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lola
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I can fly!!!
« on: November 20, 2008, 10:05:42 AM »
Otto no longer is on Gengraf(cyclosporine capsules) I have 100mg and 25mg would anyone like them? xoxoxo
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www.caringbridge.org/visit/ottomachado
kellyt
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« Reply #1 on: November 20, 2008, 12:45:20 PM »
I'm not on that, but how sweet of you to offer it up for FREE.  I'm sure someone will take you up on your generous offer.  I sure hope Otto is doing well.  I hope he's called up again soon.   Is he still at the top of the list?
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: November 20, 2008, 12:53:27 PM »


I have a bunch of Norvasc if anyone needs it.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
G-Ma
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« Reply #3 on: November 20, 2008, 01:04:11 PM »
I have about 90 Hecterol, .5 mcg, just got them, then went back in center so don't need.  Free for the asking.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
G-Ma
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« Reply #4 on: November 20, 2008, 01:19:15 PM »
Hecterol is gone......good day.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
willieandwinnie
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« Reply #5 on: November 20, 2008, 01:25:11 PM »
Kelly, I sent you a PM. I have some Valycte that I'd be more then happy to send you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
kellyt
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« Reply #6 on: November 20, 2008, 01:28:27 PM »
 :)
« Last Edit: November 22, 2008, 06:44:13 AM by kellyt » Logged
1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
TynyWonder
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Calvin
« Reply #7 on: November 20, 2008, 02:48:52 PM »
Quote from: okarol on November 20, 2008, 12:53:27 PM


I have a bunch of Norvasc if anyone needs it.

What mg Okarol?
Logged
Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
boxman55
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« Reply #8 on: November 20, 2008, 02:51:53 PM »
I am looking for some percoset or vicodeine can you help  ;D ...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
kimcanada
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« Reply #9 on: November 20, 2008, 02:57:49 PM »
Quote from: boxman55 on November 20, 2008, 02:51:53 PM
I am looking for some percoset or vicodeine can you help  ;D ...Boxman

 :rofl; :rofl; :rofl;

I am in need of valumn!  THis is fun!
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TynyWonder
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Calvin
« Reply #10 on: November 20, 2008, 03:01:56 PM »
Quote from: boxman55 on November 20, 2008, 02:51:53 PM
I am looking for some percoset or vicodeine can you help  ;D ...Boxman

What about me?????   Will u share them Boxman if someone donates some to you?   ;D
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
lola
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Posts: 2167


I can fly!!!
« Reply #11 on: November 20, 2008, 03:32:34 PM »
Quote from: boxman55 on November 20, 2008, 02:51:53 PM
I am looking for some percoset or vicodeine can you help  ;D ...Boxman
It's in the mail ;D
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www.caringbridge.org/visit/ottomachado
G-Ma
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« Reply #12 on: November 20, 2008, 04:07:39 PM »
Does anyone have a valium salt lick???   :rofl;
Logged
Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
boxman55
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« Reply #13 on: November 20, 2008, 04:10:16 PM »
Quote from: G-Ma on November 20, 2008, 04:07:39 PM
Does anyone have a valium salt lick???   :rofl;
What a great idea one in every hallway...Boxman
Logged

"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
G-Ma
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« Reply #14 on: November 20, 2008, 04:24:21 PM »
On a shelf at mouth level.......   :rofl;
Logged
Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Chris
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Posts: 9219


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« Reply #15 on: November 20, 2008, 05:20:46 PM »
Quote from: boxman55 on November 20, 2008, 02:51:53 PM
I am looking for some percoset or vicodeine can you help  ;D ...Boxman
Sorry boxman, didn't see this post till today and my vicodine has ben given away.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
TynyWonder
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Calvin
« Reply #16 on: November 21, 2008, 12:13:04 PM »
Quote from: G-Ma on November 20, 2008, 04:07:39 PM
Does anyone have a valium salt lick???   :rofl;

Oh, DO TELL?????   What is a valium salt lick?   I figure you might be kidding but what is it or COULD it be anyways?    ;)
Logged
Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
okarol
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Posts: 100933


Photo is Jenna - after Disneyland - 1988

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« Reply #17 on: November 21, 2008, 12:59:31 PM »
Quote from: TynyWonder on November 20, 2008, 02:48:52 PM
Quote from: okarol on November 20, 2008, 12:53:27 PM


I have a bunch of Norvasc if anyone needs it.

What mg Okarol?

Not sure, I will check when I get back home Sunday.
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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Posts: 9219


WWW
« Reply #18 on: November 21, 2008, 02:29:42 PM »
Quote from: G-Ma on November 20, 2008, 04:07:39 PM
Does anyone have a valium salt lick???   :rofl;
Just was thinking that this is something flip would say and then give a recipe on how to make it. I am sure flip would have something comical to say
« Last Edit: November 21, 2008, 09:27:30 PM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
G-Ma
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Posts: 2191
« Reply #19 on: November 21, 2008, 02:33:46 PM »
Tyny...FYI....Farmers or people who feed animals have about 12 inch square blocks of salt for the cattle to lick.  My thought is mixing valium with the salt in blocks and we can lick as needed.  Very calming indeed I believe.   :rofl;
Logged
Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
boxman55
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Posts: 3635
« Reply #20 on: November 21, 2008, 03:11:58 PM »
We would put blocks of salt out for the deer to lick

PS Sorry lola for making fun on this thread your offer will help some one out and that is great...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
monrein
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Posts: 8323


Might as well smile
« Reply #21 on: November 21, 2008, 03:50:25 PM »
As I kid I sometimes used to pretend I was a cow and I'd go in the pasture and lick the salt licks.  We also had a molasses trough that dripped slow molasses out of a tank into a trough.  I'd do that too with the cows, except I had to climb up, they just stepped up, lowered their heads and licked.  We knew all the cows by name and in my mind I thought they knew I was a cow too. 
My favorite thing though was being a pig when the great whites (they were more pink actually) had piglets.  I liked to sit with the mother and chat to her about her babies....and there were sometimes ten of them. 

I have no idea how I made it to adulthood.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
lruffner
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Posts: 146
« Reply #22 on: November 21, 2008, 05:35:26 PM »
I probably have a really stupid question, but here goes anyway. I may have some very costly meds to give someone in need, but with all of these interceptions at USPS, how could you send them? I can see me put in prison now over Cellcept   :oops;   Anyway, I only had a $40 Co-pay and used 2 pills before the doc stopped it, so I am just shy of a 90 day supply. I may also have some other meds as well.


Quote from: Chris on November 21, 2008, 02:29:42 PM
Just was thinking that this is something flip would say and then give a recipe on how to make it. U am sure flip would have something comical to say


Chris-

How right you are, Flip would have a hell of a time with this topic, and would probably offer to call his state trooper buddies to pick me up! lol
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Diagnosed w/ primary fsgs- June 2007
Getting ready to begin transplant work-up at IU and Jewish-9/08

"Live for Today"
pelagia
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« Reply #23 on: November 21, 2008, 07:45:37 PM »
You should be able to send your prescription to yourself c/o another person at their address.  You can't get in trouble for sending your own prescription drug to yourself, can you?
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Romona
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« Reply #24 on: November 21, 2008, 07:47:33 PM »
I don't have any medications, but would anyone like some snow? I will give it all away.
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