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Author Topic: Darn Peritonitis  (Read 9727 times)
rookiegirl
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« on: November 06, 2008, 10:58:13 AM »

I've been on PD for 374 days free of any severe complications.  Just when I thought I was doing great, this happened.  My 375th days on PD it happened to me.  Saturday, Nov 1. I woke up did my exchange and felt fine.  Six hours later, I started having stomach ache and kept getting worst.  Called the PD Nurse and was told to drain some of my fluid to see if my bag was cloudy.  Sure enough, it was a little cloudy.  Then I was told to go immediately to the emergency room.  My husband drove me to the emergency which was an hour away from home.  The whole time on the way to the hospital, I'm screaming to the top of my lung because the pain was so intense.  I felt like someone is constantly stabbing me in the stomach.

To make this story short.  I was in the hospital for 4 days being treated for the infection.  They put Cefephine in my dialysis solution. I have to take this antibiotics for 2 weeks.  The cause of my infection is due to my Constipation.  E. Coli (Gram Negative) is what they found in the culture.  I'm thankful to God the type of bug is not the kind that leaves film on the catheter.  If so, they would have to remove my existing cath and replace it to the other side of my abdomen. While the new cath heal, I would have to go on hemo which will require a permacath.  So I'm relieved to find out it's not that kind of bug.

I was released from the hospital on Wednesday and next day went to the dialysis center so they can train me on how to mix the antibiotics and administer it to my solution.  Either do it myself or drive 1 hour each day for 2 weeks.  I chose to do it myself.

After 2 treatment of antibiotics, the pain is gone.  It just came out of no where.  No signs, no warnings, nothing until it was too late.  I've learned my lesson on how important it is to control constipation while on PD.

Just wanted to share and give some heads up on other reasons to what causes peritonitis.

Thanks RG

P.S.  I spent my birthday in the hospital in pain.  But, thanks to some morphine, it helped me get through it all. :)
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
okarol
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« Reply #1 on: November 06, 2008, 11:15:24 AM »



Happy belated birthday. Sounds like you and Brightsky had similar experiences - the same week too!
I hope you get rid of the infection.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
ODAT
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« Reply #2 on: November 06, 2008, 11:30:21 AM »

Hey rookiegirl, I can relate to the pain you experienced. I had salmonella and was in the hospital for 2 weeks! Man, that is seriously distressing to have such extreme pain for days. My friend and I ate out and got steak and strawberry margaritas. She vomited and didn't go to the hospital. I was the other way. I couldn't eat and just sat there holding my stomach moaning and screaming. My husband said 'I'm taking you to the hospital.' I didn't argue.

Happy that you didn't need to get another cath. And Happy Belated Birthday!  :birthday;

hmmmm...I don't remember getting morphine - I got gypped!
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george40
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« Reply #3 on: November 06, 2008, 04:22:23 PM »

rookiegirl,  I am completing my first week of pd training and the nurse keeps stressing to make sure to look out for constipation. Your situation drives home what she has been saying repeatedly all week. Thanks for sharing your story and I am glad you are feeling better.
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8/2000 - Diagnosed ESRD / Hemo begins with perm cath
1/2002 - Transplant No. 1
4/2006 - Transplant failed due to CMV virus/ Back to Hemo
11/2008 - Moved to PD Modality
9/2012 - Transplanted!
monrein
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« Reply #4 on: November 06, 2008, 05:23:47 PM »

 :grouphug;  Nasty experience rookiegirl.  Glad the pain is gone and I hope everything is completely back to normal very soon.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Rerun
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« Reply #5 on: November 06, 2008, 05:31:59 PM »

I'm glad you are better and I hope they gave you something for the constipation.

                                                     :cuddle;
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lola
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« Reply #6 on: November 06, 2008, 05:57:07 PM »

glad your feeling better.
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paris
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« Reply #7 on: November 06, 2008, 06:14:01 PM »

I am sorry for the extreme pain, it sounds horrible.  Hopefully you will keep feeling better every day.  North Carolina girls are strong!!   We really need to plan an NC get together!  Take care  :cuddle;
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rookiegirl
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« Reply #8 on: November 06, 2008, 06:39:27 PM »

I'm glad you are better and I hope they gave you something for the constipation.

                                                     :cuddle;

They gave me prescription of Sorbitol (sweet,syrup).  It makes you really really go.  I can't complain because I need it.  After that for now on Dulcolax stool softner everyday always and always.  I also stock my pantry with dried prunes and prune juice.  The prune juice is okay don't love it.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
Sluff
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« Reply #9 on: November 06, 2008, 06:55:53 PM »

I'm sorry you had to experience these complications. Hope you are on the road to recovery.   :birthday;  :bestwishes; Happy Belated Birthday RG.
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RCA
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« Reply #10 on: November 07, 2008, 05:04:22 AM »

How does constipation cause peritonitis?  I can see if you're constipated, your intestine may push the catheter out of position but having a difficult time figuring out how the bacteria from the colon would "leak out" and cause peritonitis  ???
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Joe Paul
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« Reply #11 on: November 07, 2008, 03:01:36 PM »

Glad you are feeling better  :thumbup;
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george40
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« Reply #12 on: November 08, 2008, 09:09:01 PM »

How does constipation cause peritonitis?  I can see if you're constipated, your intestine may push the catheter out of position but having a difficult time figuring out how the bacteria from the colon would "leak out" and cause peritonitis  ???

