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Author Topic: R.I.P. Mikey  (Read 25429 times)
Sluff
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« on: November 12, 2008, 08:22:17 PM »

As posted by Mikey's wife Marla in this thread http://ihatedialysis.com/forum/index.php?topic=10677.msg188131#msg188131

"My last post was Saturday--Mike spent most of the day sleeping and came around a little bit that night.  He kept wanting to sit up in his bed so I was holding him up when our son came in, he was so surprised to see Mike sitting up and looking right at him, he went right over to him and Mike said; "there's my friend, my son" and reached up for a hug, I'll never forget it.  Then Sunday morning he woke up around 11:00 and stayed awake and pretty aware; I called everyone and we all got to visit with him.  Mom told me this morning that he gave her the sweetest smile she's ever seen on his face, wonder what they were talking about!!  He was awake long enough to tell me he loved me and the kids--and whtever elst he wanted to say in private with my dad.  They're pretty tight too and used to go fishing 3 times a week--all seasons.
Sunday was not so good and he slept most of the time (with his eyes open!) and when he was awake, he was confused and kept wanting to sit up.  He was so weak he couldn't help me hold him up and my back was loosing it, so I would just calmly tell him he needs to stay in his bed or he will fall down.  The rest of Sunday I just kept telling him how much I will miss him but that it's alright for him to go, I will take care of our kids and grandkids, and even though I'll miss him, I will be alright.  I fell asleep on the couch around 5:00 Monday morning and when I woke up around 8:30, my baby was gone.
Instead of freaking out, I just went and made a pot of coffee, sat down and waited for it to be done and had a cup--strange--but I just was not ready to deal, but eventually I did.  I woke up our son so we could have some alone time before people started coming and the first person I called was my mama, funny how we turn into little girls again sometimes.  I waited a while before calling the hospice nurse and when I did, I told her I wasn't ready to let him go yet and to wait before calling the funeral chapel.  I tried bathing him but just ended up cleaning some parts so I could keep his dignity intact.  I feel like I did everything I could the way he wanted things
Now I am just plain exhausted and can't keep a thought in my head!  Mom went with me to the funeral parlor and we got that taken care of and now I've got lots of paperwork to fill out to get some help.  Plus people to call and people to try and find.

OMG, this hurts so damn bad and I can't believe he's really gone.  The livingroom looks huge with all the equipment gone but the biggest hole is in my heart. He was so much the good part of my life and I really don't know what I'm gonna do without him.  I feel very pissed and almost like I'm in shock, I keep getting these "butterflies" in my stomach and if I hear "hang in there" one more time........  One of the biggest things I dread is seeing our grandkids sweet faces after they know he's gone, especially the oldest one.

Thank you everyone so much for your thoughts, hugs and prayers.  I really felt  blessed on Sunday when he woke up for a while and thank God for those few precious hours.  I know I'll "get through this" but OMG, it hurts so bad!!!"
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Sluff
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« Reply #1 on: November 12, 2008, 08:24:09 PM »

Rest peacefully Mikey.
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jbeany
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Cattitude

« Reply #2 on: November 12, 2008, 08:25:50 PM »

RIP, mikey. 
 :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

monrein
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Might as well smile

« Reply #3 on: November 12, 2008, 08:52:37 PM »

Rest In Peace Mikey and hugs to you Marley.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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« Reply #4 on: November 12, 2008, 09:07:35 PM »


Thank you for letting us know Marley. I am so very sorry for your loss. It sounds as if you and Mikey were very lucky to have each other. Sending you lots of love - take care of yourself. :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Wattle
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« Reply #5 on: November 12, 2008, 09:49:04 PM »

 :grouphug;  RIP Mikey
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
G-Ma
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« Reply #6 on: November 12, 2008, 09:50:19 PM »

 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Mimi
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For any who do not like me I use - prayer.

« Reply #7 on: November 12, 2008, 10:21:09 PM »

I'm so sorry Marley.  It's the worst thing in the world to see your companion go.  My prayers are with you and your family.  Thanks for letting us know.

Love, Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
Ang
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« Reply #8 on: November 12, 2008, 11:57:38 PM »

R.I.P


Condolonces  to  the  family.
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live  life  to  the  full  and you won't  die  wondering
Joe Paul
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« Reply #9 on: November 13, 2008, 01:54:19 AM »

R.I.P. Mikey, thoughts and prayers are with the family  :grouphug;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
pelagia
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« Reply #10 on: November 13, 2008, 04:33:32 AM »

R.I.P. Mikey


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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
willieandwinnie
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« Reply #11 on: November 13, 2008, 05:10:43 AM »

Marley, my sincere condolences to you and your family and may Mikey rest in peace.  :cuddle;
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paul.karen
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« Reply #12 on: November 13, 2008, 05:30:14 AM »

:-(

RIP Mikey..
Another angel is born
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
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thegrammalady
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« Reply #13 on: November 13, 2008, 08:59:03 AM »

 :grouphug;  :grouphug;  :grouphug;  :grouphug;  :grouphug;  :grouphug;  :grouphug;
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« Reply #14 on: November 13, 2008, 09:33:18 AM »

Sincere condolences.  :grouphug;
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I LOVE  my IHD family! :grouphug;
Adam_W
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« Reply #15 on: November 13, 2008, 09:41:00 AM »

 :grouphug;
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
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« Reply #16 on: November 13, 2008, 10:03:22 AM »

 :grouphug;  :'(
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20 years navigating ESRD
Had a transplant but it rejected

To all of my kidney brothers and sisters who have left too soon -
Where you used to be, there is a hole in the world, which I find myself constantly walking around in the daytime, and falling in at night.  I miss you like hell.  ~Edna St Vincent Millay
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« Reply #17 on: November 13, 2008, 10:18:12 AM »

Mikey fought so hard.  Now he can rest.  Marley, you are a very brave, strong woman.  My heart is hurting for you.  We all love you   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
ODAT
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« Reply #18 on: November 13, 2008, 11:41:46 AM »

My prayers are with you Marley and your family. Mikey and you were blessed to have each other. You realized the specialness of your love and held onto it through thick and thin.

 :cuddle;
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As is your sort of mind, so is your sort of search: you will find what you desire.
Romona
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« Reply #19 on: November 13, 2008, 01:49:24 PM »

 :grouphug;
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« Reply #20 on: November 13, 2008, 06:22:03 PM »

 :'(  I am so sorry to hear this, RIP  :grouphug;
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kitkatz
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« Reply #21 on: November 13, 2008, 07:40:40 PM »

God bless Mikey and Marley.  May your lives be blessed.  :grouphug;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
boxman55
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« Reply #22 on: November 14, 2008, 03:43:52 PM »

RIP and bless you Mikey and all the family...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
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Yvonne

« Reply #23 on: November 14, 2008, 11:40:50 PM »

Rest in Peace Mikey and hugs to you Marley, I know this site will give you strength.  :grouphug;
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2007- since January 2007 carer to my husband John who has the following, allways been a very fit man up till then.
2007 - January Renal failure
2007 - March Diagnosed with a Horseshoe kidney and bladder cancer.
2007 - June One kidney, Prostrate and Bladder removed with stage 4 cancer. Urostomy
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« Reply #24 on: November 15, 2008, 12:53:50 PM »

Marley,

I am so very sorry.  You are in my thoughts.

RIP MIkey.
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