I am new here

[nettersinaz]

I was told about this website today at dialysis and I can honestly say "I hate dialysis" I have been on dialysis since August 2003 and we are finding out that dialysis is not working for me because my veins are so tiny. I have been through about 24 surgeries in the past year and a half. My catheters keep quitting on me. I did PD before and it did not work but my doctors want to try it again. At the time that I was living in WA state so I was able to get onto the transplant list. Then back in Feb. 2005 we moved from WA to AZ and we wore told that my status would be put on hold till I got down here. Well we found out that the state of AZ will not put me back on active till I lose weight, which my doctors are asking how am I suppose to lose it with all my surgeries? I understand about the weight issue but if the dialysis is not working then what else am I suppose to do? To make a long story short, I am so frustrated and not sure what else to do. I do have an appt. in Sept. to meet with the transplant team in Vegas but the thing is trying to get my insurance to cover it Vegas when I do not live up there. I am just taking it one day at a time. Anyway, thanks for making a place for us to vent. This is great.

[Hephs-little-lady]

Hi nettersinaz,

Welcome, welcome. Make yourself at home and put your feet up. Hope you find all the help and support you need here as well as valuable advice and experience. I'm sure you have a lot to offer too and look forward to getting to know you.

 

[Joe Paul]

Welcome aboard  nettersinaz, glad you joined us here.

[deej]

Welcome nettersinaz.  I feel your frustration and, although I can´t offer any answers, I can say you found the right place to vent. Let it all out! Don´t get depressed - things have a way of working themselves out. You´ll find a lot of support here. Welcome again.

[goofynina]

Hellooooo Netters,   So glad you came here, this is exactly what you need a good dose of ihateidalysis.com is good for anyone who has questions, comments or concerns regarding dialysis and other things too,  you will be amazed at the knowledge members have in here,  there are many members here that are not patients but caregivers, family and friends of patients so we all have something in common.  Please feel free to read into the thousands of posts we have here, sooo much information, i just love this place, oh yeah, we even have a doctor here now, is that not the coolest?   Dr. Evil, can you give Netters any advice for her problems?      Hope to hear more from you...

[Bajanne]

Just joining my welcome to the others.  I am glad that person shared this site with you.  This is place to let it all out, but not only that, to find some answers as well.  Keep posting, letting us know how you are doing.  One thing I can say with no shadow of doubt, is that we have a very caring (and understanding) community here.  Welcome!

[Rerun]

Hi nettersinaz, welcome to our site.  I share your concern on "tiny" veins.  What do we do when they are gone?  I would think that we would be promoted on the transplant list, but they have other agendas. (I don't care how trustworthy they sound)

Have fun reading.  Ask questions and get answers.

[Sluff]

Welcome Nettersinaz

[Mom3]

Is your weight mostly fluid?  Due to inadequate dialysis?? if so can't your doctors negotiate with the transplant doctors? Sounds like you are being victimized by some rigid rules!!! Good luck and a warm welcome.

Mom 3 (mother of a Hemo pt and a PKD pt.)

[angieskidney]

Welcome Nettersinaz

[Zach]

We look forward to your posts!!