My pd nurse warned repeatedly during training of watching out for constipation. She explained something like...  when stool doesnt move, it pushes and stretches the colon walls. It will push and stretch and cause weak spots in the colon for infection and bacteria to get through to the abdominal cavity.
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8/2000 - Diagnosed ESRD / Hemo begins with perm cath
1/2002 - Transplant No. 1
4/2006 - Transplant failed due to CMV virus/ Back to Hemo
11/2008 - Moved to PD Modality
9/2012 - Transplanted!
pelagia
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« Reply #13 on: November 08, 2008, 09:24:31 PM »

Hope you are feeling 100% really soon  :flower;


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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
RCA
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« Reply #14 on: November 09, 2008, 10:57:12 AM »

How does constipation cause peritonitis?  I can see if you're constipated, your intestine may push the catheter out of position but having a difficult time figuring out how the bacteria from the colon would "leak out" and cause peritonitis  ???

My pd nurse warned repeatedly during training of watching out for constipation. She explained something like...  when stool doesnt move, it pushes and stretches the colon walls. It will push and stretch and cause weak spots in the colon for infection and bacteria to get through to the abdominal cavity.

Thanks George40.  That's a scary thought...that things in the colon may leak out to the abdominal cavity!  Hope you had a great first week of PD!  Are you still considering getting the cycler?
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rookiegirl
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« Reply #15 on: November 09, 2008, 07:27:01 PM »

How does constipation cause peritonitis?  I can see if you're constipated, your intestine may push the catheter out of position but having a difficult time figuring out how the bacteria from the colon would "leak out" and cause peritonitis  ???

My pd nurse warned repeatedly during training of watching out for constipation. She explained something like...  when stool doesnt move, it pushes and stretches the colon walls. It will push and stretch and cause weak spots in the colon for infection and bacteria to get through to the abdominal cavity.

George thanks for giving the explanation.  This is exactly what happened to me.  The E. Coli bacteria is what they determined from the culture they grew from my dialysis solution.  It took them 4 days to grow and determine it was Gram Negative Bacteria E. Coli.

So far, I'm doing really great.  No pain, no constipation.  In fact, I feel much better than before the peritonitis incident.  The pain I use to have on my side is no longer there.  I guess it was due to the constipation.

I have to say, I'm a bit paranoid now that this happened to me.  I've been surfing the web and reading up on the issues for peritonitis.  Some of what I've read, I don't like.  There was one article that said once you get peritonitis that you are prone to get it again.  I pray NOT.  Others say that most people get it once every 15 months.  I pray NOT.

I was told by one of my PD Nurse, they have a woman in the clinic going on 15 years with no peritonitis.  I really want to meet her and pick her brains on how she went for so long without complications from infections.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
george40
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« Reply #16 on: November 12, 2008, 12:55:16 PM »

RCA, I trained on the cycler this week. I'm supposed to give it a try tonight.


How does constipation cause peritonitis?  I can see if you're constipated, your intestine may push the catheter out of position but having a difficult time figuring out how the bacteria from the colon would "leak out" and cause peritonitis  ???

My pd nurse warned repeatedly during training of watching out for constipation. She explained something like...  when stool doesnt move, it pushes and stretches the colon walls. It will push and stretch and cause weak spots in the colon for infection and bacteria to get through to the abdominal cavity.

Thanks George40.  That's a scary thought...that things in the colon may leak out to the abdominal cavity!  Hope you had a great first week of PD!  Are you still considering getting the cycler?
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8/2000 - Diagnosed ESRD / Hemo begins with perm cath
1/2002 - Transplant No. 1
4/2006 - Transplant failed due to CMV virus/ Back to Hemo
11/2008 - Moved to PD Modality
9/2012 - Transplanted!
djgaryb11
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« Reply #17 on: November 17, 2008, 09:22:13 PM »

Sorry to hear about your complications. My nurse also has really stressed the constipation issue also.  I have been on PD a month now, doing it the manual way, and I train for the cycler in 2 days.  I will be very aware of the constipation issue, and so far I have been very "regular", and my PD nurse also had me get Sorbitol to use if I ever get constipated.  It Works ! I used a few days after my surgery, it it did the trick ! ....Gary B.
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7/2001 Diagnosed with Hypertension and Chronic Kidney Disease
2/2008 Diagnosed with End Stage Renal Disease
4/2008 Surgery to Create Backup A/V Fistula in Left Arm
7/2008 Placed on "UNOS" list for a Kidney Transplant
10/2008 Surgery to place PD Catheter
10/2008 Started CAPD
11/2008 Started on Baxter HomeChoice PD Cycler ( CCPD)
rookiegirl
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« Reply #18 on: November 19, 2008, 05:37:41 PM »

Sorry to hear about your complications. My nurse also has really stressed the constipation issue also.  I have been on PD a month now, doing it the manual way, and I train for the cycler in 2 days.  I will be very aware of the constipation issue, and so far I have been very "regular", and my PD nurse also had me get Sorbitol to use if I ever get constipated.  It Works ! I used a few days after my surgery, it it did the trick ! ....Gary B.

Gary - Wish you the best on the cycler.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
okarol
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« Reply #19 on: November 19, 2008, 07:12:10 PM »


I hope you can avoid any more infections rookiegirl. Take care!
 :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
rookiegirl
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« Reply #20 on: November 21, 2008, 01:28:05 PM »

I finished the last dose of antibotics this week.  I'm feeling much much better.  I go back in 2 weeks to have my fluid test and blood work, just to make sure the infection is completely gone.  I pray to God I don't get it anymore or no time soon.  Especially, I'm only 2 weeks away from going on my 1st time Cruise.

Thank you all for the nice comments.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
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