-Corporeal, seem to offer an intriguing promise of better things to come, too. 
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
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