Feel like giving up

[The Wife]

I'm sorry to hear of the problems.   Hang in there.  I know it's tough sometimes but you seem to be a strong person.  And yes, it would be great if doctors came and read what their patients go through!

All the best to the two of you. 

[nursewratchet]

Yvonne, has John given you power of attorney rights?  (Is that the term I'm looking for?)  Then you, personally, would have the right to demand the accountability for his care that he needs, and they would have to talk to you, privacy rules notwithstanding.

It's so hard to stand up to the docs when you are ill - you need that team effort to make it work.

 

[rose1999]

Hi Yvonne, a tunnelled line (a Tasio or Tesio line I think it's called but not sure of spelling) is a line into the veins, tunnelled under the skin.  He had one in his chest and after 15 months that got pseudomonas and had to come out, they put one in the other side and caused a heart attack (long story!) in Sept/Oct and so put one in his leg.  That fell out 2 weeks ago so they've put one in the other leg now.  He's not well and we're seeing the consultant today.  I wish he could have a fistula because these lines are causing him problems but his vascular system is so shot that they say he can't.  Will talk to consultant today about it though. 
We have had nothing but one error after another from the hospitals, but we are too weary to do anything than go with it I'm afraid, there is no choice of where we go, there's only one hospital in the area that does these liens etc and it's 90 minutes drive away as it is.
Happy Christmas to you and John.

[nursewratchet]

Yvonne, has John given you power of attorney rights?  (Is that the term I'm looking for?)  Then you, personally, would have the right to demand the accountability for his care that he needs, and they would have to talk to you, privacy rules notwithstanding.

It's so hard to stand up to the docs when you are ill - you need that team effort to make it work.

 

I'll try  to send this again...  Explain to him that the Medical Power of Attorney, will allow you to access info for him. You could also make decisions for him, ONLY IF HE CAN"T SPEAK FOR HIMSELF.  Make sure he knows that you could not override his choices, he will be listened to, as long as he can state his wishes.    Everyone should have one.  Good Luck.




Edited: Fixed quote tag error - okarol/admin